Development and evaluation of an Individualised Outcome Measure (IOM) for randomised controlled trials in mental health

Predefined, researcher-selected outcomes are routinely used as the clinical end-point in randomised controlled trials (RCTs); however, individualised approaches may be an effective way to assess outcome in mental health research. The present study describes the development and evaluation of the Indi...

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Main Authors: Pesola, Francesca, Williams, Julie, Bird, Victoria, Freidl, Marion, Le Boutillier, Clair, Leamy, Mary, Macpherson, Rob, Slade, Mike
Format: Article
Published: Wiley 2015
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Online Access:https://eprints.nottingham.ac.uk/31027/
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author Pesola, Francesca
Williams, Julie
Bird, Victoria
Freidl, Marion
Le Boutillier, Clair
Leamy, Mary
Macpherson, Rob
Slade, Mike
author_facet Pesola, Francesca
Williams, Julie
Bird, Victoria
Freidl, Marion
Le Boutillier, Clair
Leamy, Mary
Macpherson, Rob
Slade, Mike
author_sort Pesola, Francesca
building Nottingham Research Data Repository
collection Online Access
description Predefined, researcher-selected outcomes are routinely used as the clinical end-point in randomised controlled trials (RCTs); however, individualised approaches may be an effective way to assess outcome in mental health research. The present study describes the development and evaluation of the Individualised Outcome Measure (IOM), which is a patient-specific outcome measure to be used for RCTs of complex interventions. IOM was developed using a narrative review, expert consultation and piloting with mental health service users (n=20). The final version of IOM comprises two components: Goal Attainment (GA) and Personalised Primary Outcome (PPO). For GA, patients identify one relevant goal at baseline and rate its attainment at follow-up. For PPO, patients choose an outcome domain related to their goal from a predefined list at baseline, and complete a standardised questionnaire assessing the chosen outcome domain at baseline and follow-up. A feasibility study indicated that IOM had adequate completion (89%) and acceptability (96%) rates in a clinical sample (n=84). IOM was then evaluated in an RCT (ISRCTN02507940). GA and PPO components were associated with each other and with the trial primary outcome. The use of the PPO component of IOM as the primary outcome could be considered in future RCTs.
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spelling nottingham-310272020-05-04T17:12:45Z https://eprints.nottingham.ac.uk/31027/ Development and evaluation of an Individualised Outcome Measure (IOM) for randomised controlled trials in mental health Pesola, Francesca Williams, Julie Bird, Victoria Freidl, Marion Le Boutillier, Clair Leamy, Mary Macpherson, Rob Slade, Mike Predefined, researcher-selected outcomes are routinely used as the clinical end-point in randomised controlled trials (RCTs); however, individualised approaches may be an effective way to assess outcome in mental health research. The present study describes the development and evaluation of the Individualised Outcome Measure (IOM), which is a patient-specific outcome measure to be used for RCTs of complex interventions. IOM was developed using a narrative review, expert consultation and piloting with mental health service users (n=20). The final version of IOM comprises two components: Goal Attainment (GA) and Personalised Primary Outcome (PPO). For GA, patients identify one relevant goal at baseline and rate its attainment at follow-up. For PPO, patients choose an outcome domain related to their goal from a predefined list at baseline, and complete a standardised questionnaire assessing the chosen outcome domain at baseline and follow-up. A feasibility study indicated that IOM had adequate completion (89%) and acceptability (96%) rates in a clinical sample (n=84). IOM was then evaluated in an RCT (ISRCTN02507940). GA and PPO components were associated with each other and with the trial primary outcome. The use of the PPO component of IOM as the primary outcome could be considered in future RCTs. Wiley 2015-07-17 Article PeerReviewed Pesola, Francesca, Williams, Julie, Bird, Victoria, Freidl, Marion, Le Boutillier, Clair, Leamy, Mary, Macpherson, Rob and Slade, Mike (2015) Development and evaluation of an Individualised Outcome Measure (IOM) for randomised controlled trials in mental health. International Journal of Methods in Psychiatric Research, 24 (4). pp. 257-265. ISSN 1557-0657 Randomised Controlled Trial Mental Health Personalised Measure Individualised Outcome http://onlinelibrary.wiley.com/doi/10.1002/mpr.1480/abstract doi:10.1002/mpr.1480 doi:10.1002/mpr.1480
spellingShingle Randomised Controlled Trial
Mental Health
Personalised Measure
Individualised Outcome
Pesola, Francesca
Williams, Julie
Bird, Victoria
Freidl, Marion
Le Boutillier, Clair
Leamy, Mary
Macpherson, Rob
Slade, Mike
Development and evaluation of an Individualised Outcome Measure (IOM) for randomised controlled trials in mental health
title Development and evaluation of an Individualised Outcome Measure (IOM) for randomised controlled trials in mental health
title_full Development and evaluation of an Individualised Outcome Measure (IOM) for randomised controlled trials in mental health
title_fullStr Development and evaluation of an Individualised Outcome Measure (IOM) for randomised controlled trials in mental health
title_full_unstemmed Development and evaluation of an Individualised Outcome Measure (IOM) for randomised controlled trials in mental health
title_short Development and evaluation of an Individualised Outcome Measure (IOM) for randomised controlled trials in mental health
title_sort development and evaluation of an individualised outcome measure (iom) for randomised controlled trials in mental health
topic Randomised Controlled Trial
Mental Health
Personalised Measure
Individualised Outcome
url https://eprints.nottingham.ac.uk/31027/
https://eprints.nottingham.ac.uk/31027/
https://eprints.nottingham.ac.uk/31027/