Suffering with dementia: the other side of "living well"

In this editorial, we challenge the current understanding of “Living Well with Dementia.” Such discourse introduces the possibility of not living well with the condition or even of “living badly with dementia.” Numerous words might be relevant here – grief, pain, anguish, depression – but in this ed...

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Main Authors: Bartlett, Ruth, Windemuth-Wolfson, Lore, Oliver, Keith, Dening, Tom
Format: Article
Published: Cambridge University Press 2017
Online Access:https://eprints.nottingham.ac.uk/40284/
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author Bartlett, Ruth
Windemuth-Wolfson, Lore
Oliver, Keith
Dening, Tom
author_facet Bartlett, Ruth
Windemuth-Wolfson, Lore
Oliver, Keith
Dening, Tom
author_sort Bartlett, Ruth
building Nottingham Research Data Repository
collection Online Access
description In this editorial, we challenge the current understanding of “Living Well with Dementia.” Such discourse introduces the possibility of not living well with the condition or even of “living badly with dementia.” Numerous words might be relevant here – grief, pain, anguish, depression – but in this editorial we consciously use the word “suffering.” This term is used for two reasons; one, because it captures the attributes of other more limited words, and, two because the language of “suffering” is contentious, making it suitable for debate. We speak of suffering, not to deny the positive aspects of life with dementia or to concentrate just on the negative, but to redress the balance that is disturbed by a relentlessly positive view of living with the condition. Our aim is to promote a more realistic understanding of the dementia experience, one based on actualities and evidence rather than presumption and sentiment.
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spelling nottingham-402842020-05-04T18:27:54Z https://eprints.nottingham.ac.uk/40284/ Suffering with dementia: the other side of "living well" Bartlett, Ruth Windemuth-Wolfson, Lore Oliver, Keith Dening, Tom In this editorial, we challenge the current understanding of “Living Well with Dementia.” Such discourse introduces the possibility of not living well with the condition or even of “living badly with dementia.” Numerous words might be relevant here – grief, pain, anguish, depression – but in this editorial we consciously use the word “suffering.” This term is used for two reasons; one, because it captures the attributes of other more limited words, and, two because the language of “suffering” is contentious, making it suitable for debate. We speak of suffering, not to deny the positive aspects of life with dementia or to concentrate just on the negative, but to redress the balance that is disturbed by a relentlessly positive view of living with the condition. Our aim is to promote a more realistic understanding of the dementia experience, one based on actualities and evidence rather than presumption and sentiment. Cambridge University Press 2017-02-01 Article PeerReviewed Bartlett, Ruth, Windemuth-Wolfson, Lore, Oliver, Keith and Dening, Tom (2017) Suffering with dementia: the other side of "living well". International Psychogeriatrics, 29 (02). pp. 177-179. ISSN 1741-203X https://www.cambridge.org/core/journals/international-psychogeriatrics/article/div-classtitlesuffering-with-dementia-the-other-side-of-living-welldiv/2D634B9FA92CAF739B39E6BBFF9345FA doi:10.1017/S104161021600199X doi:10.1017/S104161021600199X
spellingShingle Bartlett, Ruth
Windemuth-Wolfson, Lore
Oliver, Keith
Dening, Tom
Suffering with dementia: the other side of "living well"
title Suffering with dementia: the other side of "living well"
title_full Suffering with dementia: the other side of "living well"
title_fullStr Suffering with dementia: the other side of "living well"
title_full_unstemmed Suffering with dementia: the other side of "living well"
title_short Suffering with dementia: the other side of "living well"
title_sort suffering with dementia: the other side of "living well"
url https://eprints.nottingham.ac.uk/40284/
https://eprints.nottingham.ac.uk/40284/
https://eprints.nottingham.ac.uk/40284/