Scoping review of the literature about family-centred care with caregivers of children with cystic fibrosis
Background: Cystic fibrosis is a severe, life-shortening, inherited condition which imposes an enormous burden on the family and patient, and family-centred care (FCC) is postulated as the optimal model of care for these children and families. Aims: To search for literature investigating the use of...
| Main Authors: | , , , , , |
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| Format: | Journal Article |
| Published: |
Cambridge Publishing
2013
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| Subjects: | |
| Online Access: | http://hdl.handle.net/20.500.11937/31539 |