Search Results - "disease registry"

Dispelling myths about rare disease registry system development by Bellgard, M., Beroud, C., Parkinson, K., Harris, T., Ayme, S., Baynam, G., Weeramanthri, T., Dawkins, Hugh, Hunter, A.

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Role of international registries in enhancing the care of familial hypercholesterolaemia by Hammond, E., Watts, G., Rubinstein, Y., Farid, W., Livingston, M., Knowles, J., Lochmuller, H., Bellgard, M., Dawkins, Hugh

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A modular approach to disease registry design: Successful adoption of an internet-based rare disease registry by Bellgard, M., Macgregor, A., Janon, F., Harvey, A., O'Leary, Peter, Hunter, A., Dawkins, Hugh

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