An evaluation of the opt-out approach to Hepatitis C Virus infection testing in prisons

The research in this thesis presents insights into elements of healthcare provided in micro-communities that are hidden from public view; prisons in England. Prisons are a key demographic in NHS England’s drive to eliminate hepatitis C virus infection (HCV) as a major public health threat by 2025. A...

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Main Author: Jack, Kathryn
Format: Thesis (University of Nottingham only)
Language:English
Published: 2020
Subjects:
Online Access:https://eprints.nottingham.ac.uk/59842/
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author Jack, Kathryn
author_facet Jack, Kathryn
author_sort Jack, Kathryn
building Nottingham Research Data Repository
collection Online Access
description The research in this thesis presents insights into elements of healthcare provided in micro-communities that are hidden from public view; prisons in England. Prisons are a key demographic in NHS England’s drive to eliminate hepatitis C virus infection (HCV) as a major public health threat by 2025. A policy to offer blood borne virus testing, with HCV as the priority, to those entering prisons via an opt-out approach was launched in 2014. This policy was implemented in the East Midlands prison estate, comprising 14 establishments, using dried blood spot tests as the default method of obtaining samples for analysis. The research aimed firstly to measure the impact of the opt-out testing policy on HCV test uptake in the East Midlands prisons and secondly to generate explanatory theories, based on the perspectives of men serving prison sentences, which would underpin future interventions to maximise test uptake in prisons. Realistic Evaluation methodology and mixed methods informed the conduct of three study phases: 1. Measurements of HCV test uptake pre-and post-policy introduction and prison operational features; 2. Survey of men in a category C prison to establish sentence duration, HCV test uptake, reasons for refusal and risk factors for HCV infection; 3. Semi-structured interviews with men in prison and nurses to elicit data on their perspectives about testing for HCV infection in prisons. In keeping with the Realistic Evaluation methodology programme theories were constructed to explain the test uptake rates observed in phase 1. These were subsequently refined using the novel data generated in phases 2 and 3. The HCV test uptake fell far short of the targets set by Public Health England and there was evidence of people with risk factors for HCV infection not being tested during their current sentence. The key themes of Fear, Insufficient Knowledge, Stigma, Privacy, Choice and Prison Life emerged as the principal barriers to test uptake. Test Uptake Facilitators were however identified by participants and a positive notion presented of prison healthcare being a Health Farm. In prisons men rarely spoke to each other about HCV and were fearful of catching this infection. Further, if identified as infected social rejection by others in prison was experienced so fears of being found out were high. Moreover, the prison regime which necessarily prioritises security, hampered opportunities for healthcare. Overall most men were accepting of the concept of routine BBV testing on arrival. The dominant qualitative leitmotif and causative mechanism to emerge from the interviews was Fear. This thesis presents a novel model of prison BBV engagement and interventions to increase test uptake, expressed as a Middle Range Theory comprising context-mechanism-outcome configurations embedded within the wider sociological theory about adaptation to prison life; prisonization.
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spelling nottingham-598422025-02-28T14:46:58Z https://eprints.nottingham.ac.uk/59842/ An evaluation of the opt-out approach to Hepatitis C Virus infection testing in prisons Jack, Kathryn The research in this thesis presents insights into elements of healthcare provided in micro-communities that are hidden from public view; prisons in England. Prisons are a key demographic in NHS England’s drive to eliminate hepatitis C virus infection (HCV) as a major public health threat by 2025. A policy to offer blood borne virus testing, with HCV as the priority, to those entering prisons via an opt-out approach was launched in 2014. This policy was implemented in the East Midlands prison estate, comprising 14 establishments, using dried blood spot tests as the default method of obtaining samples for analysis. The research aimed firstly to measure the impact of the opt-out testing policy on HCV test uptake in the East Midlands prisons and secondly to generate explanatory theories, based on the perspectives of men serving prison sentences, which would underpin future interventions to maximise test uptake in prisons. Realistic Evaluation methodology and mixed methods informed the conduct of three study phases: 1. Measurements of HCV test uptake pre-and post-policy introduction and prison operational features; 2. Survey of men in a category C prison to establish sentence duration, HCV test uptake, reasons for refusal and risk factors for HCV infection; 3. Semi-structured interviews with men in prison and nurses to elicit data on their perspectives about testing for HCV infection in prisons. In keeping with the Realistic Evaluation methodology programme theories were constructed to explain the test uptake rates observed in phase 1. These were subsequently refined using the novel data generated in phases 2 and 3. The HCV test uptake fell far short of the targets set by Public Health England and there was evidence of people with risk factors for HCV infection not being tested during their current sentence. The key themes of Fear, Insufficient Knowledge, Stigma, Privacy, Choice and Prison Life emerged as the principal barriers to test uptake. Test Uptake Facilitators were however identified by participants and a positive notion presented of prison healthcare being a Health Farm. In prisons men rarely spoke to each other about HCV and were fearful of catching this infection. Further, if identified as infected social rejection by others in prison was experienced so fears of being found out were high. Moreover, the prison regime which necessarily prioritises security, hampered opportunities for healthcare. Overall most men were accepting of the concept of routine BBV testing on arrival. The dominant qualitative leitmotif and causative mechanism to emerge from the interviews was Fear. This thesis presents a novel model of prison BBV engagement and interventions to increase test uptake, expressed as a Middle Range Theory comprising context-mechanism-outcome configurations embedded within the wider sociological theory about adaptation to prison life; prisonization. 2020-07-17 Thesis (University of Nottingham only) NonPeerReviewed application/pdf en arr https://eprints.nottingham.ac.uk/59842/1/Kathryn%20Jack%20PhD%20Thesis%20-%20UPLOADED%2023.01.20.pdf Jack, Kathryn (2020) An evaluation of the opt-out approach to Hepatitis C Virus infection testing in prisons. PhD thesis, University of Nottingham. Hepatitis C Prisons Opt-out testing Realist evaluation Mixed methods
spellingShingle Hepatitis C
Prisons
Opt-out testing
Realist evaluation
Mixed methods
Jack, Kathryn
An evaluation of the opt-out approach to Hepatitis C Virus infection testing in prisons
title An evaluation of the opt-out approach to Hepatitis C Virus infection testing in prisons
title_full An evaluation of the opt-out approach to Hepatitis C Virus infection testing in prisons
title_fullStr An evaluation of the opt-out approach to Hepatitis C Virus infection testing in prisons
title_full_unstemmed An evaluation of the opt-out approach to Hepatitis C Virus infection testing in prisons
title_short An evaluation of the opt-out approach to Hepatitis C Virus infection testing in prisons
title_sort evaluation of the opt-out approach to hepatitis c virus infection testing in prisons
topic Hepatitis C
Prisons
Opt-out testing
Realist evaluation
Mixed methods
url https://eprints.nottingham.ac.uk/59842/