The development and validation of the Dementia Quality of Life Scale for Older Family Carers (DQoL-OC)

Purpose: Little is known about how caregiving affects the quality of life (QoL) of older family carers and no dementia and age-specific QoL scale is available for use with this population. This study aimed to develop and validate a unique dementia caregiving- and age-specific tool – the ‘Dementia Qu...

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Main Authors: De Oliveira, Deborah Christina, Vass, Catherine D., Aubeeluck, Aimee
Format: Article
Published: Taylor & Francis 2017
Subjects:
Online Access:https://eprints.nottingham.ac.uk/41110/
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author De Oliveira, Deborah Christina
Vass, Catherine D.
Aubeeluck, Aimee
author_facet De Oliveira, Deborah Christina
Vass, Catherine D.
Aubeeluck, Aimee
author_sort De Oliveira, Deborah Christina
building Nottingham Research Data Repository
collection Online Access
description Purpose: Little is known about how caregiving affects the quality of life (QoL) of older family carers and no dementia and age-specific QoL scale is available for use with this population. This study aimed to develop and validate a unique dementia caregiving- and age-specific tool – the ‘Dementia Quality of Life Scale for Older Family Carers’ (DQoL-OC). Methods: The scale items were identified in focus groups with older family carers in the UK. Content and face validity were evaluated by a panel of six experts. A set of 100 items assessed on a 5-point Likert scale was tested with 182 older family carers. Test–re-test reliability was conducted with 18 individuals. Exploratory factor analysis was used to identify the QoL model and reduce the number of scale items. Convergent construct validity and internal consistency were also established. Results: A one-factor solution containing 22 items was obtained. Test–re-test reliability (lower bound r = 0.835; p < 0.001), internal consistency (Cronbach's α = 0.936), and convergent construct validity were established. Significantly lower levels of QoL were found in female older carers; those who perceived their relatives with dementia as being at the earlier stages of the disease and with unstable dementia symptoms; those providing care more hours per day and more days per week; and those in younger-old age. Conclusions: The DQoL-OC is a valid and reliable scale that will be useful for research and in clinical practice with older family carers of people with dementia. These study results will inform future health and social care aiming to improve life quality for this overlooked population of carers.
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spelling nottingham-411102020-05-04T18:36:26Z https://eprints.nottingham.ac.uk/41110/ The development and validation of the Dementia Quality of Life Scale for Older Family Carers (DQoL-OC) De Oliveira, Deborah Christina Vass, Catherine D. Aubeeluck, Aimee Purpose: Little is known about how caregiving affects the quality of life (QoL) of older family carers and no dementia and age-specific QoL scale is available for use with this population. This study aimed to develop and validate a unique dementia caregiving- and age-specific tool – the ‘Dementia Quality of Life Scale for Older Family Carers’ (DQoL-OC). Methods: The scale items were identified in focus groups with older family carers in the UK. Content and face validity were evaluated by a panel of six experts. A set of 100 items assessed on a 5-point Likert scale was tested with 182 older family carers. Test–re-test reliability was conducted with 18 individuals. Exploratory factor analysis was used to identify the QoL model and reduce the number of scale items. Convergent construct validity and internal consistency were also established. Results: A one-factor solution containing 22 items was obtained. Test–re-test reliability (lower bound r = 0.835; p < 0.001), internal consistency (Cronbach's α = 0.936), and convergent construct validity were established. Significantly lower levels of QoL were found in female older carers; those who perceived their relatives with dementia as being at the earlier stages of the disease and with unstable dementia symptoms; those providing care more hours per day and more days per week; and those in younger-old age. Conclusions: The DQoL-OC is a valid and reliable scale that will be useful for research and in clinical practice with older family carers of people with dementia. These study results will inform future health and social care aiming to improve life quality for this overlooked population of carers. Taylor & Francis 2017-03-02 Article PeerReviewed De Oliveira, Deborah Christina, Vass, Catherine D. and Aubeeluck, Aimee (2017) The development and validation of the Dementia Quality of Life Scale for Older Family Carers (DQoL-OC). Aging and Mental Health . ISSN 1364-6915 Quality of life Caregivers Dementia Psychometrics Rating scale http://www.tandfonline.com/doi/full/10.1080/13607863.2017.1293004 doi:10.1080/13607863.2017.1293004 doi:10.1080/13607863.2017.1293004
spellingShingle Quality of life
Caregivers
Dementia
Psychometrics
Rating scale
De Oliveira, Deborah Christina
Vass, Catherine D.
Aubeeluck, Aimee
The development and validation of the Dementia Quality of Life Scale for Older Family Carers (DQoL-OC)
title The development and validation of the Dementia Quality of Life Scale for Older Family Carers (DQoL-OC)
title_full The development and validation of the Dementia Quality of Life Scale for Older Family Carers (DQoL-OC)
title_fullStr The development and validation of the Dementia Quality of Life Scale for Older Family Carers (DQoL-OC)
title_full_unstemmed The development and validation of the Dementia Quality of Life Scale for Older Family Carers (DQoL-OC)
title_short The development and validation of the Dementia Quality of Life Scale for Older Family Carers (DQoL-OC)
title_sort development and validation of the dementia quality of life scale for older family carers (dqol-oc)
topic Quality of life
Caregivers
Dementia
Psychometrics
Rating scale
url https://eprints.nottingham.ac.uk/41110/
https://eprints.nottingham.ac.uk/41110/
https://eprints.nottingham.ac.uk/41110/