The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and health care providers

QR Code

The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and health care providers

There remain many treatment uncertainties in cystic fibrosis (CF). With limited resources, research should focus on questions which are most important to the CF community. We conducted a James Lind Alliance Priority Setting Partnership in CF. Research questions were elicited and then prioritised in...

Full description

Bibliographic Details
Main Authors:	Rowbotham, Nicola J., Smith, Stuart J., Leighton, Paul, Rayner, Oliver C., Gathercole, K., Elliott, Z.C., Nash, Edward F., Daniels, T., Duff, A.J.A., Collins, S., Chandran, S., Peaple, U., Hurley, M.N., Brownlee, K., Smyth, Alan R.
Format:	Article
Published:	BMJ Publishing Group 2017
Subjects:	Cystic fibrosis Patient engagement Research priorities
Online Access:	https://eprints.nottingham.ac.uk/43772/

Similar Items

Working with the patient and clinical community to deliver clinical research in cystic fibrosis. James Lind CF Phase II
by: Smith, S.J., et al.
Published: (2018)

A systematic review to identify how the current clinical trials landscape reflects the James Lind Alliance top 10 research priorities for cystic fibrosis
by: Kalaitzis, I.S., et al.
Published: (2018)

Delayed publications of clinical trials in cystic fibrosis
by: Hurley, M.N., et al.
Published: (2011)

Results of antibiotic susceptibility testing do not influence clinical outcome in children with cystic fibrosis
by: Hurley, M.N., et al.
Published: (2012)

Glutamine supplementation in cystic fibrosis: a randomized placebo-controlled trial
by: Forrester, Doug L., et al.
Published: (2015)

Rate of improvement of CF life expectancy exceeds that of general population: observational death registration study
by: Hurley, Matthew, et al.
Published: (2014)

European Cystic Fibrosis Society standards of care: best practice guidelines
by: Smyth, Alan R., et al.
Published: (2014)

The pharmacokinetics and toxicity of morning vs. evening tobramycin dosing for pulmonary exacerbations of cystic fibrosis: a randomised comparison
by: Prayle, A.P., et al.
Published: (2015)

Early respiratory bacterial detection and anti-staphylococcal antibiotic prophylaxis in young children with cystic fibrosis
by: Hurley, Matthew, et al.
Published: (2017)

Novel approaches to the treatment of Pseudomonas aeruginosa infections in cystic fibrosis
by: Hurley, M.N., et al.
Published: (2012)

Molecular mechanisms of enhanced expression of the chemokine interleukin 8 (CXCL8) in cystic fibrosis (CF) airway epithelial cells
by: Poghosyan, Anna
Published: (2014)

Understanding the Costs of Care for Cystic Fibrosis: an Analysis by Age and Health State
by: Van Gool, K., et al.
Published: (2013)

Xbox Kinect™ represents high intensity exercise for adults with cystic fibrosis
by: Holmes, H., et al.
Published: (2013)

Interventions for the eradication of meticillin-resistant Staphylococcus aureus (MRSA) in people with cystic fibrosis
by: Smyth, Alan R.
Published: (2015)

Cost-Effectiveness of Carrier Screening for Cystic Fibrosis in Australia
by: Norman, Richard, et al.
Published: (2012)

Measures of body habitus are associated with lung function in adults with cystic fibrosis: a population-based study
by: Forrester, Doug L., et al.
Published: (2013)

High prevalence of subclass-specific binding and neutralizing antibodies against Clostridium difficile toxins in adult cystic fibrosis sera: possible mode of immunoprotection against symptomatic C. difficile infection
by: Monaghan, Tanya M., et al.
Published: (2017)

A phase 3, open-label, randomized trial to evaluate the safety and efficacy of levofloxacin inhalation solution (APT-1026) versus tobramycin inhalation solution in stable cystic fibrosis patients
by: Elborn, J. Stuart, et al.
Published: (2015)

A phase 3, multi-center, multinational, randomized, double-blind, placebo-controlled study to evaluate the efficacy and safety of levofloxacin inhalation solution (APT-1026) in stable cystic fibrosis patients
by: Flume, Patrick, et al.
Published: (2016)

Mitigating the harm caused by Pseudomonas aeruginosa in Cystic Fibrosis
by: Palser, Sally C.
Published: (2024)

Human Genetics Society of Australasia Position Statement: Population-Based Carrier Screening for Cystic Fibrosis
by: Delatycki, M., et al.
Published: (2014)

Prevention of treatment related adverse effects in cystic fibrosis
by: Jain, Kamini
Published: (2018)

Prescribing practices for intravenous aminoglycosides in UK cystic fibrosis clinics: a questionnaire survey
by: Smyth, Alan R., et al.
Published: (2014)

Development of a transition readiness scale for young adults with cystic fibrosis: face and content validity
by: Dudman, Lauren, et al.
Published: (2011)

An evaluation of the High Frequency Digit Triplet Test as a screening tool for early detection of hearing loss in individuals with Cystic Fibrosis. Protocol v2.1.
by: Smyth, Alan R., et al.
Published: (2016)

Scoping review of the literature about family-centred care with caregivers of children with cystic fibrosis
by: Shields, L., et al.
Published: (2013)

Surviving and thriving in the cystic fibrosis lung: contribution of an arginine specific aminopeptidase to sustained infection by Pseudomonas aeruginosa
by: Spencer, Daniella Lucy
Published: (2019)

Antibiotic strategies for eradicating Pseudomonas aeruginosa in people with cystic fibrosis
by: Langton Hewer, Simon C., et al.
Published: (2014)

Study of hyperpolarised 3He MRI diffusion on asthma and cystic fibrosis, and development of hyperpolarised 129Xe MRI lung imaging
by: Hardy, Steven M.
Published: (2016)

Lectin-mediated biofilm maturation, quorum sensing and Pseudomonas aeruginosa infections in cystic fibrosis
by: Crusz, S.A.
Published: (2009)

Preconception risk assessment for thalassaemia, sickle cell disease, cystic fibrosis and Tay-Sachs disease
by: Hussein, Norita, et al.
Published: (2018)

The use of magnetic resonance imaging to elucidate the mechanisms of gastrointestinal symptoms and complications in cystic fibrosis
by: Ng, Christabella
Published: (2022)

Preconception risk assessment for thalassaemia, sickle cell disease, cystic fibrosis and Tay-Sachs disease
by: Hussein, Norita, et al.
Published: (2015)

Identifying peroxidases and their oxidants in the early pathology of cystic fibrosis.
by: Thomson, E., et al.
Published: (2010)

Elucidating the interaction of CF airway epithelial cells and rhinovirus: Using the host-pathogen relationship to identify future therapeutic strategies
by: Ling, K.M., et al.
Published: (2018)

Development, implementation and evaluation of a nutrition education and behaviour program for children with cystc fibrosis.
by: Stapleton, Denise R.
Published: (2001)

The potential of antisense oligonucleotide therapies for inherited childhood lung diseases.
by: Martinovich, K., et al.
Published: (2018)

Respiratory viral infections in Western Australians with cystic fibrosis
by: Brestovac, Brian, et al.
Published: (2020)

Prevalence of ultrasound-determined cystic endometrial hyperplasia and the relationship with age in dogs
by: Moxon, Rachel, et al.
Published: (2016)

Opportunistic bacteria confer the ability to ferment prebiotic starch in the adult cystic fibrosis gut
by: Wang, Y., et al.
Published: (2019)