| Summary: | Background
Traumatic birth experiences affect approximately one-third of women and can have significant long-term physical and mental health consequences. While women are known to participate in online support communities for birth
trauma, their experiences within these remain unexplored.
Aims and objectives
The study aims to explore women’s experiences in online support communities following a traumatic birth, the factors motivating their access and participation, and the changes in their engagement over time.
Method
Employing a hermeneutic phenomenology methodology, semi-structured interviews were conducted with 20 women, 14 of whom participated in follow�up interviews three months later. Data analysis involved crafting stories from
the interview transcripts and processes of dwelling and writing.
Findings
Participants reported joining online support communities due to the severity of their traumatic birth experiences, persistent or worsening traumatic stress symptoms, experiences of stigma, and difficulties discussing their experiences with others. Seeking explanation and validation from peers with similar experiences was a primary motivation. Women engaged by reading, posting,
commenting, and exchanging various forms of peer support, which were predominantly positively experienced. However, some participants reported negative experiences and the potential for harm when engaging in online support. Over time, women’s participation altered due to multiple factors,
including changes in their personal circumstances, the ongoing sequelae of their traumatic birth, and their experiences on the group. The processes of
leaving or disengaging from the group were complex and unclear, with both departure and continued engagement relating to feelings of recovery and ongoing difficulties.
Conclusions
Women access and use online support communities following traumatic birth because they lack support options. These communities provide valuable peer support, but they can also have negative implications for some women. Further research is needed to better understand these experiences and inform
the development of effective support mechanisms for women who have experienced a traumatic birth.
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