Is it acceptable to video-record palliative care consultations for research and training purposes?: a qualitative interview study exploring the views of hospice patients, carers and clinical staff

Background: Research using video recordings can advance understanding of healthcare communication and improve care, but making and using video recordings carries risks. Aim: To explore views of hospice patients, carers and clinical staff about whether videoing patient–doctor consultations is...

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Main Authors: Pino, Marco, Parry, Ruth, Feathers, Luke, Faull, Christina
Format: Article
Published: SAGE 2017
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Online Access:https://eprints.nottingham.ac.uk/41055/
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author Pino, Marco
Parry, Ruth
Feathers, Luke
Faull, Christina
author_facet Pino, Marco
Parry, Ruth
Feathers, Luke
Faull, Christina
author_sort Pino, Marco
building Nottingham Research Data Repository
collection Online Access
description Background: Research using video recordings can advance understanding of healthcare communication and improve care, but making and using video recordings carries risks. Aim: To explore views of hospice patients, carers and clinical staff about whether videoing patient–doctor consultations is acceptable for research and training purposes. Design: We used semi-structured group and individual interviews to gather hospice patients, carers and clinical staff views. We used Braun and Clark’s thematic analysis. Setting/participants: Interviews were conducted at one English hospice to inform the development of a larger video-based study. We invited patients with capacity to consent and whom the care team judged were neither acutely unwell nor severely distressed (11), carers of current or past patients (5), palliative medicine doctors (7), senior nurses (4) and communication skills educators (5). Results: Participants viewed video-based research on communication as valuable because of its potential to improve communication, care and staff training. Video-based research raised concerns including its potential to affect the nature and content of the consultation and threats to confidentiality; however, these were not seen as sufficient grounds for rejecting video-based research. Video-based research was seen as acceptable and useful providing that measures are taken to reduce possible risks across the recruitment, recording and dissemination phases of the research process. Conclusion: Video-based research is an acceptable and worthwhile way of investigating communication in palliative medicine. Situated judgements should be made about when it is appropriate to involve individual patients and carers in video-based research on the basis of their level of vulnerability and ability to freely consent.
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spelling nottingham-410552020-05-04T19:03:47Z https://eprints.nottingham.ac.uk/41055/ Is it acceptable to video-record palliative care consultations for research and training purposes?: a qualitative interview study exploring the views of hospice patients, carers and clinical staff Pino, Marco Parry, Ruth Feathers, Luke Faull, Christina Background: Research using video recordings can advance understanding of healthcare communication and improve care, but making and using video recordings carries risks. Aim: To explore views of hospice patients, carers and clinical staff about whether videoing patient–doctor consultations is acceptable for research and training purposes. Design: We used semi-structured group and individual interviews to gather hospice patients, carers and clinical staff views. We used Braun and Clark’s thematic analysis. Setting/participants: Interviews were conducted at one English hospice to inform the development of a larger video-based study. We invited patients with capacity to consent and whom the care team judged were neither acutely unwell nor severely distressed (11), carers of current or past patients (5), palliative medicine doctors (7), senior nurses (4) and communication skills educators (5). Results: Participants viewed video-based research on communication as valuable because of its potential to improve communication, care and staff training. Video-based research raised concerns including its potential to affect the nature and content of the consultation and threats to confidentiality; however, these were not seen as sufficient grounds for rejecting video-based research. Video-based research was seen as acceptable and useful providing that measures are taken to reduce possible risks across the recruitment, recording and dissemination phases of the research process. Conclusion: Video-based research is an acceptable and worthwhile way of investigating communication in palliative medicine. Situated judgements should be made about when it is appropriate to involve individual patients and carers in video-based research on the basis of their level of vulnerability and ability to freely consent. SAGE 2017-09-01 Article PeerReviewed Pino, Marco, Parry, Ruth, Feathers, Luke and Faull, Christina (2017) Is it acceptable to video-record palliative care consultations for research and training purposes?: a qualitative interview study exploring the views of hospice patients, carers and clinical staff. Palliative Medicine, 31 (8). pp. 707-715. ISSN 1477-030X Communication method acceptability palliative medicine stakeholder consultation video recording http://journals.sagepub.com/doi/10.1177/0269216317696419 doi:10.1177/0269216317696419 doi:10.1177/0269216317696419
spellingShingle Communication
method acceptability
palliative medicine
stakeholder consultation
video recording
Pino, Marco
Parry, Ruth
Feathers, Luke
Faull, Christina
Is it acceptable to video-record palliative care consultations for research and training purposes?: a qualitative interview study exploring the views of hospice patients, carers and clinical staff
title Is it acceptable to video-record palliative care consultations for research and training purposes?: a qualitative interview study exploring the views of hospice patients, carers and clinical staff
title_full Is it acceptable to video-record palliative care consultations for research and training purposes?: a qualitative interview study exploring the views of hospice patients, carers and clinical staff
title_fullStr Is it acceptable to video-record palliative care consultations for research and training purposes?: a qualitative interview study exploring the views of hospice patients, carers and clinical staff
title_full_unstemmed Is it acceptable to video-record palliative care consultations for research and training purposes?: a qualitative interview study exploring the views of hospice patients, carers and clinical staff
title_short Is it acceptable to video-record palliative care consultations for research and training purposes?: a qualitative interview study exploring the views of hospice patients, carers and clinical staff
title_sort is it acceptable to video-record palliative care consultations for research and training purposes?: a qualitative interview study exploring the views of hospice patients, carers and clinical staff
topic Communication
method acceptability
palliative medicine
stakeholder consultation
video recording
url https://eprints.nottingham.ac.uk/41055/
https://eprints.nottingham.ac.uk/41055/
https://eprints.nottingham.ac.uk/41055/