Co-research with adults with Intellectual Disability: a systematic review
Background. Co-research with people with intellectual disability (ID) is a distinct form of patient and public involvement (PPI). This systematic review summarises published studies and protocols to report on the process of co-research in social and health care research. Method. Relevant studies w...
| Main Authors: | , , , |
|---|---|
| Format: | Article |
| Published: |
Wiley
2017
|
| Subjects: | |
| Online Access: | https://eprints.nottingham.ac.uk/48220/ |
| _version_ | 1848797717248081920 |
|---|---|
| author | Di Lorito, Claudio Bosco, Alessandro Birt, Linda Hassiotis, Angela |
| author_facet | Di Lorito, Claudio Bosco, Alessandro Birt, Linda Hassiotis, Angela |
| author_sort | Di Lorito, Claudio |
| building | Nottingham Research Data Repository |
| collection | Online Access |
| description | Background. Co-research with people with intellectual disability (ID) is a distinct form of patient and public involvement (PPI). This systematic review summarises published studies and protocols to report on the process of co-research in social and health care research.
Method. Relevant studies were identified using electronic searches on ASSIA, PsycInfo and MedLine. Study quality was assessed and information relevant to the process of working with co-researchers was extracted and thematically analysed.
Results. Thirteen studies were retrieved. Data are reported under three themes: 1) challenges of co-research; 2) facilitators of co-research; 3) benefits of co-research. Best practice is presented as a model of co-research. Content analysis on 12 research protocols identified four themes related to PPI.
Conclusions. All stakeholders involved in co-research with people with ID can benefit, providing there is adequate infrastructure to accommodate and empower the co-researchers. Many current ID research projects still lack systematic involvement of PPI members. |
| first_indexed | 2025-11-14T20:08:19Z |
| format | Article |
| id | nottingham-48220 |
| institution | University of Nottingham Malaysia Campus |
| institution_category | Local University |
| last_indexed | 2025-11-14T20:08:19Z |
| publishDate | 2017 |
| publisher | Wiley |
| recordtype | eprints |
| repository_type | Digital Repository |
| spelling | nottingham-482202020-05-04T19:23:14Z https://eprints.nottingham.ac.uk/48220/ Co-research with adults with Intellectual Disability: a systematic review Di Lorito, Claudio Bosco, Alessandro Birt, Linda Hassiotis, Angela Background. Co-research with people with intellectual disability (ID) is a distinct form of patient and public involvement (PPI). This systematic review summarises published studies and protocols to report on the process of co-research in social and health care research. Method. Relevant studies were identified using electronic searches on ASSIA, PsycInfo and MedLine. Study quality was assessed and information relevant to the process of working with co-researchers was extracted and thematically analysed. Results. Thirteen studies were retrieved. Data are reported under three themes: 1) challenges of co-research; 2) facilitators of co-research; 3) benefits of co-research. Best practice is presented as a model of co-research. Content analysis on 12 research protocols identified four themes related to PPI. Conclusions. All stakeholders involved in co-research with people with ID can benefit, providing there is adequate infrastructure to accommodate and empower the co-researchers. Many current ID research projects still lack systematic involvement of PPI members. Wiley 2017-12-20 Article PeerReviewed Di Lorito, Claudio, Bosco, Alessandro, Birt, Linda and Hassiotis, Angela (2017) Co-research with adults with Intellectual Disability: a systematic review. Journal of Applied Research in Intellectual Disabilities . ISSN 1468-3148 (In Press) Co-research participatory research intellectual disability systematic review patient and public involvement |
| spellingShingle | Co-research participatory research intellectual disability systematic review patient and public involvement Di Lorito, Claudio Bosco, Alessandro Birt, Linda Hassiotis, Angela Co-research with adults with Intellectual Disability: a systematic review |
| title | Co-research with adults with Intellectual Disability: a systematic review |
| title_full | Co-research with adults with Intellectual Disability: a systematic review |
| title_fullStr | Co-research with adults with Intellectual Disability: a systematic review |
| title_full_unstemmed | Co-research with adults with Intellectual Disability: a systematic review |
| title_short | Co-research with adults with Intellectual Disability: a systematic review |
| title_sort | co-research with adults with intellectual disability: a systematic review |
| topic | Co-research participatory research intellectual disability systematic review patient and public involvement |
| url | https://eprints.nottingham.ac.uk/48220/ |