The use of an online support group for neuromuscular disorders: a thematic analysis of message postings

QR Code

The use of an online support group for neuromuscular disorders: a thematic analysis of message postings

Purpose: People affected by neuromuscular disorders can experience adverse psychosocial consequences and difficulties accessing information and support. Online support groups provide new opportunities for peer support. The aim of this study was to understand how contributors used the message board f...

Full description

Bibliographic Details
Main Authors:	Meade, Oonagh, Buchanan, Heather, Coulson, Neil S.
Format:	Article
Published:	Taylor & Francis 2017
Subjects:	online forum; peer support; member interactions; qualitative analysis; NMDs; rare illness
Online Access:	https://eprints.nottingham.ac.uk/43265/

Similar Items

A practical guide to analysing online support forums
by: Smedley, Richard, et al.
Published: (2018)

A thematic analysis of messages posted by moderators within health-related asynchronous online support forums
by: Smedley, Richard M., et al.
Published: (2017)

A qualitative investigation of the impact of peer to peer online support for women living with Polycystic Ovary Syndrome
by: Holbrey, Sarah, et al.
Published: (2013)

Accessing dental anxiety online support groups: An exploratory qualitative study of motives and experiences
by: Buchanan, Heather, et al.

Social support in cyberspace: A content analysis of communication within a Huntington’s Disease online support group
by: Coulson, Neil S., et al.
Published: (2007)

Members’ experiences of a neuromuscular disorder online support group
by: Meade, Oonagh
Published: (2013)

Exploring the therapeutic affordances of self-harm online support communities: an online survey of members
by: Coulson, Neil S., et al.
Published: (2017)

Online social support for complex regional pain syndrome
by: Smedley, Richard
Published: (2016)

The pros and cons of getting engaged in an online social community embedded within digital cognitive behavioral therapy for insomnia: survey among users
by: Coulson, Neil S., et al.
Published: (2016)

Experiences of family carers of people with cancer receiving home-based end-of-life care services
by: Sharaf, Ahmed Khamis
Published: (2023)

Online peer support groups for individuals with Type 2 diabetes mellitus: an exploratory mixed-methods study
by: Muslihi, Abdulrahman
Published: (2024)

Engagement in a newly launched online support community for complex regional pain syndrome: membership growth, header analysis and introductory messages
by: Smedley, Richard, et al.
Published: (2016)

Interactive online learning support: Progress on research to date
by: Quinton, Stephen
Published: (2007)

Therapeutic affordances of online support group use in women with endometriosis
by: Shoebotham, Amie, et al.
Published: (2016)

Changing the Conversation: Facebook as a Venue for Online Class Discussion in Higher Education
by: Kent, Mike
Published: (2013)

Disability, Obesity and Ageing: Popular Media Identifications
by: Rodan, D., et al.
Published: (2014)

A methodology for determining riskiness in peer-to-peer communication
by: Hussain, Omar, et al.
Published: (2005)

The impact of cooperative learning on pupils’ peer acceptance and perceptions of peer support
by: Smith, Helen
Published: (2017)

Are online support groups always beneficial? A qualitative exploration of the empowering and disempowering processes of participation within HIV/AIDS-related online support groups
by: Mo, Phoenix K.H., et al.
Published: (2014)

Effectiveness and experiences of families participating in peer led parenting support programs delivered as home visiting programs and the meaning they attribute to these support programs: a systematic review protocol
by: Munns, Ailsa, et al.
Published: (2014)

Online social support for Complex Regional Pain Syndrome: a content analysis of support exchanges within a newly launched discussion forum
by: Smedley, Richard M., et al.
Published: (2015)

Cost-effectiveness of structured group psychoeducation versus unstructured group support for bipolar disorder: results from a multi-centre pragmatic randomised controlled trial
by: Camacho, E.M., et al.
Published: (2017)

Semi-Automatic Information Extraction from Discussion Boards with Applications for Anti-Spam Technology
by: Sarencheh, S., et al.
Published: (2010)

A methodology for risk measurement in e-transactions
by: Hussain, Omar, et al.
Published: (2006)

Intercultural Interactions: Understanding the Perspectives of University Staff Members, International and Domestic Students
by: Harryba, S., et al.
Published: (2013)

Hybridflood algorithms minimizing redundant messages and maximizing efficiency of search in unstructured P2P networks
by: Barjini, Hassan
Published: (2012)

The Development of an On-line Submission and Peer Review System
by: Pavey, Paul, et al.
Published: (2000)

"Victim, survivor, thriver": An exploration of the perceptions and experiences of females previously affiliated with gangs
by: Lowe, Olivia
Published: (2022)

Direct to public peer support and e-therapy program versus information to aid self-management of depression and anxiety: protocol for a randomized controlled trial
by: Kaylor-Hughes, Catherine, et al.
Published: (2017)

Discussing illicit drugs in public internet forums: Visibility, stigma, and pseudonymity.
by: Barratt, Monica
Published: (2011)

The impact of breastfeeding peer support for mothers aged under 25: a time series analysis
by: Scott, Sarah, et al.
Published: (2016)

‘The system is mad making’: peer support and the institutional context of an NHS mental health service
by: Watson, Emma
Published: (2020)

POSSAY Project Final Report
by: Lobo, Roanna, et al.
Published: (2006)

Synthesis Optimization and Extraction of Rare Earth Metal Ions by Poly (N - Methylhydroxamic Acid) Resin
by: Balci, Seckin
Published: (1998)

Measuring Malaysian public perception with secret-eye / Siti Zaleha Zainal Abidin, Nasiroh Omar and M. Hamiz M. Radzi
by: Zainal Abidin, Siti Zaleha, et al.
Published: (2011)

The development of synchronous text-based instant messaging as an online interviewing tool
by: Pearce, G., et al.
Published: (2014)

A qualitative systematic review on the experiences of self-management in community-dwelling older women living with chronic illnesses
by: Tay, Z., et al.
Published: (2011)

Evaluation of trained volunteer doula services for disadvantaged women in five areas in England: women's experiences
by: Darwin, Zoe, et al.
Published: (2016)

Understanding the psychosocial experiences of adults with mild-moderate hearing loss: an application of Leventhal’s self-regulatory model
by: Heffernan, Eithne, et al.
Published: (2016)

NGS: An application layer network game simulator
by: Webb, Steven, et al.
Published: (2006)