Requirements for improving health and well-being of children with Prader-Willi syndrome and their families

Requirements for improving health and well-being of children with Prader-Willi syndrome and their families

Prader-Willi syndrome (PWS) is a rare genetic condition with multi-system involvement. The literature was reviewed to describe neurodevelopment and the behavioural phenotype, endocrine and metabolic disorders and respiratory and sleep functioning. Implications for child and family quality of life we...

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Bibliographic Details
Main Authors: Mackay, J., McCallum, Z., Ambler, G.R., Vora, K., Nixon, G., Bergman, P., Shields, N., Milner, K., Kapur, N., Crock, P., Caudri, D., Curran, J., Verge, C., Seton, C., Tai, A., Tham, E., Musthaffa, Y., Lafferty, A.R., Blecher, G., Harper, J., Schofield, C., Nielsen, A., Wilson, A., Leonard, H., Choong, C.S., Downs, Jennepher
Format: Journal Article
Language:English
Published: WILEY 2019
Subjects:
Science & Technology
Life Sciences & Biomedicine
Pediatrics
endocrine
hyperphagia
Prader-Willi syndrome
quality of life
sleep disordered breathing
GROWTH-HORMONE TREATMENT
QUALITY-OF-LIFE
BEHAVIOR PROBLEMS
PARENTING STRESS
BODY-COMPOSITION
THERAPY
PREVALENCE
DISORDERS
MORTALITY
PEOPLE
Online Access:http://hdl.handle.net/20.500.11937/80539

Internet

http://hdl.handle.net/20.500.11937/80539

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