Requirements for improving health and well-being of children with Prader-Willi syndrome and their families

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Requirements for improving health and well-being of children with Prader-Willi syndrome and their families

Prader-Willi syndrome (PWS) is a rare genetic condition with multi-system involvement. The literature was reviewed to describe neurodevelopment and the behavioural phenotype, endocrine and metabolic disorders and respiratory and sleep functioning. Implications for child and family quality of life we...

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Bibliographic Details
Main Authors:	Mackay, J., McCallum, Z., Ambler, G.R., Vora, K., Nixon, G., Bergman, P., Shields, N., Milner, K., Kapur, N., Crock, P., Caudri, D., Curran, J., Verge, C., Seton, C., Tai, A., Tham, E., Musthaffa, Y., Lafferty, A.R., Blecher, G., Harper, J., Schofield, C., Nielsen, A., Wilson, A., Leonard, H., Choong, C.S., Downs, Jennepher
Format:	Journal Article
Language:	English
Published:	WILEY 2019
Subjects:	Science & Technology Life Sciences & Biomedicine Pediatrics endocrine hyperphagia Prader-Willi syndrome quality of life sleep disordered breathing GROWTH-HORMONE TREATMENT QUALITY-OF-LIFE BEHAVIOR PROBLEMS PARENTING STRESS BODY-COMPOSITION THERAPY PREVALENCE DISORDERS MORTALITY PEOPLE
Online Access:	http://hdl.handle.net/20.500.11937/80539

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