DuchenneConnect Registry Report
Research activity in Duchenne/Becker muscular dystrophy has surged in recent years, requiring robust information networks to support ongoing development. Established by Parent Project Muscular Dystrophy in late 2007, DuchenneConnect was created to bridge the information gap between care providers, r...
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| Format: | Online |
| Language: | English |
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Public Library of Science
2012
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| Online Access: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3299489/ |
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pubmed-3299489 |
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oai_dc |
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pubmed-32994892012-03-14 DuchenneConnect Registry Report Rangel, Vanessa Martin, Ann S. Peay, Holly L. Muscular Dystrophy Research activity in Duchenne/Becker muscular dystrophy has surged in recent years, requiring robust information networks to support ongoing development. Established by Parent Project Muscular Dystrophy in late 2007, DuchenneConnect was created to bridge the information gap between care providers, researchers and the patient community, thereby addressing medical care needs and accelerating the pace of therapeutic advancements. This report represents the first in a new series that will be regularly shared by DuchenneConnect and PPMD. Data in this report was collected through June 2011. Public Library of Science 2012-03-13 /pmc/articles/PMC3299489/ /pubmed/22453902 http://dx.doi.org/10.1371/currents.RRN1309 Text en http://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are properly credited. |
| repository_type |
Open Access Journal |
| institution_category |
Foreign Institution |
| institution |
US National Center for Biotechnology Information |
| building |
NCBI PubMed |
| collection |
Online Access |
| language |
English |
| format |
Online |
| author |
Rangel, Vanessa Martin, Ann S. Peay, Holly L. |
| spellingShingle |
Rangel, Vanessa Martin, Ann S. Peay, Holly L. DuchenneConnect Registry Report |
| author_facet |
Rangel, Vanessa Martin, Ann S. Peay, Holly L. |
| author_sort |
Rangel, Vanessa |
| title |
DuchenneConnect Registry Report |
| title_short |
DuchenneConnect Registry Report |
| title_full |
DuchenneConnect Registry Report |
| title_fullStr |
DuchenneConnect Registry Report |
| title_full_unstemmed |
DuchenneConnect Registry Report |
| title_sort |
duchenneconnect registry report |
| description |
Research activity in Duchenne/Becker muscular dystrophy has surged in recent years, requiring robust information networks to support ongoing development. Established by Parent Project Muscular Dystrophy in late 2007, DuchenneConnect was created to bridge the information gap between care providers, researchers and the patient community, thereby addressing medical care needs and accelerating the pace of therapeutic advancements. This report represents the first in a new series that will be regularly shared by DuchenneConnect and PPMD. Data in this report was collected through June 2011. |
| publisher |
Public Library of Science |
| publishDate |
2012 |
| url |
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3299489/ |
| _version_ |
1611512221951590400 |