Challenges of web-based personal genomic data sharing

by Shabani, Mahsa, Borry, Pascal
Published 2015

Survey of European clinical geneticists on awareness, experiences and attitudes towards direct-to-consumer genetic testing

by Howard, Heidi Carmen, Borry, Pascal
Published 2013

How international is bioethics? A quantitative retrospective study

by Borry, Pascal, Schotsmans, Paul, Dierickx, Kris
Published 2006

From the principles of genomic data sharing to the practices of data access committees

by Shabani, Mahsa, Knoppers, Bartha Maria, Borry, Pascal
Published 2015

Where are you going, where have you been: a recent history of the direct-to-consumer genetic testing market

by Borry, Pascal, Cornel, Martina C., Howard, Heidi C.
Published 2010

Controlled Access under Review: Improving the Governance of Genomic Data Access

by Shabani, Mahsa, Dyke, Stephanie O. M., Joly, Yann, Borry, Pascal
Published 2015

“You hoped we would sleep walk into accepting the collection of our data”: controversies surrounding the UK care.data scheme and their wider relevance for biomedical research

by Sterckx, Sigrid, Rakic, Vojin, Cockbain, Julian, Borry, Pascal
Published 2015

Preconceptional genetic carrier testing and the commercial offer directly-to-consumers

by Borry, Pascal, Henneman, Lidewij, Lakeman, Phillis, ten Kate, Leo P., Cornel, Martina C., Howard, Heidi C.
Published 2011

Legal approaches regarding health-care decisions involving minors: implications for next-generation sequencing

by Sénécal, Karine, Thys, Kristof, Vears, Danya F, Van Assche, Kristof, Knoppers, Bartha M, Borry, Pascal
Published 2016

Marginally scientific? Genetic testing of children and adolescents for lifestyle and health promotion

by Caulfield, Timothy, Borry, Pascal, Toews, Maeghan, Elger, Bernice S., Greely, Henry T., McGuire, Amy
Published 2015

Whole-genome sequencing in newborn screening? A statement on the continued importance of targeted approaches in newborn screening programmes

by Howard, Heidi Carmen, Knoppers, Bartha Maria, Cornel, Martina C, Wright Clayton, Ellen, Sénécal, Karine, Borry, Pascal
Published 2015

Newspaper coverage of biobanks

by Ogbogu, Ubaka, Toews, Maeghan, Ollenberger, Adam, Borry, Pascal, Nobile, Helene, Bergmann, Manuela, Caulfield, Timothy
Published 2014

Reflecting on Earlier Experiences with Unsolicited Findings: Points to Consider for Next-Generation Sequencing and Informed Consent in Diagnostics

by Rigter, Tessel, Henneman, Lidewij, Kristoffersson, Ulf, Hall, Alison, Yntema, Helger G, Borry, Pascal, Tönnies, Holger, Waisfisz, Quinten, Elting, Mariet W, Dondorp, Wybo J, Cornel, Martina C
Published 2013

Developing a policy for paediatric biobanks: principles for good practice

by Hens, Kristien, Van El, Carla E, Borry, Pascal, Cambon-Thomsen, Anne, Cornel, Martina C, Forzano, Francesca, Lucassen, Anneke, Patch, Christine, Tranebjaerg, Lisbeth, Vermeulen, Eric, Salvaterra, Elena, Tibben, Aad, Dierickx, Kris
Published 2013

Current issues in medically assisted reproduction and genetics in Europe: research, clinical practice, ethics, legal issues and policy: European Society of Human Genetics and Europ...

by Harper, Joyce C, Geraedts, Joep, Borry, Pascal, Cornel, Martina C, Dondorp, Wybo, Gianaroli, Luca, Harton, Gary, Milachich, Tanya, Kääriäinen, Helena, Liebaers, Inge, Morris, Michael, Sequeiros, Jorge, Sermon, Karen, Shenfield, Françoise, Skirton, Heather, Soini, Sirpa, Spits, Claudia, Veiga, Anna, Vermeesch, Joris Robert, Viville, Stéphane, de Wert, Guido, Macek, Milan
Published 2013

Reflections on the Cost of "Low-Cost" Whole Genome Sequencing: Framing the Health Policy Debate

by Caulfield, Timothy, Evans, Jim, McGuire, Amy, McCabe, Christopher, Bubela, Tania, Cook-Deegan, Robert, Fishman, Jennifer, Hogarth, Stuart, Miller, Fiona A., Ravitsky, Vardit, Biesecker, Barbara, Borry, Pascal, Cho, Mildred K., Carroll, June C., Etchegary, Holly, Joly, Yann, Kato, Kazuto, Lee, Sandra Soo-Jin, Rothenberg, Karen, Sankar, Pamela, Szego, Michael J., Ossorio, Pilar, Pullman, Daryl, Rousseau, Francois, Ungar, Wendy J., Wilson, Brenda
Published 2013

Responsible implementation of expanded carrier screening

by Henneman, Lidewij, Borry, Pascal, Chokoshvili, Davit, Cornel, Martina C, van El, Carla G, Forzano, Francesca, Hall, Alison, Howard, Heidi C, Janssens, Sandra, Kayserili, Hülya, Lakeman, Phillis, Lucassen, Anneke, Metcalfe, Sylvia A, Vidmar, Lovro, de Wert, Guido, Dondorp, Wybo J, Peterlin, Borut
Published 2016

Non-invasive prenatal testing for aneuploidy and beyond: challenges of responsible innovation in prenatal screening

by Dondorp, Wybo, de Wert, Guido, Bombard, Yvonne, Bianchi, Diana W, Bergmann, Carsten, Borry, Pascal, Chitty, Lyn S, Fellmann, Florence, Forzano, Francesca, Hall, Alison, Henneman, Lidewij, Howard, Heidi C, Lucassen, Anneke, Ormond, Kelly, Peterlin, Borut, Radojkovic, Dragica, Rogowski, Wolf, Soller, Maria, Tibben, Aad, Tranebjærg, Lisbeth, van El, Carla G, Cornel, Martina C
Published 2015

Crowdsourced direct-to-consumer genomic analysis of a family quartet

by Corpas, Manuel, Valdivia-Granda, Willy, Torres, Nazareth, Greshake, Bastian, Coletta, Alain, Knaus, Alexej, Harrison, Andrew P., Cariaso, Mike, Moran, Federico, Nielsen, Fiona, Swan, Daniel, Weiss Solís, David Y., Krawitz, Peter, Schacherer, Frank, Schols, Peter, Yang, Huangming, Borry, Pascal, Glusman, Gustavo, Robinson, Peter N.
Published 2015

Points to consider for prioritizing clinical genetic testing services: a European consensus process oriented at accountability for reasonableness

by Severin, Franziska, Borry, Pascal, Cornel, Martina C, Daniels, Norman, Fellmann, Florence, Victoria Hodgson, Shirley, Howard, Heidi C, John, Jürgen, Kääriäinen, Helena, Kayserili, Hülya, Kent, Alastair, Koerber, Florian, Kristoffersson, Ulf, Kroese, Mark, Lewis, Celine, Marckmann, Georg, Meyer, Peter, Pfeufer, Arne, Schmidtke, Jörg, Skirton, Heather, Tranebjærg, Lisbeth, Rogowski, Wolf H
Published 2015