Exploring differences in interpretation of words essential in medical expert-patient communication

In the context of cancer treatment and surgery, quality of life assessment is a crucial part of determining treatment success and viability. In order to assess it, patient-completed questionnaires which employ words to capture aspects of patients’ well-being are the norm. As the results of these que...

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Main Authors: Navarro, Javier, Wagner, Christian, Aickelin, Uwe, Green, Lynsey, Robert, Ashford
Format: Conference or Workshop Item
Published: 2016
Subjects:
Online Access:https://eprints.nottingham.ac.uk/34213/
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author Navarro, Javier
Wagner, Christian
Aickelin, Uwe
Green, Lynsey
Robert, Ashford
author_facet Navarro, Javier
Wagner, Christian
Aickelin, Uwe
Green, Lynsey
Robert, Ashford
author_sort Navarro, Javier
building Nottingham Research Data Repository
collection Online Access
description In the context of cancer treatment and surgery, quality of life assessment is a crucial part of determining treatment success and viability. In order to assess it, patient-completed questionnaires which employ words to capture aspects of patients’ well-being are the norm. As the results of these questionnaires are often used to assess patient progress and to determine future treatment options, it is important to establish that the words used are interpreted in the same way by both patients and medical professionals. In this paper, we capture and model patients’ perceptions and associated uncertainty about the words used to describe the level of their physical function used in the highly common (in Sarcoma Services) Toronto Extremity Salvage Score (TESS) questionnaire. The paper provides detail about the interval-valued data capture as well as the subsequent modelling of the data using fuzzy sets. Based on an initial sample of participants, we use Jaccard similarity on the resulting words models to show that there may be considerable differences in the interpretation of commonly used questionnaire terms, thus presenting a very real risk of miscommunication between patients and medical professionals as well as within the group of medical professionals.
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format Conference or Workshop Item
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publishDate 2016
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spelling nottingham-342132020-05-04T17:42:00Z https://eprints.nottingham.ac.uk/34213/ Exploring differences in interpretation of words essential in medical expert-patient communication Navarro, Javier Wagner, Christian Aickelin, Uwe Green, Lynsey Robert, Ashford In the context of cancer treatment and surgery, quality of life assessment is a crucial part of determining treatment success and viability. In order to assess it, patient-completed questionnaires which employ words to capture aspects of patients’ well-being are the norm. As the results of these questionnaires are often used to assess patient progress and to determine future treatment options, it is important to establish that the words used are interpreted in the same way by both patients and medical professionals. In this paper, we capture and model patients’ perceptions and associated uncertainty about the words used to describe the level of their physical function used in the highly common (in Sarcoma Services) Toronto Extremity Salvage Score (TESS) questionnaire. The paper provides detail about the interval-valued data capture as well as the subsequent modelling of the data using fuzzy sets. Based on an initial sample of participants, we use Jaccard similarity on the resulting words models to show that there may be considerable differences in the interpretation of commonly used questionnaire terms, thus presenting a very real risk of miscommunication between patients and medical professionals as well as within the group of medical professionals. 2016-03-14 Conference or Workshop Item PeerReviewed Navarro, Javier, Wagner, Christian, Aickelin, Uwe, Green, Lynsey and Robert, Ashford (2016) Exploring differences in interpretation of words essential in medical expert-patient communication. In: 2016 IEEE International Conference on Fuzzy Systems (FUZZ-IEEE 2016), 24-29 July 2016, Vancouver, Canada. (Submitted) TESS Survey data Computing with Words Interval Agreement Approach similarity medicine questionnaire
spellingShingle TESS
Survey data
Computing with Words
Interval Agreement Approach
similarity
medicine
questionnaire
Navarro, Javier
Wagner, Christian
Aickelin, Uwe
Green, Lynsey
Robert, Ashford
Exploring differences in interpretation of words essential in medical expert-patient communication
title Exploring differences in interpretation of words essential in medical expert-patient communication
title_full Exploring differences in interpretation of words essential in medical expert-patient communication
title_fullStr Exploring differences in interpretation of words essential in medical expert-patient communication
title_full_unstemmed Exploring differences in interpretation of words essential in medical expert-patient communication
title_short Exploring differences in interpretation of words essential in medical expert-patient communication
title_sort exploring differences in interpretation of words essential in medical expert-patient communication
topic TESS
Survey data
Computing with Words
Interval Agreement Approach
similarity
medicine
questionnaire
url https://eprints.nottingham.ac.uk/34213/