Scaling the Peaks Research Protocol: understanding the barriers and drivers to providing and using dementia friendly community services in rural areas: a mixed methods study

Introduction: Scaling the Peaks is a cross-disciplinary research study which draws on medical ethnography, human geography and Geospatial Information Science (GIS) to address the issues surrounding the design and delivery of dementia friendly services in rural communities. The research question seek...

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Main Authors: Marshall, Fiona, Basiri, Anahid, Riley, Mark, Dening, Tom, Gladman, John R.F., Griffiths, Amanda, Lewis, Sarah
Format: Article
Language:English
Published: BMJ Publishing Group Ltd 2018
Subjects:
Online Access:https://eprints.nottingham.ac.uk/49785/
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author Marshall, Fiona
Basiri, Anahid
Riley, Mark
Dening, Tom
Gladman, John R.F.
Griffiths, Amanda
Lewis, Sarah
author_facet Marshall, Fiona
Basiri, Anahid
Riley, Mark
Dening, Tom
Gladman, John R.F.
Griffiths, Amanda
Lewis, Sarah
author_sort Marshall, Fiona
building Nottingham Research Data Repository
collection Online Access
description Introduction: Scaling the Peaks is a cross-disciplinary research study which draws on medical ethnography, human geography and Geospatial Information Science (GIS) to address the issues surrounding the design and delivery of dementia friendly services in rural communities. The research question seeks to understand the barriers and drivers to the development of relevant, robust, reliable and accessible services which make a difference among older rural families affected by dementia. Methods and analysis: This mixed methods study recruits both families affected by dementia who reside within the Peak District National Park, Derbyshire, and their service providers. The study explores the expectations and experiences of rural dementia by adopting a three part approach: (1) longitudinal ethnographic enquiry with up to 32 families affected by dementia (aged 70 years plus) who identify themselves as rural residents; (2) ethnographic semi-structured interviews and systematic observations of a range of statutory, third sector, private and local community initiative’s which seek to support older people living with dementia; (3) geospatial visual mapping of the qualitative and quantitative data. The ethnographic data will be used to explore the ideas of belonging in a community, perceptions of place and identity to determine the factors which influence everyday decisions about living well with dementia and, for the providers, working in a rural community. The geospatial component of the study seeks to incorporate quantitative and qualitative data, such as types, locations and allocation of services to produce an interactive web-based map for local communities to determine the future design and delivery of services when considering dementia friendly services. Ethics and dissemination: The study is approved by the Leeds and Humberside Health Research Authority 16/YH/0163. The study is also approved by other participating organisations as required by their own governance procedures. The study includes people with dementia and as such adheres to the ethical considerations when including people with dementia. A publically available interactive visual map of the findings will be produced in relation to current services related to location and, by default, identify gaps in provision. Formal reports and dissemination activities will be undertaken in collaboration with the study advisory group members.
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spelling nottingham-497852020-05-08T09:30:14Z https://eprints.nottingham.ac.uk/49785/ Scaling the Peaks Research Protocol: understanding the barriers and drivers to providing and using dementia friendly community services in rural areas: a mixed methods study Marshall, Fiona Basiri, Anahid Riley, Mark Dening, Tom Gladman, John R.F. Griffiths, Amanda Lewis, Sarah Introduction: Scaling the Peaks is a cross-disciplinary research study which draws on medical ethnography, human geography and Geospatial Information Science (GIS) to address the issues surrounding the design and delivery of dementia friendly services in rural communities. The research question seeks to understand the barriers and drivers to the development of relevant, robust, reliable and accessible services which make a difference among older rural families affected by dementia. Methods and analysis: This mixed methods study recruits both families affected by dementia who reside within the Peak District National Park, Derbyshire, and their service providers. The study explores the expectations and experiences of rural dementia by adopting a three part approach: (1) longitudinal ethnographic enquiry with up to 32 families affected by dementia (aged 70 years plus) who identify themselves as rural residents; (2) ethnographic semi-structured interviews and systematic observations of a range of statutory, third sector, private and local community initiative’s which seek to support older people living with dementia; (3) geospatial visual mapping of the qualitative and quantitative data. The ethnographic data will be used to explore the ideas of belonging in a community, perceptions of place and identity to determine the factors which influence everyday decisions about living well with dementia and, for the providers, working in a rural community. The geospatial component of the study seeks to incorporate quantitative and qualitative data, such as types, locations and allocation of services to produce an interactive web-based map for local communities to determine the future design and delivery of services when considering dementia friendly services. Ethics and dissemination: The study is approved by the Leeds and Humberside Health Research Authority 16/YH/0163. The study is also approved by other participating organisations as required by their own governance procedures. The study includes people with dementia and as such adheres to the ethical considerations when including people with dementia. A publically available interactive visual map of the findings will be produced in relation to current services related to location and, by default, identify gaps in provision. Formal reports and dissemination activities will be undertaken in collaboration with the study advisory group members. BMJ Publishing Group Ltd 2018-04-13 Article PeerReviewed application/pdf en cc_by https://eprints.nottingham.ac.uk/49785/8/Marshall%202018%20Scaling%20Peaks%20protocol%20BMJ.pdf Marshall, Fiona, Basiri, Anahid, Riley, Mark, Dening, Tom, Gladman, John R.F., Griffiths, Amanda and Lewis, Sarah (2018) Scaling the Peaks Research Protocol: understanding the barriers and drivers to providing and using dementia friendly community services in rural areas: a mixed methods study. BMJ Open, 8 (4). e020374/1-e020374/10. ISSN 2044-6055 dementia rural family caregivers formal caregivers social support health support health geography dementia friendly geospatial health mixed methods research http://bmjopen.bmj.com/content/8/4/e020374 doi:10.1136/bmjopen-2017-020374 doi:10.1136/bmjopen-2017-020374
spellingShingle dementia
rural
family caregivers
formal caregivers
social support
health support
health geography
dementia friendly
geospatial health
mixed methods research
Marshall, Fiona
Basiri, Anahid
Riley, Mark
Dening, Tom
Gladman, John R.F.
Griffiths, Amanda
Lewis, Sarah
Scaling the Peaks Research Protocol: understanding the barriers and drivers to providing and using dementia friendly community services in rural areas: a mixed methods study
title Scaling the Peaks Research Protocol: understanding the barriers and drivers to providing and using dementia friendly community services in rural areas: a mixed methods study
title_full Scaling the Peaks Research Protocol: understanding the barriers and drivers to providing and using dementia friendly community services in rural areas: a mixed methods study
title_fullStr Scaling the Peaks Research Protocol: understanding the barriers and drivers to providing and using dementia friendly community services in rural areas: a mixed methods study
title_full_unstemmed Scaling the Peaks Research Protocol: understanding the barriers and drivers to providing and using dementia friendly community services in rural areas: a mixed methods study
title_short Scaling the Peaks Research Protocol: understanding the barriers and drivers to providing and using dementia friendly community services in rural areas: a mixed methods study
title_sort scaling the peaks research protocol: understanding the barriers and drivers to providing and using dementia friendly community services in rural areas: a mixed methods study
topic dementia
rural
family caregivers
formal caregivers
social support
health support
health geography
dementia friendly
geospatial health
mixed methods research
url https://eprints.nottingham.ac.uk/49785/
https://eprints.nottingham.ac.uk/49785/
https://eprints.nottingham.ac.uk/49785/