Aging parents’ caregiving and rehabilitating a brain-injured son: an autoethnography of a 10-year journey

This autoethnography withdraws from information accumulated through a 10-year period of daily-weekly-monthly descriptive observation-recording (triangulated- parents & house-helper) of caregiving and rehabilitating of our brain injured son (survivor/care-receiver). We present it as an interactiv...

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Main Authors: Syed Hassan, Syed Tajuddin, Jamaludin, Husna
Format: Article
Language:English
Published: Electronic Physician 2014
Online Access:http://psasir.upm.edu.my/id/eprint/36349/
http://psasir.upm.edu.my/id/eprint/36349/1/Aging%20parents%E2%80%99%20caregiving%20and%20rehabilitating%20a%20brain-injured%20son%20an%20autoethnography%20of%20a%2010-year%20journey.pdf
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author Syed Hassan, Syed Tajuddin
Jamaludin, Husna
author_facet Syed Hassan, Syed Tajuddin
Jamaludin, Husna
author_sort Syed Hassan, Syed Tajuddin
building UPM Institutional Repository
collection Online Access
description This autoethnography withdraws from information accumulated through a 10-year period of daily-weekly-monthly descriptive observation-recording (triangulated- parents & house-helper) of caregiving and rehabilitating of our brain injured son (survivor/care-receiver). We present it as an interactive voice of verbal conversation, thoughts, insights, and interpretations. It is delivered as a series of articulation intra-pulsated with our interrogation of societal-cultural-religious perspectives, norms and biases, and aligns with the CAP (Creative Analytical Practices) method of Ellis. This autoethnography glows from the richness of information which encapsulates the challenges confronting us the aging parent caregivers, the gradual incremental mind mending achievement of our son, and the interactive verbalizations and thoughts, of the caregivers, care-receiver, and other persons. The overwhelming mental and physical pain and struggle of the survivor and the aging caregivers and their sense of celebratory-satisfaction with rehabilitation progress are highlighted. Interpretation and valuation of positive and negative responses of other persons provide a critical matrix to this autoethnography. We intend to inform other caregivers and relevant healthcare professionals through this autoethnography.
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spelling upm-363492016-01-22T03:40:01Z http://psasir.upm.edu.my/id/eprint/36349/ Aging parents’ caregiving and rehabilitating a brain-injured son: an autoethnography of a 10-year journey Syed Hassan, Syed Tajuddin Jamaludin, Husna This autoethnography withdraws from information accumulated through a 10-year period of daily-weekly-monthly descriptive observation-recording (triangulated- parents & house-helper) of caregiving and rehabilitating of our brain injured son (survivor/care-receiver). We present it as an interactive voice of verbal conversation, thoughts, insights, and interpretations. It is delivered as a series of articulation intra-pulsated with our interrogation of societal-cultural-religious perspectives, norms and biases, and aligns with the CAP (Creative Analytical Practices) method of Ellis. This autoethnography glows from the richness of information which encapsulates the challenges confronting us the aging parent caregivers, the gradual incremental mind mending achievement of our son, and the interactive verbalizations and thoughts, of the caregivers, care-receiver, and other persons. The overwhelming mental and physical pain and struggle of the survivor and the aging caregivers and their sense of celebratory-satisfaction with rehabilitation progress are highlighted. Interpretation and valuation of positive and negative responses of other persons provide a critical matrix to this autoethnography. We intend to inform other caregivers and relevant healthcare professionals through this autoethnography. Electronic Physician 2014-10 Article PeerReviewed application/pdf en http://psasir.upm.edu.my/id/eprint/36349/1/Aging%20parents%E2%80%99%20caregiving%20and%20rehabilitating%20a%20brain-injured%20son%20an%20autoethnography%20of%20a%2010-year%20journey.pdf Syed Hassan, Syed Tajuddin and Jamaludin, Husna (2014) Aging parents’ caregiving and rehabilitating a brain-injured son: an autoethnography of a 10-year journey. Electronic Physician, 6 (4). pp. 927-931. ISSN 2008-5842 http://www.ephysician.ir/index.php/browse-issues/year-2014-volume-6/year-2014-volume-6-issue-4/144-aging-parents-caregiving-and-rehabilitating-a-brain-injured-son-an-autoethnography-of-a-10-year-journey 10.14661/2014.927-931
spellingShingle Syed Hassan, Syed Tajuddin
Jamaludin, Husna
Aging parents’ caregiving and rehabilitating a brain-injured son: an autoethnography of a 10-year journey
title Aging parents’ caregiving and rehabilitating a brain-injured son: an autoethnography of a 10-year journey
title_full Aging parents’ caregiving and rehabilitating a brain-injured son: an autoethnography of a 10-year journey
title_fullStr Aging parents’ caregiving and rehabilitating a brain-injured son: an autoethnography of a 10-year journey
title_full_unstemmed Aging parents’ caregiving and rehabilitating a brain-injured son: an autoethnography of a 10-year journey
title_short Aging parents’ caregiving and rehabilitating a brain-injured son: an autoethnography of a 10-year journey
title_sort aging parents’ caregiving and rehabilitating a brain-injured son: an autoethnography of a 10-year journey
url http://psasir.upm.edu.my/id/eprint/36349/
http://psasir.upm.edu.my/id/eprint/36349/
http://psasir.upm.edu.my/id/eprint/36349/
http://psasir.upm.edu.my/id/eprint/36349/1/Aging%20parents%E2%80%99%20caregiving%20and%20rehabilitating%20a%20brain-injured%20son%20an%20autoethnography%20of%20a%2010-year%20journey.pdf