Differences in attitude towards end-of-life care among haemodialysis patients and their family members in two Malaysian hospitals

INTRODUCTION: End-of-life (EOL) care has become an important topic of discussion in those with chronic illness, especially in End Stage Renal Disease (ESRD) patients on dialysis. This study explored attitudes towards the EOL care among haemodial...

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Main Authors: Azahar, Aizad, Ibrahim, Noor Airini, Kharuddin, Ahmad Thariq
Format: Article
Published: International Islamic University Malaysia 2021
Online Access:http://psasir.upm.edu.my/id/eprint/96727/
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author Azahar, Aizad
Ibrahim, Noor Airini
Kharuddin, Ahmad Thariq
author_facet Azahar, Aizad
Ibrahim, Noor Airini
Kharuddin, Ahmad Thariq
author_sort Azahar, Aizad
building UPM Institutional Repository
collection Online Access
description INTRODUCTION: End-of-life (EOL) care has become an important topic of discussion in those with chronic illness, especially in End Stage Renal Disease (ESRD) patients on dialysis. This study explored attitudes towards the EOL care among haemodialysis patients and compared them with the patients’ family members. MATERIALS AND METHODS:The study was a cross-sectional descriptive study conducted in two tertiary hospitals in Malaysia. The data was collected by using a survey questionnaire from 164 participants which consisted of 82 pairs of patients and their relatives. RESULTS:‘Patient’ and ‘family’ groups demonstrated differences in their preferences regarding EOL care options. Family members group favoured cardiopulmonary resuscitation (81.7% vs 41.4%) (p <0.001), endotracheal intubation (80.5% vs 43.9%) (p = 0.989) and nasogastric tube feeding (87.8% vs 67%) (p = 0.001) more than patients themselves. The physician was the most nominated surrogate decision-maker by the patient (91.5%). Majority of the patients (57.3%) felt uncomfortable discussing EOL care options. There was significant correlation between duration of dialysis and patients’ EOL preferences where patients less than 5 years on haemodialysis favoured CPR (55.9% vs 31.3%; p = 0.026), intubation (55.9% vs 35.4%) and nasogastric tube feeding (82.3% vs 56.3%; p = 0.013) compared to patients who had been on haemodialysis for 5 years or longer. CONCLUSION:This study demonstrated significant differences between the attitudes of the patients and their relatives regarding EOL care preferences.
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spelling upm-967272023-02-01T02:30:10Z http://psasir.upm.edu.my/id/eprint/96727/ Differences in attitude towards end-of-life care among haemodialysis patients and their family members in two Malaysian hospitals Azahar, Aizad Ibrahim, Noor Airini Kharuddin, Ahmad Thariq INTRODUCTION: End-of-life (EOL) care has become an important topic of discussion in those with chronic illness, especially in End Stage Renal Disease (ESRD) patients on dialysis. This study explored attitudes towards the EOL care among haemodialysis patients and compared them with the patients’ family members. MATERIALS AND METHODS:The study was a cross-sectional descriptive study conducted in two tertiary hospitals in Malaysia. The data was collected by using a survey questionnaire from 164 participants which consisted of 82 pairs of patients and their relatives. RESULTS:‘Patient’ and ‘family’ groups demonstrated differences in their preferences regarding EOL care options. Family members group favoured cardiopulmonary resuscitation (81.7% vs 41.4%) (p <0.001), endotracheal intubation (80.5% vs 43.9%) (p = 0.989) and nasogastric tube feeding (87.8% vs 67%) (p = 0.001) more than patients themselves. The physician was the most nominated surrogate decision-maker by the patient (91.5%). Majority of the patients (57.3%) felt uncomfortable discussing EOL care options. There was significant correlation between duration of dialysis and patients’ EOL preferences where patients less than 5 years on haemodialysis favoured CPR (55.9% vs 31.3%; p = 0.026), intubation (55.9% vs 35.4%) and nasogastric tube feeding (82.3% vs 56.3%; p = 0.013) compared to patients who had been on haemodialysis for 5 years or longer. CONCLUSION:This study demonstrated significant differences between the attitudes of the patients and their relatives regarding EOL care preferences. International Islamic University Malaysia 2021 Article PeerReviewed Azahar, Aizad and Ibrahim, Noor Airini and Kharuddin, Ahmad Thariq (2021) Differences in attitude towards end-of-life care among haemodialysis patients and their family members in two Malaysian hospitals. International Medical Journal Malaysia, 21 (2). pp. 54-59. ISSN 1823-4631 https://journals.iium.edu.my/kom/index.php/imjm/article/view/1841/1290 10.31436/imjm.v21i2
spellingShingle Azahar, Aizad
Ibrahim, Noor Airini
Kharuddin, Ahmad Thariq
Differences in attitude towards end-of-life care among haemodialysis patients and their family members in two Malaysian hospitals
title Differences in attitude towards end-of-life care among haemodialysis patients and their family members in two Malaysian hospitals
title_full Differences in attitude towards end-of-life care among haemodialysis patients and their family members in two Malaysian hospitals
title_fullStr Differences in attitude towards end-of-life care among haemodialysis patients and their family members in two Malaysian hospitals
title_full_unstemmed Differences in attitude towards end-of-life care among haemodialysis patients and their family members in two Malaysian hospitals
title_short Differences in attitude towards end-of-life care among haemodialysis patients and their family members in two Malaysian hospitals
title_sort differences in attitude towards end-of-life care among haemodialysis patients and their family members in two malaysian hospitals
url http://psasir.upm.edu.my/id/eprint/96727/
http://psasir.upm.edu.my/id/eprint/96727/
http://psasir.upm.edu.my/id/eprint/96727/