Racial and ethnic differences among amyotrophic lateral sclerosis cases in the United States

Our objective was to describe racial and ethnic differences of amyotrophic lateral sclerosis (ALS) in distinct geographic locations around the United States (U.S.). ALS cases for the period 2009–2011 were identified using active case surveillance in three states and eight metropolitan areas. Of the...

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Main Authors:	Rechtman, Lindsay, Jordan, Heather, Wagner, Laurie, Horton, D. Kevin, Kaye, Wendy
Format:	Online
Language:	English
Published:	Taylor & Francis 2015
Online Access:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4389704/

id	pubmed-4389704
recordtype	oai_dc
spelling	pubmed-43897042015-05-22 Racial and ethnic differences among amyotrophic lateral sclerosis cases in the United States Rechtman, Lindsay Jordan, Heather Wagner, Laurie Horton, D. Kevin Kaye, Wendy Epidemiology Our objective was to describe racial and ethnic differences of amyotrophic lateral sclerosis (ALS) in distinct geographic locations around the United States (U.S.). ALS cases for the period 2009–2011 were identified using active case surveillance in three states and eight metropolitan areas. Of the 5883 unique ALS cases identified, 74.8% were white, 9.3% were African-American/black, 3.6% were Asian, 12.0% were an unknown race, and 0.3% were marked as some other race. For ethnicity, 77.5% were defined as non-Hispanic, 10.8% Hispanic, and 11.7% were of unknown ethnicity. The overall crude average annual incidence rate was 1.52 per 100,000 person-years and the rate differed by race and ethnicity. The overall age-adjusted average annual incidence rate was 1.44 per 100,000 person-years and the age-adjusted average incidence rates also differed by race and ethnicity. Racial differences were also found in payer type, time from symptom onset to diagnosis, reported El Escorial criteria, and age at diagnosis. Taylor & Francis 2015-03 2014-12-08 /pmc/articles/PMC4389704/ /pubmed/25482100 http://dx.doi.org/10.3109/21678421.2014.971813 Text en © 2014 Informa Healthcare http://www.informaworld.com/mpp/uploads/iopenaccess_tcs.pdf This is an open access article distributed under the Supplemental Terms and Conditions for iOpenAccess articles published in Taylor & Francis journals (http://www.informaworld.com/mpp/uploads/iopenaccess_tcs.pdf) , which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. This is an open-access article distributed under the terms of the CC-BY-NC-ND 3.0 License which permits users to download and share the article for non-commercial purposes, so long as the article is reproduced in the whole without changes, and provided the original source is credited.
repository_type	Open Access Journal
institution_category	Foreign Institution
institution	US National Center for Biotechnology Information
building	NCBI PubMed
collection	Online Access
language	English
format	Online
author	Rechtman, Lindsay Jordan, Heather Wagner, Laurie Horton, D. Kevin Kaye, Wendy
spellingShingle	Rechtman, Lindsay Jordan, Heather Wagner, Laurie Horton, D. Kevin Kaye, Wendy Racial and ethnic differences among amyotrophic lateral sclerosis cases in the United States
author_facet	Rechtman, Lindsay Jordan, Heather Wagner, Laurie Horton, D. Kevin Kaye, Wendy
author_sort	Rechtman, Lindsay
title	Racial and ethnic differences among amyotrophic lateral sclerosis cases in the United States
title_short	Racial and ethnic differences among amyotrophic lateral sclerosis cases in the United States
title_full	Racial and ethnic differences among amyotrophic lateral sclerosis cases in the United States
title_fullStr	Racial and ethnic differences among amyotrophic lateral sclerosis cases in the United States
title_full_unstemmed	Racial and ethnic differences among amyotrophic lateral sclerosis cases in the United States
title_sort	racial and ethnic differences among amyotrophic lateral sclerosis cases in the united states
description	Our objective was to describe racial and ethnic differences of amyotrophic lateral sclerosis (ALS) in distinct geographic locations around the United States (U.S.). ALS cases for the period 2009–2011 were identified using active case surveillance in three states and eight metropolitan areas. Of the 5883 unique ALS cases identified, 74.8% were white, 9.3% were African-American/black, 3.6% were Asian, 12.0% were an unknown race, and 0.3% were marked as some other race. For ethnicity, 77.5% were defined as non-Hispanic, 10.8% Hispanic, and 11.7% were of unknown ethnicity. The overall crude average annual incidence rate was 1.52 per 100,000 person-years and the rate differed by race and ethnicity. The overall age-adjusted average annual incidence rate was 1.44 per 100,000 person-years and the age-adjusted average incidence rates also differed by race and ethnicity. Racial differences were also found in payer type, time from symptom onset to diagnosis, reported El Escorial criteria, and age at diagnosis.
publisher	Taylor & Francis
publishDate	2015
url	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4389704/
_version_	1613209076658864128

Racial and ethnic differences among amyotrophic lateral sclerosis cases in the United States

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