Participation in a randomised controlled feasibility study of a complex intervention for the management of the Respiratory Symptom Distress Cluster in lung cancer: patient, carer and research staff views
This paper reports finding from a nested qualitative study designed to elicit the views and perceptions of those who participated in a randomised controlled feasibility trial testing a non‐pharmacological intervention, Respiratory Distress Symptom Intervention (RDSI), for the management of the breat...
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| Format: | Article |
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Wiley
2017
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| Online Access: | https://eprints.nottingham.ac.uk/50752/ |
| _version_ | 1848798331293138944 |
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| author | Bailey, Christopher Ellis-Hill, Caroline Molassiotis, A. Mackereth, P. Lloyd-Williams, M. Yorke, J. |
| author_facet | Bailey, Christopher Ellis-Hill, Caroline Molassiotis, A. Mackereth, P. Lloyd-Williams, M. Yorke, J. |
| author_sort | Bailey, Christopher |
| building | Nottingham Research Data Repository |
| collection | Online Access |
| description | This paper reports finding from a nested qualitative study designed to elicit the views and perceptions of those who participated in a randomised controlled feasibility trial testing a non‐pharmacological intervention, Respiratory Distress Symptom Intervention (RDSI), for the management of the breathlessness–cough–fatigue symptom cluster in lung cancer. Semi‐structured interviews were conducted with 11 lung cancer patients, three caregivers and seven researchers involved in recruitment, consent, RDSI training and delivery and participant follow‐up. Thematic analysis identified key considerations including: the importance of informed consent emphasising commitment to completion of paperwork and raising awareness of potential sensitivities relating to content of questionnaires; ensuring screening for the presence of symptoms reflects the language used by patients; appreciation of the commitment required from participants to learn intervention techniques and embed them as part of everyday life; conduct of interviews with patients who decline to participate; and conduct of serial interviews with those receiving RDSI to further inform its routine implementation into clinical practice. This study will inform the development of a fully powered follow‐on trial testing the hypothesis that RDSI plus usual care is superior to usual care alone in the effective management of this symptom cluster in lung cancer. |
| first_indexed | 2025-11-14T20:18:04Z |
| format | Article |
| id | nottingham-50752 |
| institution | University of Nottingham Malaysia Campus |
| institution_category | Local University |
| last_indexed | 2025-11-14T20:18:04Z |
| publishDate | 2017 |
| publisher | Wiley |
| recordtype | eprints |
| repository_type | Digital Repository |
| spelling | nottingham-507522020-05-04T19:16:11Z https://eprints.nottingham.ac.uk/50752/ Participation in a randomised controlled feasibility study of a complex intervention for the management of the Respiratory Symptom Distress Cluster in lung cancer: patient, carer and research staff views Bailey, Christopher Ellis-Hill, Caroline Molassiotis, A. Mackereth, P. Lloyd-Williams, M. Yorke, J. This paper reports finding from a nested qualitative study designed to elicit the views and perceptions of those who participated in a randomised controlled feasibility trial testing a non‐pharmacological intervention, Respiratory Distress Symptom Intervention (RDSI), for the management of the breathlessness–cough–fatigue symptom cluster in lung cancer. Semi‐structured interviews were conducted with 11 lung cancer patients, three caregivers and seven researchers involved in recruitment, consent, RDSI training and delivery and participant follow‐up. Thematic analysis identified key considerations including: the importance of informed consent emphasising commitment to completion of paperwork and raising awareness of potential sensitivities relating to content of questionnaires; ensuring screening for the presence of symptoms reflects the language used by patients; appreciation of the commitment required from participants to learn intervention techniques and embed them as part of everyday life; conduct of interviews with patients who decline to participate; and conduct of serial interviews with those receiving RDSI to further inform its routine implementation into clinical practice. This study will inform the development of a fully powered follow‐on trial testing the hypothesis that RDSI plus usual care is superior to usual care alone in the effective management of this symptom cluster in lung cancer. Wiley 2017-11-06 Article PeerReviewed Bailey, Christopher, Ellis-Hill, Caroline, Molassiotis, A., Mackereth, P., Lloyd-Williams, M. and Yorke, J. (2017) Participation in a randomised controlled feasibility study of a complex intervention for the management of the Respiratory Symptom Distress Cluster in lung cancer: patient, carer and research staff views. European Journal of Cancer Care, 26 (6). e12538/1-e12538/11. ISSN 1365-2354 carers; lung cancer; patients; qualitative; semi‐structured interviews; symptoms https://onlinelibrary.wiley.com/doi/abs/10.1111/ecc.12538 doi:10.1111/ecc.12538 doi:10.1111/ecc.12538 |
| spellingShingle | carers; lung cancer; patients; qualitative; semi‐structured interviews; symptoms Bailey, Christopher Ellis-Hill, Caroline Molassiotis, A. Mackereth, P. Lloyd-Williams, M. Yorke, J. Participation in a randomised controlled feasibility study of a complex intervention for the management of the Respiratory Symptom Distress Cluster in lung cancer: patient, carer and research staff views |
| title | Participation in a randomised controlled feasibility study of a complex intervention for the management of the Respiratory Symptom Distress Cluster in lung cancer: patient, carer and research staff views |
| title_full | Participation in a randomised controlled feasibility study of a complex intervention for the management of the Respiratory Symptom Distress Cluster in lung cancer: patient, carer and research staff views |
| title_fullStr | Participation in a randomised controlled feasibility study of a complex intervention for the management of the Respiratory Symptom Distress Cluster in lung cancer: patient, carer and research staff views |
| title_full_unstemmed | Participation in a randomised controlled feasibility study of a complex intervention for the management of the Respiratory Symptom Distress Cluster in lung cancer: patient, carer and research staff views |
| title_short | Participation in a randomised controlled feasibility study of a complex intervention for the management of the Respiratory Symptom Distress Cluster in lung cancer: patient, carer and research staff views |
| title_sort | participation in a randomised controlled feasibility study of a complex intervention for the management of the respiratory symptom distress cluster in lung cancer: patient, carer and research staff views |
| topic | carers; lung cancer; patients; qualitative; semi‐structured interviews; symptoms |
| url | https://eprints.nottingham.ac.uk/50752/ https://eprints.nottingham.ac.uk/50752/ https://eprints.nottingham.ac.uk/50752/ |