MotivATE: a pretreatment web-based program to improve attendance at UK outpatient services among adults with eating disorders

Background: In the UK, eating disorders affect upward of 725,000 people per year, and early assessment and treatment are important for patient outcomes. Around a third of adult outpatients in the UK who are referred to specialist eating disorder services do not attend, which could be related to pati...

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Main Authors: Muir, Sarah, Newell, Ciarán, Griffiths, Jess, Walker, Kathy, Hooper, Holly, Thomas, Sarah, Thomas, Peter W., Arcelus, Jon, Day, James, Appleton, Katherine M.
Format: Article
Published: JMIR Publications 2017
Subjects:
Online Access:https://eprints.nottingham.ac.uk/43667/
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author Muir, Sarah
Newell, Ciarán
Griffiths, Jess
Walker, Kathy
Hooper, Holly
Thomas, Sarah
Thomas, Peter W.
Arcelus, Jon
Day, James
Appleton, Katherine M.
author_facet Muir, Sarah
Newell, Ciarán
Griffiths, Jess
Walker, Kathy
Hooper, Holly
Thomas, Sarah
Thomas, Peter W.
Arcelus, Jon
Day, James
Appleton, Katherine M.
author_sort Muir, Sarah
building Nottingham Research Data Repository
collection Online Access
description Background: In the UK, eating disorders affect upward of 725,000 people per year, and early assessment and treatment are important for patient outcomes. Around a third of adult outpatients in the UK who are referred to specialist eating disorder services do not attend, which could be related to patient factors related to ambivalence, fear, and a lack of confidence about change. This lack of engagement has a negative impact on the quality of life of patients and has implications for service costs. Objective: To describe the development of a Web-based program (“MotivATE”) designed for delivery at the point of referral to an eating disorder service, with the aim of increasing service attendance. Methods: We used intervention mapping and a person-based approach to design the MotivATE program and conducted a needs assessment to determine the current impact of service nonattendance on patients (via a review of the qualitative evidence) and services (through a service provision survey to understand current issues in UK services). Following the needs assessment, we followed the five steps of program development outlined by Bartholomew et al (1998): (1) creating a matrix of proximal program objectives; (2) selecting theory-based intervention methods and strategies; (3) designing and organizing the program; (4) specifying adoption and implementation plans; and (5) generating program evaluation plans. Results: The needs assessment identified current nonattendance rates of 10%-32%. We defined the objective of MotivATE as increasing attendance rates at an eating disorder service and considered four key determinants of poor attendance: patient ambivalence about change, low patient self-efficacy, recognition of the need to change, and expectations about assessment. We chose aspects of motivational interviewing, self-determination theory, and the use of patient stories as the most appropriate ways to enable change. Think-aloud piloting with people with lived experience of an eating disorder resulted in positive feedback on the MotivATE program. Participants related well to the stories used. Nonetheless, because of feedback, we further modified the program in line with patients’ stage of change and addressed issues with the language used. A consultation with service staff meant that we could make clear implementation plans. Finally, a randomized controlled trial is currently underway to evaluate the MotivATE program. Conclusions: Using intervention mapping, we have developed a novel pretreatment Web-based program that is acceptable to people with eating disorders. To our knowledge, this is the first such program. The model of development described here could be a useful template for designing further programs for other difficult-to-engage populations.
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spelling nottingham-436672020-05-04T18:57:17Z https://eprints.nottingham.ac.uk/43667/ MotivATE: a pretreatment web-based program to improve attendance at UK outpatient services among adults with eating disorders Muir, Sarah Newell, Ciarán Griffiths, Jess Walker, Kathy Hooper, Holly Thomas, Sarah Thomas, Peter W. Arcelus, Jon Day, James Appleton, Katherine M. Background: In the UK, eating disorders affect upward of 725,000 people per year, and early assessment and treatment are important for patient outcomes. Around a third of adult outpatients in the UK who are referred to specialist eating disorder services do not attend, which could be related to patient factors related to ambivalence, fear, and a lack of confidence about change. This lack of engagement has a negative impact on the quality of life of patients and has implications for service costs. Objective: To describe the development of a Web-based program (“MotivATE”) designed for delivery at the point of referral to an eating disorder service, with the aim of increasing service attendance. Methods: We used intervention mapping and a person-based approach to design the MotivATE program and conducted a needs assessment to determine the current impact of service nonattendance on patients (via a review of the qualitative evidence) and services (through a service provision survey to understand current issues in UK services). Following the needs assessment, we followed the five steps of program development outlined by Bartholomew et al (1998): (1) creating a matrix of proximal program objectives; (2) selecting theory-based intervention methods and strategies; (3) designing and organizing the program; (4) specifying adoption and implementation plans; and (5) generating program evaluation plans. Results: The needs assessment identified current nonattendance rates of 10%-32%. We defined the objective of MotivATE as increasing attendance rates at an eating disorder service and considered four key determinants of poor attendance: patient ambivalence about change, low patient self-efficacy, recognition of the need to change, and expectations about assessment. We chose aspects of motivational interviewing, self-determination theory, and the use of patient stories as the most appropriate ways to enable change. Think-aloud piloting with people with lived experience of an eating disorder resulted in positive feedback on the MotivATE program. Participants related well to the stories used. Nonetheless, because of feedback, we further modified the program in line with patients’ stage of change and addressed issues with the language used. A consultation with service staff meant that we could make clear implementation plans. Finally, a randomized controlled trial is currently underway to evaluate the MotivATE program. Conclusions: Using intervention mapping, we have developed a novel pretreatment Web-based program that is acceptable to people with eating disorders. To our knowledge, this is the first such program. The model of development described here could be a useful template for designing further programs for other difficult-to-engage populations. JMIR Publications 2017-07-26 Article PeerReviewed Muir, Sarah, Newell, Ciarán, Griffiths, Jess, Walker, Kathy, Hooper, Holly, Thomas, Sarah, Thomas, Peter W., Arcelus, Jon, Day, James and Appleton, Katherine M. (2017) MotivATE: a pretreatment web-based program to improve attendance at UK outpatient services among adults with eating disorders. JMIR Research Protocols, 6 (7). e146/1-e146/11. ISSN 1929-0748 Program Development; Program Evaluation; Internet; Patient Acceptance of Health Care; Assessment Process; Feeding and Eating Disorders; Anorexia Nervosa; Bulimia Nervosa; Binge-Eating Disorder. http://www.researchprotocols.org/2017/7/e146/ doi:10.2196/resprot.7440 doi:10.2196/resprot.7440
spellingShingle Program Development; Program Evaluation; Internet; Patient Acceptance of Health Care; Assessment
Process; Feeding and Eating Disorders; Anorexia Nervosa; Bulimia Nervosa; Binge-Eating Disorder.
Muir, Sarah
Newell, Ciarán
Griffiths, Jess
Walker, Kathy
Hooper, Holly
Thomas, Sarah
Thomas, Peter W.
Arcelus, Jon
Day, James
Appleton, Katherine M.
MotivATE: a pretreatment web-based program to improve attendance at UK outpatient services among adults with eating disorders
title MotivATE: a pretreatment web-based program to improve attendance at UK outpatient services among adults with eating disorders
title_full MotivATE: a pretreatment web-based program to improve attendance at UK outpatient services among adults with eating disorders
title_fullStr MotivATE: a pretreatment web-based program to improve attendance at UK outpatient services among adults with eating disorders
title_full_unstemmed MotivATE: a pretreatment web-based program to improve attendance at UK outpatient services among adults with eating disorders
title_short MotivATE: a pretreatment web-based program to improve attendance at UK outpatient services among adults with eating disorders
title_sort motivate: a pretreatment web-based program to improve attendance at uk outpatient services among adults with eating disorders
topic Program Development; Program Evaluation; Internet; Patient Acceptance of Health Care; Assessment
Process; Feeding and Eating Disorders; Anorexia Nervosa; Bulimia Nervosa; Binge-Eating Disorder.
url https://eprints.nottingham.ac.uk/43667/
https://eprints.nottingham.ac.uk/43667/
https://eprints.nottingham.ac.uk/43667/