Family Caregiver Participation in Palliative Care Research: Challenging the Myth

Context: Despite international guidelines emphasizing consumer-directed care and autonomous decisions in research participation, there is a common myth that research can be an additional and unwanted burden on patients and their family members. Objectives: To examine the experiences and impact of re...

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Bibliographic Details
Main Authors: Aoun, Samar, Slatyer, Susan, Deas, Kathleen, Nekolaichuk, C.
Format: Journal Article
Published: Elsevier 2017
Online Access:http://purl.org/au-research/grants/arc/LP110100622
http://hdl.handle.net/20.500.11937/51551