A modular approach to disease registry design: Successful adoption of an internet-based rare disease registry
There is a need to develop Internet-based rare disease registries to support health care stakeholders to deliver improved quality patient outcomes. Such systems should be architected to enable multiple-level access by a range of user groups within a region or across regional/country borders in a sec...
| Main Authors: | , , , , , , |
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| Format: | Journal Article |
| Published: |
Wiley Interscience
2012
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| Subjects: | |
| Online Access: | http://hdl.handle.net/20.500.11937/7886 |