High quality, patient centred and coordinated care for Alstrom syndrome: a model of care for an ultra-rare disease

by Van Groenendael, Stephanie, Giacovazzi, Luca, Davison, Fabian, Holtkemper, Oliver, Huang, Zexin, Wang, Qiaoying, Parkinson, Kay, Barrett, Timothy, Geberhiwot, Tarekegn
Published 2015