Dementia care model: promoting personhood through co-production

Background Despite robust evidence on its effectiveness, current approaches that aspire to person-centred care (PCC) frequently locate people with dementia as passive recipients rather than as active agents in the care process. We define active involvement in care as ‘co- production’. In order to in...

Full description

Bibliographic Details
Main Authors: Bosco, Alessandro, Schneider, Justine M., Coleston-Shields, Donna Maria, Orrell, Martin
Format: Article
Language:English
Published: Elsevier 2019
Online Access:https://eprints.nottingham.ac.uk/55667/
_version_ 1848799198486462464
author Bosco, Alessandro
Schneider, Justine M.
Coleston-Shields, Donna Maria
Orrell, Martin
author_facet Bosco, Alessandro
Schneider, Justine M.
Coleston-Shields, Donna Maria
Orrell, Martin
author_sort Bosco, Alessandro
building Nottingham Research Data Repository
collection Online Access
description Background Despite robust evidence on its effectiveness, current approaches that aspire to person-centred care (PCC) frequently locate people with dementia as passive recipients rather than as active agents in the care process. We define active involvement in care as ‘co- production’. In order to investigate co-production, we set out to review the evidence concerning personhood and dignity in dementia care. Method We adopted a meta-ethnographic approach to synthesise the predominantly-qualitative literature on personhood and dignity in dementia care using EMBASE, PsycINFO, and ASSIA databases. We also included relevant policy documents. Members of Patient and 60 Public Involvement (PPI) group were consulted throughout. Results A total of 14 empirical studies were subjected to content analysis. Three themes were identified: dignity and personhood, coping with dementia, and barriers to dignity in care. The findings suggest that positive strategies and coping mechanisms are associated with superior outcomes in relation to: sense of self, dignity and quality of care. The 22 policy documents yielded six themes pertaining to co-production: the part played by the person with dementia, family, environment, behaviour, governance and law, and health care partnership. Conclusion Personhood in dementia care is enhanced through co-production, by actively participating in social, civic and political life. This is promoted through behavioural changes at the micro and macro levels of society, including providers of care being trained in co- producing care and policy makers creating opportunities with, rather than for people with dementia.
first_indexed 2025-11-14T20:31:51Z
format Article
id nottingham-55667
institution University of Nottingham Malaysia Campus
institution_category Local University
language English
last_indexed 2025-11-14T20:31:51Z
publishDate 2019
publisher Elsevier
recordtype eprints
repository_type Digital Repository
spelling nottingham-556672019-11-16T04:30:12Z https://eprints.nottingham.ac.uk/55667/ Dementia care model: promoting personhood through co-production Bosco, Alessandro Schneider, Justine M. Coleston-Shields, Donna Maria Orrell, Martin Background Despite robust evidence on its effectiveness, current approaches that aspire to person-centred care (PCC) frequently locate people with dementia as passive recipients rather than as active agents in the care process. We define active involvement in care as ‘co- production’. In order to investigate co-production, we set out to review the evidence concerning personhood and dignity in dementia care. Method We adopted a meta-ethnographic approach to synthesise the predominantly-qualitative literature on personhood and dignity in dementia care using EMBASE, PsycINFO, and ASSIA databases. We also included relevant policy documents. Members of Patient and 60 Public Involvement (PPI) group were consulted throughout. Results A total of 14 empirical studies were subjected to content analysis. Three themes were identified: dignity and personhood, coping with dementia, and barriers to dignity in care. The findings suggest that positive strategies and coping mechanisms are associated with superior outcomes in relation to: sense of self, dignity and quality of care. The 22 policy documents yielded six themes pertaining to co-production: the part played by the person with dementia, family, environment, behaviour, governance and law, and health care partnership. Conclusion Personhood in dementia care is enhanced through co-production, by actively participating in social, civic and political life. This is promoted through behavioural changes at the micro and macro levels of society, including providers of care being trained in co- producing care and policy makers creating opportunities with, rather than for people with dementia. Elsevier 2019-03-31 Article PeerReviewed application/pdf en cc_by_nc_nd https://eprints.nottingham.ac.uk/55667/1/PPC%20dementia%20model.pdf Bosco, Alessandro, Schneider, Justine M., Coleston-Shields, Donna Maria and Orrell, Martin (2019) Dementia care model: promoting personhood through co-production. Archives of Gerontology and Geriatrics, 81 . pp. 59-73. ISSN 1872-6976 https://www.sciencedirect.com/science/article/pii/S0167494318302103 doi:10.1016/j.archger.2018.11.003 doi:10.1016/j.archger.2018.11.003
spellingShingle Bosco, Alessandro
Schneider, Justine M.
Coleston-Shields, Donna Maria
Orrell, Martin
Dementia care model: promoting personhood through co-production
title Dementia care model: promoting personhood through co-production
title_full Dementia care model: promoting personhood through co-production
title_fullStr Dementia care model: promoting personhood through co-production
title_full_unstemmed Dementia care model: promoting personhood through co-production
title_short Dementia care model: promoting personhood through co-production
title_sort dementia care model: promoting personhood through co-production
url https://eprints.nottingham.ac.uk/55667/
https://eprints.nottingham.ac.uk/55667/
https://eprints.nottingham.ac.uk/55667/