Using electronic health records to quantify and stratify the severity of type 2 diabetes in primary care in England: rationale and cohort study design

Introduction: The increasing prevalence of type 2 diabetes (T2DM) presents a significant burden on affected individuals and health-care systems internationally. There is, however, no agreed validated measure to infer diabetes severity from electronic health records (EHRs). We aim to quantify T2DM se...

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Main Authors: Zghebi, Salwa S., Rutter, Martin K., Ashcroft, Darren M., Salisbury, Chris, Mallen, Christian, Chew-Graham, Carolyn A., Reeves, David, Van marwijk, Harm, Qureshi, Nadeem, Weng, Stephen, Peek, Niels, Planner, Claire
Format: Article
Published: BMJ Publishing Group Ltd 2018
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Online Access:https://eprints.nottingham.ac.uk/51820/
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author Zghebi, Salwa S.
Rutter, Martin K.
Ashcroft, Darren M.
Salisbury, Chris
Mallen, Christian
Chew-Graham, Carolyn A.
Reeves, David
Van marwijk, Harm
Qureshi, Nadeem
Weng, Stephen
Peek, Niels
Planner, Claire
author_facet Zghebi, Salwa S.
Rutter, Martin K.
Ashcroft, Darren M.
Salisbury, Chris
Mallen, Christian
Chew-Graham, Carolyn A.
Reeves, David
Van marwijk, Harm
Qureshi, Nadeem
Weng, Stephen
Peek, Niels
Planner, Claire
author_sort Zghebi, Salwa S.
building Nottingham Research Data Repository
collection Online Access
description Introduction: The increasing prevalence of type 2 diabetes (T2DM) presents a significant burden on affected individuals and health-care systems internationally. There is, however, no agreed validated measure to infer diabetes severity from electronic health records (EHRs). We aim to quantify T2DM severity and validate it using clinical adverse outcomes. Methods and Analysis: Primary care data from the Clinical Practice Research Datalink (CPRD), linked hospitalisation and mortality records between April-2007 and March-2017 for T2DM patients in England will be used to develop a clinical algorithm to grade T2DM severity. The EHR-based algorithm will incorporate main risk factors (severity domains) for adverse outcomes to stratify T2DM cohorts by baseline and longitudinal severity scores. Provisionally, T2DM severity domains, identified through a systematic review and expert opinion are: diabetes duration, HbA1c, microvascular complications, comorbidities, and co-prescribed treatments. Severity scores will be developed by two approaches: i) calculating a count score of severity domains; ii) through hierarchical stratification of complications. Regression models estimates will be used to calculate domains weights. Survival analysis for the association between weighted severity scores and future outcomes: cardiovascular events; hospitalisation (diabetes-related, cardiovascular); and mortality (diabetes-related, cardiovascular, all-cause mortality) will be performed as a statistical validation. The proposed EHR-based approach will quantify the T2DM severity for primary care performance management and inform the methodology for measuring severity of other primary care-managed chronic conditions. We anticipate that the developed algorithm will be a practical tool for practitioners, aid clinical management decision-making, inform stratified medicine, support future clinical trials and contribute to more effective service-planning and policy-making. Ethics and Dissemination: The study protocol was approved by the Independent Scientific Advisory Committee (ISAC). Some data were presented at the NIHR SPCR Showcase, September-2017, Oxford,UK; the Diabetes UK Professional Conference March-2018, London,UK. The study findings will be disseminated in relevant academic conferences and peer-reviewed journals.
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spelling nottingham-518202020-05-04T19:44:26Z https://eprints.nottingham.ac.uk/51820/ Using electronic health records to quantify and stratify the severity of type 2 diabetes in primary care in England: rationale and cohort study design Zghebi, Salwa S. Rutter, Martin K. Ashcroft, Darren M. Salisbury, Chris Mallen, Christian Chew-Graham, Carolyn A. Reeves, David Van marwijk, Harm Qureshi, Nadeem Weng, Stephen Peek, Niels Planner, Claire Introduction: The increasing prevalence of type 2 diabetes (T2DM) presents a significant burden on affected individuals and health-care systems internationally. There is, however, no agreed validated measure to infer diabetes severity from electronic health records (EHRs). We aim to quantify T2DM severity and validate it using clinical adverse outcomes. Methods and Analysis: Primary care data from the Clinical Practice Research Datalink (CPRD), linked hospitalisation and mortality records between April-2007 and March-2017 for T2DM patients in England will be used to develop a clinical algorithm to grade T2DM severity. The EHR-based algorithm will incorporate main risk factors (severity domains) for adverse outcomes to stratify T2DM cohorts by baseline and longitudinal severity scores. Provisionally, T2DM severity domains, identified through a systematic review and expert opinion are: diabetes duration, HbA1c, microvascular complications, comorbidities, and co-prescribed treatments. Severity scores will be developed by two approaches: i) calculating a count score of severity domains; ii) through hierarchical stratification of complications. Regression models estimates will be used to calculate domains weights. Survival analysis for the association between weighted severity scores and future outcomes: cardiovascular events; hospitalisation (diabetes-related, cardiovascular); and mortality (diabetes-related, cardiovascular, all-cause mortality) will be performed as a statistical validation. The proposed EHR-based approach will quantify the T2DM severity for primary care performance management and inform the methodology for measuring severity of other primary care-managed chronic conditions. We anticipate that the developed algorithm will be a practical tool for practitioners, aid clinical management decision-making, inform stratified medicine, support future clinical trials and contribute to more effective service-planning and policy-making. Ethics and Dissemination: The study protocol was approved by the Independent Scientific Advisory Committee (ISAC). Some data were presented at the NIHR SPCR Showcase, September-2017, Oxford,UK; the Diabetes UK Professional Conference March-2018, London,UK. The study findings will be disseminated in relevant academic conferences and peer-reviewed journals. BMJ Publishing Group Ltd 2018-06-30 Article PeerReviewed Zghebi, Salwa S., Rutter, Martin K., Ashcroft, Darren M., Salisbury, Chris, Mallen, Christian, Chew-Graham, Carolyn A., Reeves, David, Van marwijk, Harm, Qureshi, Nadeem, Weng, Stephen, Peek, Niels and Planner, Claire (2018) Using electronic health records to quantify and stratify the severity of type 2 diabetes in primary care in England: rationale and cohort study design. BMJ Open, 8 (6). e020926. ISSN 2044-6055 Electronic health records; Type 2 Diabetes; Primary Care https://bmjopen.bmj.com/content/8/6/e020926
spellingShingle Electronic health records; Type 2 Diabetes; Primary Care
Zghebi, Salwa S.
Rutter, Martin K.
Ashcroft, Darren M.
Salisbury, Chris
Mallen, Christian
Chew-Graham, Carolyn A.
Reeves, David
Van marwijk, Harm
Qureshi, Nadeem
Weng, Stephen
Peek, Niels
Planner, Claire
Using electronic health records to quantify and stratify the severity of type 2 diabetes in primary care in England: rationale and cohort study design
title Using electronic health records to quantify and stratify the severity of type 2 diabetes in primary care in England: rationale and cohort study design
title_full Using electronic health records to quantify and stratify the severity of type 2 diabetes in primary care in England: rationale and cohort study design
title_fullStr Using electronic health records to quantify and stratify the severity of type 2 diabetes in primary care in England: rationale and cohort study design
title_full_unstemmed Using electronic health records to quantify and stratify the severity of type 2 diabetes in primary care in England: rationale and cohort study design
title_short Using electronic health records to quantify and stratify the severity of type 2 diabetes in primary care in England: rationale and cohort study design
title_sort using electronic health records to quantify and stratify the severity of type 2 diabetes in primary care in england: rationale and cohort study design
topic Electronic health records; Type 2 Diabetes; Primary Care
url https://eprints.nottingham.ac.uk/51820/
https://eprints.nottingham.ac.uk/51820/