A systematic review of health-related quality of life assessment instruments for cancer patients: a Malaysian perspective
The absence of a review of health-related quality of life (HRQoL) assessment tools has led to inconsistencies in the use of HRQoL instruments across different cancer populations, such as adults, pediatric patients, and caregivers, limiting the comparability of findings and hindering the accurate eva...
| Main Authors: | , , |
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| Format: | Article |
| Language: | English |
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Universiti Kebangsaan Malaysia
2025
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| Online Access: | http://journalarticle.ukm.my/25680/ http://journalarticle.ukm.my/25680/1/2201-2214%20-.pdf |
| _version_ | 1848816423863844864 |
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| author | Lim, Jing-Sheng Renukha Sellappans, Lee, Kenneth Kwing-Chin |
| author_facet | Lim, Jing-Sheng Renukha Sellappans, Lee, Kenneth Kwing-Chin |
| author_sort | Lim, Jing-Sheng |
| building | UKM Institutional Repository |
| collection | Online Access |
| description | The absence of a review of health-related quality of life (HRQoL) assessment tools has led to inconsistencies in the use of HRQoL instruments across different cancer populations, such as adults, pediatric patients, and caregivers, limiting the comparability of findings and hindering the accurate evaluation of cancer care outcomes. With that, this study aimed to investigate how Malaysian cancer patients’ and other sub-population’s HRQoL is measured and quantified through HRQoL assessment instrument. From 2013 to 2023, a literature search was conducted on Scopus, PubMed, Cochrane Library, and ClinicalTrials.gov. The included studies and previously published review papers were also cited backward. For each HRQoL assessment instrument, attributes such as author(s), year of publication, study site, study design, target population, cancer types, study purpose, sample size, and instrument languages were extracted and compared. In this systematic review encompassing 88 studies, a variety of HRQoL assessment tools were employed, including both generic and cancer-type specific instruments. Distinct HRQoL assessment tools were identified for different populations, including pediatric, adolescent, and caregiver groups. The findings underscore the wide variety of instruments used across different cancer populations and age groups, highlighting the need for tailored assessments that consider specific demographic and clinical contexts. While generic HRQoL tools were the most commonly used across studies, disease-specific instruments for various cancer types were also frequently employed as supplementary measures. Moving forward, it is essential for stakeholders to collaborate in addressing the gaps in HRQoL research and to work towards the standardization of HRQoL assessment tools to ensure consistency and comparability in future studies. |
| first_indexed | 2025-11-15T01:05:39Z |
| format | Article |
| id | oai:generic.eprints.org:25680 |
| institution | Universiti Kebangasaan Malaysia |
| institution_category | Local University |
| language | English |
| last_indexed | 2025-11-15T01:05:39Z |
| publishDate | 2025 |
| publisher | Universiti Kebangsaan Malaysia |
| recordtype | eprints |
| repository_type | Digital Repository |
| spelling | oai:generic.eprints.org:256802025-07-30T02:22:06Z http://journalarticle.ukm.my/25680/ A systematic review of health-related quality of life assessment instruments for cancer patients: a Malaysian perspective Lim, Jing-Sheng Renukha Sellappans, Lee, Kenneth Kwing-Chin The absence of a review of health-related quality of life (HRQoL) assessment tools has led to inconsistencies in the use of HRQoL instruments across different cancer populations, such as adults, pediatric patients, and caregivers, limiting the comparability of findings and hindering the accurate evaluation of cancer care outcomes. With that, this study aimed to investigate how Malaysian cancer patients’ and other sub-population’s HRQoL is measured and quantified through HRQoL assessment instrument. From 2013 to 2023, a literature search was conducted on Scopus, PubMed, Cochrane Library, and ClinicalTrials.gov. The included studies and previously published review papers were also cited backward. For each HRQoL assessment instrument, attributes such as author(s), year of publication, study site, study design, target population, cancer types, study purpose, sample size, and instrument languages were extracted and compared. In this systematic review encompassing 88 studies, a variety of HRQoL assessment tools were employed, including both generic and cancer-type specific instruments. Distinct HRQoL assessment tools were identified for different populations, including pediatric, adolescent, and caregiver groups. The findings underscore the wide variety of instruments used across different cancer populations and age groups, highlighting the need for tailored assessments that consider specific demographic and clinical contexts. While generic HRQoL tools were the most commonly used across studies, disease-specific instruments for various cancer types were also frequently employed as supplementary measures. Moving forward, it is essential for stakeholders to collaborate in addressing the gaps in HRQoL research and to work towards the standardization of HRQoL assessment tools to ensure consistency and comparability in future studies. Universiti Kebangsaan Malaysia 2025-02-21 Article PeerReviewed application/pdf en http://journalarticle.ukm.my/25680/1/2201-2214%20-.pdf Lim, Jing-Sheng and Renukha Sellappans, and Lee, Kenneth Kwing-Chin (2025) A systematic review of health-related quality of life assessment instruments for cancer patients: a Malaysian perspective. International Journal of Public Health Research, 15 (1). pp. 2201-2214. ISSN 2232-0245 http://spaj.ukm.my/ijphr/index.php/ijphr |
| spellingShingle | Lim, Jing-Sheng Renukha Sellappans, Lee, Kenneth Kwing-Chin A systematic review of health-related quality of life assessment instruments for cancer patients: a Malaysian perspective |
| title | A systematic review of health-related quality of life assessment instruments for cancer patients: a Malaysian perspective |
| title_full | A systematic review of health-related quality of life assessment instruments for cancer patients: a Malaysian perspective |
| title_fullStr | A systematic review of health-related quality of life assessment instruments for cancer patients: a Malaysian perspective |
| title_full_unstemmed | A systematic review of health-related quality of life assessment instruments for cancer patients: a Malaysian perspective |
| title_short | A systematic review of health-related quality of life assessment instruments for cancer patients: a Malaysian perspective |
| title_sort | systematic review of health-related quality of life assessment instruments for cancer patients: a malaysian perspective |
| url | http://journalarticle.ukm.my/25680/ http://journalarticle.ukm.my/25680/ http://journalarticle.ukm.my/25680/1/2201-2214%20-.pdf |