Understanding the care.data conundrum: new information flows for economic growth
The analysis of data from electronic health records aspires to facilitate healthcare efficiencies and biomedical innovation. There are also ethical, legal and social implications from the handling of sensitive patient information. The paper explores the concerns, expectations and implications of the...
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| Format: | Article |
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Sage
2017
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| Online Access: | https://eprints.nottingham.ac.uk/40458/ |
| _version_ | 1848796062000611328 |
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| author | Vezyridis, Paraskevas Timmons, Stephen |
| author_facet | Vezyridis, Paraskevas Timmons, Stephen |
| author_sort | Vezyridis, Paraskevas |
| building | Nottingham Research Data Repository |
| collection | Online Access |
| description | The analysis of data from electronic health records aspires to facilitate healthcare efficiencies and biomedical innovation. There are also ethical, legal and social implications from the handling of sensitive patient information. The paper explores the concerns, expectations and implications of the National Health Service (NHS) England care.data programme: a national data sharing initiative of linked electronic health records for healthcare and other research purposes. Using Nissenbaum’s contextual integrity of privacy framework through a critical science and technology studies (STS) lens, it examines the way technologies and policies are developed to promote sustainability, governance and economic growth as the de facto social values, while reducing privacy to an individualistic preference. The state, acting as a new, central data broker reappropriates public ownership rights and establishes those information flows and transmission principles that facilitate the assetisation of NHS datasets for the knowledge economy. Various actors and processes from other contexts attempt to erode the public healthcare sector and privilege new information recipients. However, such data sharing initiatives in healthcare will be resisted if we continue to focus only on the monetary and scientific values of these datasets and keep ignoring their equally important social and ethical values. |
| first_indexed | 2025-11-14T19:42:00Z |
| format | Article |
| id | nottingham-40458 |
| institution | University of Nottingham Malaysia Campus |
| institution_category | Local University |
| last_indexed | 2025-11-14T19:42:00Z |
| publishDate | 2017 |
| publisher | Sage |
| recordtype | eprints |
| repository_type | Digital Repository |
| spelling | nottingham-404582020-05-04T18:23:14Z https://eprints.nottingham.ac.uk/40458/ Understanding the care.data conundrum: new information flows for economic growth Vezyridis, Paraskevas Timmons, Stephen The analysis of data from electronic health records aspires to facilitate healthcare efficiencies and biomedical innovation. There are also ethical, legal and social implications from the handling of sensitive patient information. The paper explores the concerns, expectations and implications of the National Health Service (NHS) England care.data programme: a national data sharing initiative of linked electronic health records for healthcare and other research purposes. Using Nissenbaum’s contextual integrity of privacy framework through a critical science and technology studies (STS) lens, it examines the way technologies and policies are developed to promote sustainability, governance and economic growth as the de facto social values, while reducing privacy to an individualistic preference. The state, acting as a new, central data broker reappropriates public ownership rights and establishes those information flows and transmission principles that facilitate the assetisation of NHS datasets for the knowledge economy. Various actors and processes from other contexts attempt to erode the public healthcare sector and privilege new information recipients. However, such data sharing initiatives in healthcare will be resisted if we continue to focus only on the monetary and scientific values of these datasets and keep ignoring their equally important social and ethical values. Sage 2017-01-01 Article PeerReviewed Vezyridis, Paraskevas and Timmons, Stephen (2017) Understanding the care.data conundrum: new information flows for economic growth. Big Data and Society . pp. 1-12. ISSN 2053-9517 NHS consent care.data ethics contextual integrity assetisation http://journals.sagepub.com/doi/10.1177/2053951716688490 doi:10.1177/2053951716688490 doi:10.1177/2053951716688490 |
| spellingShingle | NHS consent care.data ethics contextual integrity assetisation Vezyridis, Paraskevas Timmons, Stephen Understanding the care.data conundrum: new information flows for economic growth |
| title | Understanding the care.data conundrum: new information flows for economic growth |
| title_full | Understanding the care.data conundrum: new information flows for economic growth |
| title_fullStr | Understanding the care.data conundrum: new information flows for economic growth |
| title_full_unstemmed | Understanding the care.data conundrum: new information flows for economic growth |
| title_short | Understanding the care.data conundrum: new information flows for economic growth |
| title_sort | understanding the care.data conundrum: new information flows for economic growth |
| topic | NHS consent care.data ethics contextual integrity assetisation |
| url | https://eprints.nottingham.ac.uk/40458/ https://eprints.nottingham.ac.uk/40458/ https://eprints.nottingham.ac.uk/40458/ |