Changing the research landscape: the New York City Clinical Data Research Network

The New York City Clinical Data Research Network (NYC-CDRN), funded by the Patient-Centered Outcomes Research Institute (PCORI), brings together 22 organizations including seven independent health systems to enable patient-centered clinical research, support a national network, and facilitate learni...

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Main Authors:	Kaushal, Rainu, Hripcsak, George, Ascheim, Deborah D, Bloom, Toby, Campion, Thomas R, Caplan, Arthur L, Currie, Brian P, Check, Thomas, Deland, Emme Levin, Gourevitch, Marc N, Hart, Raffaella, Horowitz, Carol R, Kastenbaum, Isaac, Levin, Arthur Aaron, Low, Alexander F H, Meissner, Paul, Mirhaji, Parsa, Pincus, Harold A, Scaglione, Charles, Shelley, Donna, Tobin, Jonathan N
Format:	Online
Language:	English
Published:	BMJ Publishing Group 2014
Online Access:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4078297/

id	pubmed-4078297
recordtype	oai_dc
spelling	pubmed-40782972014-07-02 Changing the research landscape: the New York City Clinical Data Research Network Kaushal, Rainu Hripcsak, George Ascheim, Deborah D Bloom, Toby Campion, Thomas R Caplan, Arthur L Currie, Brian P Check, Thomas Deland, Emme Levin Gourevitch, Marc N Hart, Raffaella Horowitz, Carol R Kastenbaum, Isaac Levin, Arthur Aaron Low, Alexander F H Meissner, Paul Mirhaji, Parsa Pincus, Harold A Scaglione, Charles Shelley, Donna Tobin, Jonathan N Focus on Building a Network for Patient-Centered Outcomes Research The New York City Clinical Data Research Network (NYC-CDRN), funded by the Patient-Centered Outcomes Research Institute (PCORI), brings together 22 organizations including seven independent health systems to enable patient-centered clinical research, support a national network, and facilitate learning healthcare systems. The NYC-CDRN includes a robust, collaborative governance and organizational infrastructure, which takes advantage of its participants’ experience, expertise, and history of collaboration. The technical design will employ an information model to document and manage the collection and transformation of clinical data, local institutional staging areas to transform and validate data, a centralized data processing facility to aggregate and share data, and use of common standards and tools. We strive to ensure that our project is patient-centered; nurtures collaboration among all stakeholders; develops scalable solutions facilitating growth and connections; chooses simple, elegant solutions wherever possible; and explores ways to streamline the administrative and regulatory approval process across sites. BMJ Publishing Group 2014-07 2014-05-12 /pmc/articles/PMC4078297/ /pubmed/24821739 http://dx.doi.org/10.1136/amiajnl-2014-002764 Text en Published by the BMJ Publishing Group Limited. For permission to use (where not already granted under a licence) please go to http://group.bmj.com/group/rights-licensing/permissions This is an Open Access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 3.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited and the use is non-commercial. See: http://creativecommons.org/licenses/by-nc/3.0/
repository_type	Open Access Journal
institution_category	Foreign Institution
institution	US National Center for Biotechnology Information
building	NCBI PubMed
collection	Online Access
language	English
format	Online
author	Kaushal, Rainu Hripcsak, George Ascheim, Deborah D Bloom, Toby Campion, Thomas R Caplan, Arthur L Currie, Brian P Check, Thomas Deland, Emme Levin Gourevitch, Marc N Hart, Raffaella Horowitz, Carol R Kastenbaum, Isaac Levin, Arthur Aaron Low, Alexander F H Meissner, Paul Mirhaji, Parsa Pincus, Harold A Scaglione, Charles Shelley, Donna Tobin, Jonathan N
spellingShingle	Kaushal, Rainu Hripcsak, George Ascheim, Deborah D Bloom, Toby Campion, Thomas R Caplan, Arthur L Currie, Brian P Check, Thomas Deland, Emme Levin Gourevitch, Marc N Hart, Raffaella Horowitz, Carol R Kastenbaum, Isaac Levin, Arthur Aaron Low, Alexander F H Meissner, Paul Mirhaji, Parsa Pincus, Harold A Scaglione, Charles Shelley, Donna Tobin, Jonathan N Changing the research landscape: the New York City Clinical Data Research Network
author_facet	Kaushal, Rainu Hripcsak, George Ascheim, Deborah D Bloom, Toby Campion, Thomas R Caplan, Arthur L Currie, Brian P Check, Thomas Deland, Emme Levin Gourevitch, Marc N Hart, Raffaella Horowitz, Carol R Kastenbaum, Isaac Levin, Arthur Aaron Low, Alexander F H Meissner, Paul Mirhaji, Parsa Pincus, Harold A Scaglione, Charles Shelley, Donna Tobin, Jonathan N
author_sort	Kaushal, Rainu
title	Changing the research landscape: the New York City Clinical Data Research Network
title_short	Changing the research landscape: the New York City Clinical Data Research Network
title_full	Changing the research landscape: the New York City Clinical Data Research Network
title_fullStr	Changing the research landscape: the New York City Clinical Data Research Network
title_full_unstemmed	Changing the research landscape: the New York City Clinical Data Research Network
title_sort	changing the research landscape: the new york city clinical data research network
description	The New York City Clinical Data Research Network (NYC-CDRN), funded by the Patient-Centered Outcomes Research Institute (PCORI), brings together 22 organizations including seven independent health systems to enable patient-centered clinical research, support a national network, and facilitate learning healthcare systems. The NYC-CDRN includes a robust, collaborative governance and organizational infrastructure, which takes advantage of its participants’ experience, expertise, and history of collaboration. The technical design will employ an information model to document and manage the collection and transformation of clinical data, local institutional staging areas to transform and validate data, a centralized data processing facility to aggregate and share data, and use of common standards and tools. We strive to ensure that our project is patient-centered; nurtures collaboration among all stakeholders; develops scalable solutions facilitating growth and connections; chooses simple, elegant solutions wherever possible; and explores ways to streamline the administrative and regulatory approval process across sites.
publisher	BMJ Publishing Group
publishDate	2014
url	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4078297/
_version_	1612108714911727616

Changing the research landscape: the New York City Clinical Data Research Network

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