Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management

Objective: the aim of this study is to co-create an evidence-based and theoretically informed web-based intervention (RESTORE) designed to enhance self-efficacy to live with cancer-related fatigue (CRF) following primary cancer treatment. Methods: a nine-step process informed the development of t...

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Main Authors: Foster, Claire, Calman, Lynn, Grimmett, Chloe, Breckons, M., Cotterell, P., Yardley, Lucy, Joseph, J., Hughes, S., Jones, R., Leonidou, C., Armes, Jo, Batehup, Lynn, Corner, Jessica, Fenlon, Deborah, Lennan, E., Morris, C., Neylon, A, Ream, E., Turner, L., Richardson, A.
Format: Article
Published: Wiley 2015
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Online Access:https://eprints.nottingham.ac.uk/32438/
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author Foster, Claire
Calman, Lynn
Grimmett, Chloe
Breckons, M.
Cotterell, P.
Yardley, Lucy
Joseph, J.
Hughes, S.
Jones, R.
Leonidou, C.
Armes, Jo
Batehup, Lynn
Corner, Jessica
Fenlon, Deborah
Lennan, E.
Morris, C.
Neylon, A
Ream, E.
Turner, L.
Richardson, A.
author_facet Foster, Claire
Calman, Lynn
Grimmett, Chloe
Breckons, M.
Cotterell, P.
Yardley, Lucy
Joseph, J.
Hughes, S.
Jones, R.
Leonidou, C.
Armes, Jo
Batehup, Lynn
Corner, Jessica
Fenlon, Deborah
Lennan, E.
Morris, C.
Neylon, A
Ream, E.
Turner, L.
Richardson, A.
author_sort Foster, Claire
building Nottingham Research Data Repository
collection Online Access
description Objective: the aim of this study is to co-create an evidence-based and theoretically informed web-based intervention (RESTORE) designed to enhance self-efficacy to live with cancer-related fatigue (CRF) following primary cancer treatment. Methods: a nine-step process informed the development of the intervention: (1) review of empirical literature; (2) review of existing patient resources; (3) establish theoretical framework; (4) establish design team with expertise in web-based interventions, CRF and people affected by cancer; (5) develop prototype intervention; (6) user testing phase 1; (7) refinement of prototype; (8) user testing phase 2; and (9) develop final intervention. Results: key stakeholders made a critical contribution at every step of intervention development, and user testing, which involved an iterative process and resulted in the final intervention. The RESTORE intervention has five sessions; sessions 1 and 2 include an introduction to CRF and goal setting. Sessions 3–5 can be tailored to user preference and are designed to cover areas of life where CRF may have an impact: home and work life, personal relationships and emotional adjustment. Conclusions: it is feasible to systematically ‘co-create’ an evidence-based and theory-driven web-based self-management intervention to support cancer survivors living with the consequences of cancer and its treatment. This is the first account of the development of a web-based intervention to support self-efficacy to manage CRF. An exploratory trial to test the feasibility and acceptability of RESTORE is now warranted
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spelling nottingham-324382020-05-04T20:07:48Z https://eprints.nottingham.ac.uk/32438/ Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management Foster, Claire Calman, Lynn Grimmett, Chloe Breckons, M. Cotterell, P. Yardley, Lucy Joseph, J. Hughes, S. Jones, R. Leonidou, C. Armes, Jo Batehup, Lynn Corner, Jessica Fenlon, Deborah Lennan, E. Morris, C. Neylon, A Ream, E. Turner, L. Richardson, A. RC 254 Neoplasms. Tumors. Oncology (including Cancer) RM Therapeutics. Pharmacology Objective: the aim of this study is to co-create an evidence-based and theoretically informed web-based intervention (RESTORE) designed to enhance self-efficacy to live with cancer-related fatigue (CRF) following primary cancer treatment. Methods: a nine-step process informed the development of the intervention: (1) review of empirical literature; (2) review of existing patient resources; (3) establish theoretical framework; (4) establish design team with expertise in web-based interventions, CRF and people affected by cancer; (5) develop prototype intervention; (6) user testing phase 1; (7) refinement of prototype; (8) user testing phase 2; and (9) develop final intervention. Results: key stakeholders made a critical contribution at every step of intervention development, and user testing, which involved an iterative process and resulted in the final intervention. The RESTORE intervention has five sessions; sessions 1 and 2 include an introduction to CRF and goal setting. Sessions 3–5 can be tailored to user preference and are designed to cover areas of life where CRF may have an impact: home and work life, personal relationships and emotional adjustment. Conclusions: it is feasible to systematically ‘co-create’ an evidence-based and theory-driven web-based self-management intervention to support cancer survivors living with the consequences of cancer and its treatment. This is the first account of the development of a web-based intervention to support self-efficacy to manage CRF. An exploratory trial to test the feasibility and acceptability of RESTORE is now warranted Wiley 2015-08 Article PeerReviewed Foster, Claire, Calman, Lynn, Grimmett, Chloe, Breckons, M., Cotterell, P., Yardley, Lucy, Joseph, J., Hughes, S., Jones, R., Leonidou, C., Armes, Jo, Batehup, Lynn, Corner, Jessica, Fenlon, Deborah, Lennan, E., Morris, C., Neylon, A, Ream, E., Turner, L. and Richardson, A. (2015) Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management. Psycho-Oncology, 24 (8). pp. 940-949. ISSN 1099-1611 http://onlinelibrary.wiley.com/doi/10.1002/pon.3747/abstract doi:10.1002/pon.3747 doi:10.1002/pon.3747
spellingShingle RC 254 Neoplasms. Tumors. Oncology (including Cancer)
RM Therapeutics. Pharmacology
Foster, Claire
Calman, Lynn
Grimmett, Chloe
Breckons, M.
Cotterell, P.
Yardley, Lucy
Joseph, J.
Hughes, S.
Jones, R.
Leonidou, C.
Armes, Jo
Batehup, Lynn
Corner, Jessica
Fenlon, Deborah
Lennan, E.
Morris, C.
Neylon, A
Ream, E.
Turner, L.
Richardson, A.
Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management
title Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management
title_full Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management
title_fullStr Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management
title_full_unstemmed Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management
title_short Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management
title_sort managing fatigue after cancer treatment: development of restore, a web-based resource to support self-management
topic RC 254 Neoplasms. Tumors. Oncology (including Cancer)
RM Therapeutics. Pharmacology
url https://eprints.nottingham.ac.uk/32438/
https://eprints.nottingham.ac.uk/32438/
https://eprints.nottingham.ac.uk/32438/