Experience of Gastrostomy Using a Quality Care Framework: The Example of Rett Syndrome

Rett syndrome is one of many severe neurodevelopmental disorders with feeding difficulties. In this study, associations between feeding difficulties, age, MECP2 genotype, and utilization of gastrostomy were investigated. Weight change and family satisfaction following gastrostomy were explored. Data...

Full description

Bibliographic Details
Main Authors: Downs, Jennepher, Wong, K., Ravikumara, M., Ellaway, C., Elliott, E., Christodoulou, J., Jacoby, P., Leonard, H.
Format: Journal Article
Published: Lippincott Williams & Wilkins 2014
Online Access:http://hdl.handle.net/20.500.11937/32548