Understanding the care.data conundrum: new information flows for economic growth

The analysis of data from electronic health records aspires to facilitate healthcare efficiencies and biomedical innovation. There are also ethical, legal and social implications from the handling of sensitive patient information. The paper explores the concerns, expectations and implications of the...

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Main Authors:	Vezyridis, Paraskevas, Timmons, Stephen
Format:	Article
Language:	English English
Published:	Sage 2017
Online Access:	http://eprints.nottingham.ac.uk/40458/ http://eprints.nottingham.ac.uk/40458/ http://eprints.nottingham.ac.uk/40458/ http://eprints.nottingham.ac.uk/40458/1/understanding%20caredata.pdf http://eprints.nottingham.ac.uk/40458/7/Timmons.pdf

id	nottingham-40458
recordtype	eprints
spelling	nottingham-404582018-07-02T09:10:54Z http://eprints.nottingham.ac.uk/40458/ Understanding the care.data conundrum: new information flows for economic growth Vezyridis, Paraskevas Timmons, Stephen The analysis of data from electronic health records aspires to facilitate healthcare efficiencies and biomedical innovation. There are also ethical, legal and social implications from the handling of sensitive patient information. The paper explores the concerns, expectations and implications of the National Health Service (NHS) England care.data programme: a national data sharing initiative of linked electronic health records for healthcare and other research purposes. Using Nissenbaum’s contextual integrity of privacy framework through a critical science and technology studies (STS) lens, it examines the way technologies and policies are developed to promote sustainability, governance and economic growth as the de facto social values, while reducing privacy to an individualistic preference. The state, acting as a new, central data broker reappropriates public ownership rights and establishes those information flows and transmission principles that facilitate the assetisation of NHS datasets for the knowledge economy. Various actors and processes from other contexts attempt to erode the public healthcare sector and privilege new information recipients. However, such data sharing initiatives in healthcare will be resisted if we continue to focus only on the monetary and scientific values of these datasets and keep ignoring their equally important social and ethical values. Sage 2017-01-01 Article PeerReviewed application/pdf en cc_by http://eprints.nottingham.ac.uk/40458/1/understanding%20caredata.pdf application/pdf en cc_by http://eprints.nottingham.ac.uk/40458/7/Timmons.pdf Vezyridis, Paraskevas and Timmons, Stephen (2017) Understanding the care.data conundrum: new information flows for economic growth. Big Data and Society . pp. 1-12. ISSN 2053-9517 http://journals.sagepub.com/doi/10.1177/2053951716688490 doi:10.1177/2053951716688490 doi:10.1177/2053951716688490
repository_type	Digital Repository
institution_category	Local University
institution	University of Nottingham Malaysia Campus
building	Nottingham Research Data Repository
collection	Online Access
language	English English
description	The analysis of data from electronic health records aspires to facilitate healthcare efficiencies and biomedical innovation. There are also ethical, legal and social implications from the handling of sensitive patient information. The paper explores the concerns, expectations and implications of the National Health Service (NHS) England care.data programme: a national data sharing initiative of linked electronic health records for healthcare and other research purposes. Using Nissenbaum’s contextual integrity of privacy framework through a critical science and technology studies (STS) lens, it examines the way technologies and policies are developed to promote sustainability, governance and economic growth as the de facto social values, while reducing privacy to an individualistic preference. The state, acting as a new, central data broker reappropriates public ownership rights and establishes those information flows and transmission principles that facilitate the assetisation of NHS datasets for the knowledge economy. Various actors and processes from other contexts attempt to erode the public healthcare sector and privilege new information recipients. However, such data sharing initiatives in healthcare will be resisted if we continue to focus only on the monetary and scientific values of these datasets and keep ignoring their equally important social and ethical values.
format	Article
author	Vezyridis, Paraskevas Timmons, Stephen
spellingShingle	Vezyridis, Paraskevas Timmons, Stephen Understanding the care.data conundrum: new information flows for economic growth
author_facet	Vezyridis, Paraskevas Timmons, Stephen
author_sort	Vezyridis, Paraskevas
title	Understanding the care.data conundrum: new information flows for economic growth
title_short	Understanding the care.data conundrum: new information flows for economic growth
title_full	Understanding the care.data conundrum: new information flows for economic growth
title_fullStr	Understanding the care.data conundrum: new information flows for economic growth
title_full_unstemmed	Understanding the care.data conundrum: new information flows for economic growth
title_sort	understanding the care.data conundrum: new information flows for economic growth
publisher	Sage
publishDate	2017
url	http://eprints.nottingham.ac.uk/40458/ http://eprints.nottingham.ac.uk/40458/ http://eprints.nottingham.ac.uk/40458/ http://eprints.nottingham.ac.uk/40458/1/understanding%20caredata.pdf http://eprints.nottingham.ac.uk/40458/7/Timmons.pdf
first_indexed	2018-09-06T13:06:27Z
last_indexed	2018-09-06T13:06:27Z
_version_	1610863542889611264

Understanding the care.data conundrum: new information flows for economic growth

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