Development of Evidence-Based Disease Education Literature for Pakistani Rheumatoid Arthritis Patients
Rheumatoid arthritis affects 0.5% to 1% of the population globally and is one of the most common causes of disability. Patient education plays a key role in improving treatment outcomes. The purpose of this study was to discuss the process involved in designing an evidence-based disease education...
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| Format: | Article |
| Language: | English |
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MDPI
2017
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| Online Access: | http://eprints.usm.my/38677/ http://eprints.usm.my/38677/1/Development_of_Evidence-Based_Disease_Education_Literature.pdf |
| _version_ | 1848878536309342208 |
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| author | Naqvi, Atta Abbas Hassali, Mohamed Azmi Aftab, Muhammad Tariq Shyum Naqvi, Syed Baqir Zehra, Fatima Ahmad, Rizwan Ahmad, Niyaz |
| author_facet | Naqvi, Atta Abbas Hassali, Mohamed Azmi Aftab, Muhammad Tariq Shyum Naqvi, Syed Baqir Zehra, Fatima Ahmad, Rizwan Ahmad, Niyaz |
| author_sort | Naqvi, Atta Abbas |
| building | USM Institutional Repository |
| collection | Online Access |
| description | Rheumatoid arthritis affects 0.5% to 1% of the population globally and is one of the most
common causes of disability. Patient education plays a key role in improving treatment outcomes.
The purpose of this study was to discuss the process involved in designing an evidence-based
disease education literature for rheumatoid arthritis patients of Pakistan in Urdu language with
culturally relevant illustrations. A study was conducted to develop disease education literature
using Delphi consensus, content validity, and patient feedback. A panel of experts comprised of
university professors and health care experts, including health practitioners and pharmacists as well
as a social scientist, was set up to assess the need. Eight patients were randomly selected and were
asked to give their feedback. Their feedback was incorporated in the development process. The entire
process was carried out in eight steps. A disease education literature for patients of rheumatoid
arthritis was developed and edited in the form of a booklet. The booklet contained evidence-based
information that must be provided to patients in both Urdu and English languages with culturally
relevant illustrations. The availability of such literature is significant, as it enables the patients to seek
knowledge at home at their convenience. This home-based knowledge support is as helpful as any
other means of medical care. The developed literature is planned to be used in further studies which
will evaluate its impact in improving knowledge of RA patients. |
| first_indexed | 2025-11-15T17:32:54Z |
| format | Article |
| id | usm-38677 |
| institution | Universiti Sains Malaysia |
| institution_category | Local University |
| language | English |
| last_indexed | 2025-11-15T17:32:54Z |
| publishDate | 2017 |
| publisher | MDPI |
| recordtype | eprints |
| repository_type | Digital Repository |
| spelling | usm-386772018-02-05T00:48:17Z http://eprints.usm.my/38677/ Development of Evidence-Based Disease Education Literature for Pakistani Rheumatoid Arthritis Patients Naqvi, Atta Abbas Hassali, Mohamed Azmi Aftab, Muhammad Tariq Shyum Naqvi, Syed Baqir Zehra, Fatima Ahmad, Rizwan Ahmad, Niyaz RS1-441 Pharmacy and materia medica Rheumatoid arthritis affects 0.5% to 1% of the population globally and is one of the most common causes of disability. Patient education plays a key role in improving treatment outcomes. The purpose of this study was to discuss the process involved in designing an evidence-based disease education literature for rheumatoid arthritis patients of Pakistan in Urdu language with culturally relevant illustrations. A study was conducted to develop disease education literature using Delphi consensus, content validity, and patient feedback. A panel of experts comprised of university professors and health care experts, including health practitioners and pharmacists as well as a social scientist, was set up to assess the need. Eight patients were randomly selected and were asked to give their feedback. Their feedback was incorporated in the development process. The entire process was carried out in eight steps. A disease education literature for patients of rheumatoid arthritis was developed and edited in the form of a booklet. The booklet contained evidence-based information that must be provided to patients in both Urdu and English languages with culturally relevant illustrations. The availability of such literature is significant, as it enables the patients to seek knowledge at home at their convenience. This home-based knowledge support is as helpful as any other means of medical care. The developed literature is planned to be used in further studies which will evaluate its impact in improving knowledge of RA patients. MDPI 2017 Article PeerReviewed application/pdf en http://eprints.usm.my/38677/1/Development_of_Evidence-Based_Disease_Education_Literature.pdf Naqvi, Atta Abbas and Hassali, Mohamed Azmi and Aftab, Muhammad Tariq and Shyum Naqvi, Syed Baqir and Zehra, Fatima and Ahmad, Rizwan and Ahmad, Niyaz (2017) Development of Evidence-Based Disease Education Literature for Pakistani Rheumatoid Arthritis Patients. Diseases, 5 (4). pp. 1-8. ISSN 2079-9721 http://www.mdpi.com/2079-9721/5/4/27 |
| spellingShingle | RS1-441 Pharmacy and materia medica Naqvi, Atta Abbas Hassali, Mohamed Azmi Aftab, Muhammad Tariq Shyum Naqvi, Syed Baqir Zehra, Fatima Ahmad, Rizwan Ahmad, Niyaz Development of Evidence-Based Disease Education Literature for Pakistani Rheumatoid Arthritis Patients |
| title | Development of Evidence-Based Disease Education
Literature for Pakistani Rheumatoid Arthritis Patients |
| title_full | Development of Evidence-Based Disease Education
Literature for Pakistani Rheumatoid Arthritis Patients |
| title_fullStr | Development of Evidence-Based Disease Education
Literature for Pakistani Rheumatoid Arthritis Patients |
| title_full_unstemmed | Development of Evidence-Based Disease Education
Literature for Pakistani Rheumatoid Arthritis Patients |
| title_short | Development of Evidence-Based Disease Education
Literature for Pakistani Rheumatoid Arthritis Patients |
| title_sort | development of evidence-based disease education
literature for pakistani rheumatoid arthritis patients |
| topic | RS1-441 Pharmacy and materia medica |
| url | http://eprints.usm.my/38677/ http://eprints.usm.my/38677/ http://eprints.usm.my/38677/1/Development_of_Evidence-Based_Disease_Education_Literature.pdf |