Working with the patient and clinical community to deliver clinical research in cystic fibrosis. James Lind CF Phase II
This is a protocol which sets out the aims, objectives and commitments of the second phase of the James Lind Alliance Priority Setting Partnership in Cystic Fibrosis and the basic roles and responsibilities of the partners therein. The James Lind Alliance Priority Setting Partnership in cystic f...
| Main Authors: | , , |
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| Format: | Other |
| Language: | English |
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Cystic Fibrosis Trust
2018
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| Subjects: | |
| Online Access: | https://eprints.nottingham.ac.uk/55412/ |
| _version_ | 1848799160744017920 |
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| author | Smith, S.J. Rowbotham, Nicola J. Smyth, Alan R. |
| author_facet | Smith, S.J. Rowbotham, Nicola J. Smyth, Alan R. |
| author_sort | Smith, S.J. |
| building | Nottingham Research Data Repository |
| collection | Online Access |
| description | This is a protocol which sets out the aims, objectives and commitments of the second phase of the James Lind Alliance Priority Setting Partnership in Cystic Fibrosis and the basic roles and responsibilities of the partners therein.
The James Lind Alliance Priority Setting Partnership in cystic fibrosis was carried out in 2016 using a robust and widely accepted methodology to develop the top 10 questions for clinical research in CF, through discussions with both the clinical and patient community.
We now aim to explore four of the top ten questions from this process and develop them into a series of testable hypotheses for clinical research. Where the hypothesis will be tested in a clinical trial, we will develop a PICO question for each hypothesis (Population, Intervention, Comparator & Outcome).
We will use online surveys and focus groups to achieve our aim. |
| first_indexed | 2025-11-14T20:31:15Z |
| format | Other |
| id | nottingham-55412 |
| institution | University of Nottingham Malaysia Campus |
| institution_category | Local University |
| language | English |
| last_indexed | 2025-11-14T20:31:15Z |
| publishDate | 2018 |
| publisher | Cystic Fibrosis Trust |
| recordtype | eprints |
| repository_type | Digital Repository |
| spelling | nottingham-554122018-10-26T10:32:54Z https://eprints.nottingham.ac.uk/55412/ Working with the patient and clinical community to deliver clinical research in cystic fibrosis. James Lind CF Phase II Smith, S.J. Rowbotham, Nicola J. Smyth, Alan R. This is a protocol which sets out the aims, objectives and commitments of the second phase of the James Lind Alliance Priority Setting Partnership in Cystic Fibrosis and the basic roles and responsibilities of the partners therein. The James Lind Alliance Priority Setting Partnership in cystic fibrosis was carried out in 2016 using a robust and widely accepted methodology to develop the top 10 questions for clinical research in CF, through discussions with both the clinical and patient community. We now aim to explore four of the top ten questions from this process and develop them into a series of testable hypotheses for clinical research. Where the hypothesis will be tested in a clinical trial, we will develop a PICO question for each hypothesis (Population, Intervention, Comparator & Outcome). We will use online surveys and focus groups to achieve our aim. Cystic Fibrosis Trust 2018-02-14 Other NonPeerReviewed application/pdf en https://eprints.nottingham.ac.uk/55412/1/James%20Lind%20CF2%20Protocol_140218.pdf Smith, S.J., Rowbotham, Nicola J. and Smyth, Alan R. (2018) Working with the patient and clinical community to deliver clinical research in cystic fibrosis. James Lind CF Phase II. Cystic Fibrosis Trust. (Unpublished) Cystic fibrosis; Priority Setting; Patient and public involvement |
| spellingShingle | Cystic fibrosis; Priority Setting; Patient and public involvement Smith, S.J. Rowbotham, Nicola J. Smyth, Alan R. Working with the patient and clinical community to deliver clinical research in cystic fibrosis. James Lind CF Phase II |
| title | Working with the patient and clinical community to deliver clinical research in cystic fibrosis. James Lind CF Phase II |
| title_full | Working with the patient and clinical community to deliver clinical research in cystic fibrosis. James Lind CF Phase II |
| title_fullStr | Working with the patient and clinical community to deliver clinical research in cystic fibrosis. James Lind CF Phase II |
| title_full_unstemmed | Working with the patient and clinical community to deliver clinical research in cystic fibrosis. James Lind CF Phase II |
| title_short | Working with the patient and clinical community to deliver clinical research in cystic fibrosis. James Lind CF Phase II |
| title_sort | working with the patient and clinical community to deliver clinical research in cystic fibrosis. james lind cf phase ii |
| topic | Cystic fibrosis; Priority Setting; Patient and public involvement |
| url | https://eprints.nottingham.ac.uk/55412/ |