Assessment of Cognitive Symptoms in Prodromal and Early Huntington Disease

The Functional Rating Scale Taskforce for pre-Huntington Disease (FuRST-pHD) is a multinational, multidisciplinary initiative with the goal of developing a data-driven, comprehensive, psychometrically sound, rating scale for assessing symptoms and functional ability in prodromal and early Huntington...

Full description

Bibliographic Details
Main Authors:	Vaccarino, Anthony L, Sills, Terrence, Anderson, Karen E., Borowsky, Beth, Craufurd, David, Giuliano, Joseph, Goodman, LaVonne, Guttman, Mark, Kupchak, Peter, Ho, Aileen K, Paulsen, Jane S., C. Stout, Julie, van Kammen, Daniel P, Evans, Ken
Format:	Online
Language:	English
Published:	Public Library of Science 2011
Online Access:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3201666/

id	pubmed-3201666
recordtype	oai_dc
spelling	pubmed-32016662011-11-23 Assessment of Cognitive Symptoms in Prodromal and Early Huntington Disease Vaccarino, Anthony L Sills, Terrence Anderson, Karen E. Borowsky, Beth Craufurd, David Giuliano, Joseph Goodman, LaVonne Guttman, Mark Kupchak, Peter Ho, Aileen K Paulsen, Jane S. C. Stout, Julie van Kammen, Daniel P Evans, Ken Huntington Disease The Functional Rating Scale Taskforce for pre-Huntington Disease (FuRST-pHD) is a multinational, multidisciplinary initiative with the goal of developing a data-driven, comprehensive, psychometrically sound, rating scale for assessing symptoms and functional ability in prodromal and early Huntington disease (HD) gene expansion carriers. The process involves input from numerous sources to identify relevant symptom domains, including HD individuals, caregivers, and experts from a variety of fields, as well as knowledge gained from the analysis of data from ongoing large-scale studies in HD using existing clinical scales. This is an iterative process in which an ongoing series of field tests in prodromal (prHD) and early HD individuals provides the team with data on which to make decisions regarding which questions should undergo further development or testing and which should be excluded. We report here the development and assessment of the first iteration of interview questions aimed to assess cognitive symptoms in prHD and early HD individuals. Public Library of Science 2011-10-25 /pmc/articles/PMC3201666/ /pubmed/22120841 http://dx.doi.org/10.1371/currents.RRN1250 Text en http://creativecommons.org/licenses/by/4.0/ This is an open-access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are properly credited.
repository_type	Open Access Journal
institution_category	Foreign Institution
institution	US National Center for Biotechnology Information
building	NCBI PubMed
collection	Online Access
language	English
format	Online
author	Vaccarino, Anthony L Sills, Terrence Anderson, Karen E. Borowsky, Beth Craufurd, David Giuliano, Joseph Goodman, LaVonne Guttman, Mark Kupchak, Peter Ho, Aileen K Paulsen, Jane S. C. Stout, Julie van Kammen, Daniel P Evans, Ken
spellingShingle	Vaccarino, Anthony L Sills, Terrence Anderson, Karen E. Borowsky, Beth Craufurd, David Giuliano, Joseph Goodman, LaVonne Guttman, Mark Kupchak, Peter Ho, Aileen K Paulsen, Jane S. C. Stout, Julie van Kammen, Daniel P Evans, Ken Assessment of Cognitive Symptoms in Prodromal and Early Huntington Disease
author_facet	Vaccarino, Anthony L Sills, Terrence Anderson, Karen E. Borowsky, Beth Craufurd, David Giuliano, Joseph Goodman, LaVonne Guttman, Mark Kupchak, Peter Ho, Aileen K Paulsen, Jane S. C. Stout, Julie van Kammen, Daniel P Evans, Ken
author_sort	Vaccarino, Anthony L
title	Assessment of Cognitive Symptoms in Prodromal and Early Huntington Disease
title_short	Assessment of Cognitive Symptoms in Prodromal and Early Huntington Disease
title_full	Assessment of Cognitive Symptoms in Prodromal and Early Huntington Disease
title_fullStr	Assessment of Cognitive Symptoms in Prodromal and Early Huntington Disease
title_full_unstemmed	Assessment of Cognitive Symptoms in Prodromal and Early Huntington Disease
title_sort	assessment of cognitive symptoms in prodromal and early huntington disease
description	The Functional Rating Scale Taskforce for pre-Huntington Disease (FuRST-pHD) is a multinational, multidisciplinary initiative with the goal of developing a data-driven, comprehensive, psychometrically sound, rating scale for assessing symptoms and functional ability in prodromal and early Huntington disease (HD) gene expansion carriers. The process involves input from numerous sources to identify relevant symptom domains, including HD individuals, caregivers, and experts from a variety of fields, as well as knowledge gained from the analysis of data from ongoing large-scale studies in HD using existing clinical scales. This is an iterative process in which an ongoing series of field tests in prodromal (prHD) and early HD individuals provides the team with data on which to make decisions regarding which questions should undergo further development or testing and which should be excluded. We report here the development and assessment of the first iteration of interview questions aimed to assess cognitive symptoms in prHD and early HD individuals.
publisher	Public Library of Science
publishDate	2011
url	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3201666/
_version_	1611483743560663040

Assessment of Cognitive Symptoms in Prodromal and Early Huntington Disease

Similar Items