Survey of healthcare experiences of Australian adults living with rare diseases.
Background: Few studies have examined whether the healthcare needs of people living with rare diseases are being met. This study explores the experiences of Australian adults living with rare diseases in relation to diagnosis, information provision at the time of diagnosis, use of health and support...
| Main Authors: | , , , , , , |
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| Format: | Journal Article |
| Published: |
BioMed Central Ltd.
2016
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| Online Access: | http://hdl.handle.net/20.500.11937/24992 |