Power, ethics, and person-centred care: using ethnography to examine the everyday practices of unregistered dementia care staff

The social positioning and treatment of persons with dementia reflects dominant biomedical discourses of progressive and inevitable loss of insight, capacity, and personality. Proponents of person-centred care, by contrast, suggest that such loss can be mitigated within environments that preserve ra...

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Main Authors: Scales, Kezia, Bailey, Simon, Schneider, Justine M.
Format: Article
Published: Blackwell Publishing 2017
Subjects:
Online Access:https://eprints.nottingham.ac.uk/37374/
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author Scales, Kezia
Bailey, Simon
Schneider, Justine M.
author_facet Scales, Kezia
Bailey, Simon
Schneider, Justine M.
author_sort Scales, Kezia
building Nottingham Research Data Repository
collection Online Access
description The social positioning and treatment of persons with dementia reflects dominant biomedical discourses of progressive and inevitable loss of insight, capacity, and personality. Proponents of person-centred care, by contrast, suggest that such loss can be mitigated within environments that preserve rather than undermine personhood. In institutional settings, person-centred approaches place particular emphasis on ‘empowering’ unregistered care staff to translate this idea into practice. These staff provide the majority of hands-on care, but with limited training, recognition, or remuneration. Working within a Foucauldian understanding of power and the ethical constitution of subjects, this paper examines the complex ways that dementia care staff engage with their own ‘dis/empowerment’ in everyday practice. The findings, which are drawn from ethnographic studies of three National Health Service (NHS) wards and one private care home in England, are presented as a narrative exploration of carers’ general experience of powerlessness, their inversion of this marginalised subject positioning, and the related possibilities for action. By examining the daily dilemmas that care staff navigate, this paper contributes to our understanding of the complex risks and responsibilities entailed in direct care work, with implications for the provision of ethical and person-centred dementia care.
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spelling nottingham-373742020-05-04T18:35:39Z https://eprints.nottingham.ac.uk/37374/ Power, ethics, and person-centred care: using ethnography to examine the everyday practices of unregistered dementia care staff Scales, Kezia Bailey, Simon Schneider, Justine M. The social positioning and treatment of persons with dementia reflects dominant biomedical discourses of progressive and inevitable loss of insight, capacity, and personality. Proponents of person-centred care, by contrast, suggest that such loss can be mitigated within environments that preserve rather than undermine personhood. In institutional settings, person-centred approaches place particular emphasis on ‘empowering’ unregistered care staff to translate this idea into practice. These staff provide the majority of hands-on care, but with limited training, recognition, or remuneration. Working within a Foucauldian understanding of power and the ethical constitution of subjects, this paper examines the complex ways that dementia care staff engage with their own ‘dis/empowerment’ in everyday practice. The findings, which are drawn from ethnographic studies of three National Health Service (NHS) wards and one private care home in England, are presented as a narrative exploration of carers’ general experience of powerlessness, their inversion of this marginalised subject positioning, and the related possibilities for action. By examining the daily dilemmas that care staff navigate, this paper contributes to our understanding of the complex risks and responsibilities entailed in direct care work, with implications for the provision of ethical and person-centred dementia care. Blackwell Publishing 2017-02-08 Article PeerReviewed Scales, Kezia, Bailey, Simon and Schneider, Justine M. (2017) Power, ethics, and person-centred care: using ethnography to examine the everyday practices of unregistered dementia care staff. Sociology of Health and Illness, 39 (2). pp. 227-243. ISSN 1467-9566 ethnography care work dementia Foucault nursing empowerment http://onlinelibrary.wiley.com/doi/10.1111/1467-9566.12524/full doi:10.1111/1467-9566.12524 doi:10.1111/1467-9566.12524
spellingShingle ethnography
care work
dementia
Foucault
nursing
empowerment
Scales, Kezia
Bailey, Simon
Schneider, Justine M.
Power, ethics, and person-centred care: using ethnography to examine the everyday practices of unregistered dementia care staff
title Power, ethics, and person-centred care: using ethnography to examine the everyday practices of unregistered dementia care staff
title_full Power, ethics, and person-centred care: using ethnography to examine the everyday practices of unregistered dementia care staff
title_fullStr Power, ethics, and person-centred care: using ethnography to examine the everyday practices of unregistered dementia care staff
title_full_unstemmed Power, ethics, and person-centred care: using ethnography to examine the everyday practices of unregistered dementia care staff
title_short Power, ethics, and person-centred care: using ethnography to examine the everyday practices of unregistered dementia care staff
title_sort power, ethics, and person-centred care: using ethnography to examine the everyday practices of unregistered dementia care staff
topic ethnography
care work
dementia
Foucault
nursing
empowerment
url https://eprints.nottingham.ac.uk/37374/
https://eprints.nottingham.ac.uk/37374/
https://eprints.nottingham.ac.uk/37374/