A preliminary study on the social and emotional experience of parents of children with cleft lip and palate

There are very few studies that describe the emotional and social experiences of parents of children with cleft lip and?or palate who are undergoing treatment. To understand these circumstances, 34 parents of children with cleft lip and?or palate were surveyed to find out about the parents? social a...

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Main Authors: Teoh, Hsien-Jin *, Woo, Pei Jun *, Cheong, Sau Kuan *, Neo, Ee Lynn *
Format: Article
Language:English
Published: Sunway University College 2008
Subjects:
Online Access:http://eprints.sunway.edu.my/58/
http://eprints.sunway.edu.my/58/1/social_emotional.pdf
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author Teoh, Hsien-Jin *
Woo, Pei Jun *
Cheong, Sau Kuan *
Neo, Ee Lynn *
author_facet Teoh, Hsien-Jin *
Woo, Pei Jun *
Cheong, Sau Kuan *
Neo, Ee Lynn *
author_sort Teoh, Hsien-Jin *
building SU Institutional Repository
collection Online Access
description There are very few studies that describe the emotional and social experiences of parents of children with cleft lip and?or palate who are undergoing treatment. To understand these circumstances, 34 parents of children with cleft lip and?or palate were surveyed to find out about the parents? social and emotional experiences of having children with this physical disorder. The research was carried out using structured questionnaires that parents completed during a support group meeting. The questionnaires included questions on the reactions of people toward the child, parents? emotional reactions, social support, coping strategies and resources used. Results of the study indicated that parents do need some assistance during the early stages of treatment. Furthermore, pediatricians play a very important role in the follow-up of treatment, empowerment of parents, and dissemination of information on the child?s condition. Contrary to much speculation, the parents reported that they are generally not stigmatized, and took a proactive approach towards finding out information about the disorder, and also about caring for their children. The study concluded by indicating that future studies would need to have larger samples, span a wider age groups, focus on the children?s first 12 months, and also their experiences when they begin to attend school.
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spelling sunway-582019-05-31T04:46:47Z http://eprints.sunway.edu.my/58/ A preliminary study on the social and emotional experience of parents of children with cleft lip and palate Teoh, Hsien-Jin * Woo, Pei Jun * Cheong, Sau Kuan * Neo, Ee Lynn * BF Psychology RJ Pediatrics There are very few studies that describe the emotional and social experiences of parents of children with cleft lip and?or palate who are undergoing treatment. To understand these circumstances, 34 parents of children with cleft lip and?or palate were surveyed to find out about the parents? social and emotional experiences of having children with this physical disorder. The research was carried out using structured questionnaires that parents completed during a support group meeting. The questionnaires included questions on the reactions of people toward the child, parents? emotional reactions, social support, coping strategies and resources used. Results of the study indicated that parents do need some assistance during the early stages of treatment. Furthermore, pediatricians play a very important role in the follow-up of treatment, empowerment of parents, and dissemination of information on the child?s condition. Contrary to much speculation, the parents reported that they are generally not stigmatized, and took a proactive approach towards finding out information about the disorder, and also about caring for their children. The study concluded by indicating that future studies would need to have larger samples, span a wider age groups, focus on the children?s first 12 months, and also their experiences when they begin to attend school. Sunway University College 2008 Article PeerReviewed text en http://eprints.sunway.edu.my/58/1/social_emotional.pdf Teoh, Hsien-Jin * and Woo, Pei Jun * and Cheong, Sau Kuan * and Neo, Ee Lynn * (2008) A preliminary study on the social and emotional experience of parents of children with cleft lip and palate. Sunway Academic Journal, 5. pp. 82-96.
spellingShingle BF Psychology
RJ Pediatrics
Teoh, Hsien-Jin *
Woo, Pei Jun *
Cheong, Sau Kuan *
Neo, Ee Lynn *
A preliminary study on the social and emotional experience of parents of children with cleft lip and palate
title A preliminary study on the social and emotional experience of parents of children with cleft lip and palate
title_full A preliminary study on the social and emotional experience of parents of children with cleft lip and palate
title_fullStr A preliminary study on the social and emotional experience of parents of children with cleft lip and palate
title_full_unstemmed A preliminary study on the social and emotional experience of parents of children with cleft lip and palate
title_short A preliminary study on the social and emotional experience of parents of children with cleft lip and palate
title_sort preliminary study on the social and emotional experience of parents of children with cleft lip and palate
topic BF Psychology
RJ Pediatrics
url http://eprints.sunway.edu.my/58/
http://eprints.sunway.edu.my/58/1/social_emotional.pdf