Experience of Gastrostomy Using a Quality Care Framework: The Example of Rett Syndrome
Rett syndrome is one of many severe neurodevelopmental disorders with feeding difficulties. In this study, associations between feeding difficulties, age, MECP2 genotype, and utilization of gastrostomy were investigated. Weight change and family satisfaction following gastrostomy were explored. Data...
| Main Authors: | Downs, Jennepher, Wong, K., Ravikumara, M., Ellaway, C., Elliott, E., Christodoulou, J., Jacoby, P., Leonard, H. |
|---|---|
| Format: | Journal Article |
| Published: |
Lippincott Williams & Wilkins
2014
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| Online Access: | http://hdl.handle.net/20.500.11937/32548 |
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