The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and health care providers
There remain many treatment uncertainties in cystic fibrosis (CF). With limited resources, research should focus on questions which are most important to the CF community. We conducted a James Lind Alliance Priority Setting Partnership in CF. Research questions were elicited and then prioritised in...
| Main Authors: | , , , , , , , , , , , , , , |
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| Format: | Article |
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BMJ Publishing Group
2017
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| Online Access: | https://eprints.nottingham.ac.uk/43772/ |
| _version_ | 1848796765356032000 |
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| author | Rowbotham, Nicola J. Smith, Stuart J. Leighton, Paul Rayner, Oliver C. Gathercole, K. Elliott, Z.C. Nash, Edward F. Daniels, T. Duff, A.J.A. Collins, S. Chandran, S. Peaple, U. Hurley, M.N. Brownlee, K. Smyth, Alan R. |
| author_facet | Rowbotham, Nicola J. Smith, Stuart J. Leighton, Paul Rayner, Oliver C. Gathercole, K. Elliott, Z.C. Nash, Edward F. Daniels, T. Duff, A.J.A. Collins, S. Chandran, S. Peaple, U. Hurley, M.N. Brownlee, K. Smyth, Alan R. |
| author_sort | Rowbotham, Nicola J. |
| building | Nottingham Research Data Repository |
| collection | Online Access |
| description | There remain many treatment uncertainties in cystic fibrosis (CF). With limited resources, research should focus on questions which are most important to the CF community. We conducted a James Lind Alliance Priority Setting Partnership in CF. Research questions were elicited and then prioritised in successive surveys. A workshop agreed the final Top 10. Online methods avoided cross infection and widened participation. The elicitation survey had 482 respondents (1080 questions) and prioritisation survey 677 respondents. Participants were drawn equally from the patient and clinical communities globally. We have achieved a consensus on ten research priorities which will be attractive to funders. |
| first_indexed | 2025-11-14T19:53:11Z |
| format | Article |
| id | nottingham-43772 |
| institution | University of Nottingham Malaysia Campus |
| institution_category | Local University |
| last_indexed | 2025-11-14T19:53:11Z |
| publishDate | 2017 |
| publisher | BMJ Publishing Group |
| recordtype | eprints |
| repository_type | Digital Repository |
| spelling | nottingham-437722020-05-04T18:30:11Z https://eprints.nottingham.ac.uk/43772/ The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and health care providers Rowbotham, Nicola J. Smith, Stuart J. Leighton, Paul Rayner, Oliver C. Gathercole, K. Elliott, Z.C. Nash, Edward F. Daniels, T. Duff, A.J.A. Collins, S. Chandran, S. Peaple, U. Hurley, M.N. Brownlee, K. Smyth, Alan R. There remain many treatment uncertainties in cystic fibrosis (CF). With limited resources, research should focus on questions which are most important to the CF community. We conducted a James Lind Alliance Priority Setting Partnership in CF. Research questions were elicited and then prioritised in successive surveys. A workshop agreed the final Top 10. Online methods avoided cross infection and widened participation. The elicitation survey had 482 respondents (1080 questions) and prioritisation survey 677 respondents. Participants were drawn equally from the patient and clinical communities globally. We have achieved a consensus on ten research priorities which will be attractive to funders. BMJ Publishing Group 2017-01-19 Article PeerReviewed Rowbotham, Nicola J., Smith, Stuart J., Leighton, Paul, Rayner, Oliver C., Gathercole, K., Elliott, Z.C., Nash, Edward F., Daniels, T., Duff, A.J.A., Collins, S., Chandran, S., Peaple, U., Hurley, M.N., Brownlee, K. and Smyth, Alan R. (2017) The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and health care providers. Thorax . ISSN 1468-3296 (In Press) Cystic fibrosis Patient engagement Research priorities |
| spellingShingle | Cystic fibrosis Patient engagement Research priorities Rowbotham, Nicola J. Smith, Stuart J. Leighton, Paul Rayner, Oliver C. Gathercole, K. Elliott, Z.C. Nash, Edward F. Daniels, T. Duff, A.J.A. Collins, S. Chandran, S. Peaple, U. Hurley, M.N. Brownlee, K. Smyth, Alan R. The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and health care providers |
| title | The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and health care providers |
| title_full | The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and health care providers |
| title_fullStr | The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and health care providers |
| title_full_unstemmed | The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and health care providers |
| title_short | The top 10 research priorities in cystic fibrosis developed by a partnership between people with CF and health care providers |
| title_sort | top 10 research priorities in cystic fibrosis developed by a partnership between people with cf and health care providers |
| topic | Cystic fibrosis Patient engagement Research priorities |
| url | https://eprints.nottingham.ac.uk/43772/ |