Emotional distress with dementia: a systematic review using corpus‐based analysis and metaethnography
Objective: More understanding is needed about the emotional experiences of dementia from the perspective of the individual. This understanding can then inform the provision of health care to meet individual needs. This systematic review aimed to present all available descriptions of emotional distre...
| Main Authors: | , , , , |
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| Format: | Article |
| Language: | English |
| Published: |
Wiley
2018
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| Subjects: | |
| Online Access: | https://eprints.nottingham.ac.uk/50183/ |
| _version_ | 1848798177885421568 |
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| author | Petty, Stephanie Harvey, Kevin Griffiths, Amanda Coleston-Shields, Donna Maria Dening, Tom |
| author_facet | Petty, Stephanie Harvey, Kevin Griffiths, Amanda Coleston-Shields, Donna Maria Dening, Tom |
| author_sort | Petty, Stephanie |
| building | Nottingham Research Data Repository |
| collection | Online Access |
| description | Objective: More understanding is needed about the emotional experiences of dementia from the perspective of the individual. This understanding can then inform the provision of health care to meet individual needs. This systematic review aimed to present all available descriptions of emotional distress and explanations for emotional distress experienced by individuals with dementia, articulated personally and by others.
Methods: A systematic mixed‐method review identified literature that was screened and quality appraised. Data were analysed quantitatively and qualitatively using corpus‐based methods and meta‐ethnography.
Results: The 121 included studies showed that individuals with dementia have expressed emotional distress comprehensibly. Family, professional caregivers, clinicians, and academic writers have also observed and described extreme emotional experiences. Feeling fearful and lonely were predominant and show the importance of anxiety in dementia. Explanations for emotional distress included threats to universal, human needs for identity, belonging, hope, and predictability.
Conclusions: The variable and personal emotional experiences of individuals with dementia are well described and should not continue to be overlooked. Limitations, future research, and clinical implications are discussed. |
| first_indexed | 2025-11-14T20:15:38Z |
| format | Article |
| id | nottingham-50183 |
| institution | University of Nottingham Malaysia Campus |
| institution_category | Local University |
| language | English |
| last_indexed | 2025-11-14T20:15:38Z |
| publishDate | 2018 |
| publisher | Wiley |
| recordtype | eprints |
| repository_type | Digital Repository |
| spelling | nottingham-501832019-03-02T04:30:16Z https://eprints.nottingham.ac.uk/50183/ Emotional distress with dementia: a systematic review using corpus‐based analysis and metaethnography Petty, Stephanie Harvey, Kevin Griffiths, Amanda Coleston-Shields, Donna Maria Dening, Tom Objective: More understanding is needed about the emotional experiences of dementia from the perspective of the individual. This understanding can then inform the provision of health care to meet individual needs. This systematic review aimed to present all available descriptions of emotional distress and explanations for emotional distress experienced by individuals with dementia, articulated personally and by others. Methods: A systematic mixed‐method review identified literature that was screened and quality appraised. Data were analysed quantitatively and qualitatively using corpus‐based methods and meta‐ethnography. Results: The 121 included studies showed that individuals with dementia have expressed emotional distress comprehensibly. Family, professional caregivers, clinicians, and academic writers have also observed and described extreme emotional experiences. Feeling fearful and lonely were predominant and show the importance of anxiety in dementia. Explanations for emotional distress included threats to universal, human needs for identity, belonging, hope, and predictability. Conclusions: The variable and personal emotional experiences of individuals with dementia are well described and should not continue to be overlooked. Limitations, future research, and clinical implications are discussed. Wiley 2018-03-02 Article PeerReviewed application/pdf en https://eprints.nottingham.ac.uk/50183/1/Petty_2018_accepted%20proof.pdf Petty, Stephanie, Harvey, Kevin, Griffiths, Amanda, Coleston-Shields, Donna Maria and Dening, Tom (2018) Emotional distress with dementia: a systematic review using corpus‐based analysis and metaethnography. International Journal of Geriatric Psychiatry . ISSN 0885-6230 anxiety corpus linguistics dementia emotion meta‐ethnography http://onlinelibrary.wiley.com/doi/10.1002/gps.4870/full doi:10.1002/gps.4870 doi:10.1002/gps.4870 |
| spellingShingle | anxiety corpus linguistics dementia emotion meta‐ethnography Petty, Stephanie Harvey, Kevin Griffiths, Amanda Coleston-Shields, Donna Maria Dening, Tom Emotional distress with dementia: a systematic review using corpus‐based analysis and metaethnography |
| title | Emotional distress with dementia: a systematic review using corpus‐based analysis and metaethnography |
| title_full | Emotional distress with dementia: a systematic review using corpus‐based analysis and metaethnography |
| title_fullStr | Emotional distress with dementia: a systematic review using corpus‐based analysis and metaethnography |
| title_full_unstemmed | Emotional distress with dementia: a systematic review using corpus‐based analysis and metaethnography |
| title_short | Emotional distress with dementia: a systematic review using corpus‐based analysis and metaethnography |
| title_sort | emotional distress with dementia: a systematic review using corpus‐based analysis and metaethnography |
| topic | anxiety corpus linguistics dementia emotion meta‐ethnography |
| url | https://eprints.nottingham.ac.uk/50183/ https://eprints.nottingham.ac.uk/50183/ https://eprints.nottingham.ac.uk/50183/ |