Parent’s stories of the lived experience of parenting a child with Cystic Fibrosis
Background: Cystic Fibrosis (CF) is a life-limiting chronic condition affecting over 9,000 people within the UK. Its treatment and life course has been found to render a significant burden on the individual, as well as the parents. To support parents of children with CF we need to talk to them and...
| Main Author: | Downing, Hannah |
|---|---|
| Format: | Dissertation (University of Nottingham only) |
| Language: | English |
| Published: |
2013
|
| Online Access: | https://eprints.nottingham.ac.uk/26879/ |
Similar Items
Who benefits when parents administer intravenous antibiotics, at home, to children with cystic fibrosis? A critical review.
by: Walsh, Daniel
Published: (2009)
by: Walsh, Daniel
Published: (2009)
US Cystic Fibrosis Foundation and European Cystic
Fibrosis Society consensus recommendations for the
management of non-tuberculous mycobacteria
in individuals with cystic fibrosis
by: Floto, R. Andres, et al.
Published: (2016)
by: Floto, R. Andres, et al.
Published: (2016)
Airway infection and Pseudomonas aeruginosa in bronchiectasis (cystic fibrosis and non-cystic fibrosis bronchiectasis)
by: Webb, Karmel
Published: (2022)
by: Webb, Karmel
Published: (2022)
Parenting a child with a traumatic brain injury: Experiences of parents and health professionals
by: Brown, F., et al.
Published: (2013)
by: Brown, F., et al.
Published: (2013)
Protecting the interest of the child in parental child abduction: Malaysian experience
by: Che Soh @ Yusoff, Roslina
Published: (2017)
by: Che Soh @ Yusoff, Roslina
Published: (2017)
Air trapping in early cystic fibrosis lung disease-Does CT tell the full story?
by: Rosenow, T., et al.
Published: (2017)
by: Rosenow, T., et al.
Published: (2017)
Educating Child And Parent
by: Sunday Star,
Published: (2008)
by: Sunday Star,
Published: (2008)
Multiple-breath washout as a lung function test in cystic fibrosis: A cystic fibrosis foundation workshop report
by: Subbarao, P., et al.
Published: (2015)
by: Subbarao, P., et al.
Published: (2015)
Parent, child, and sociocultural influences on Malaysian parenting behaviours
by: Zulkefly, Nor Sheereen, et al.
Published: (2024)
by: Zulkefly, Nor Sheereen, et al.
Published: (2024)
Perceptions of Population Cystic Fibrosis Prenatal and Preconception Carrier Screening Among Individuals with Cystic Fibrosis and Their Family Members
by: Maxwell, Susannah, et al.
Published: (2011)
by: Maxwell, Susannah, et al.
Published: (2011)
The parenting competency framework: Learning to be a parent of a child with asthma
by: Maltby, H., et al.
Published: (2003)
by: Maltby, H., et al.
Published: (2003)
Paternal experiences of their children’s diagnosis of Cystic Fibrosis following newborn screening diagnosis
by: Priddis, Lynn, et al.
Published: (2010)
by: Priddis, Lynn, et al.
Published: (2010)
Parents' of Child with Down's Syndrome: Their Care-giving Experiences, Parent - Child Communicative Pattern at Home and Perceived Quality of Life: A Pilot Study
by: Chan, K.G
Published: (2008)
by: Chan, K.G
Published: (2008)
Parental involvement and its effects on satisfaction of parent-child relationship
by: Yeoh, Si Han *, et al.
Published: (2010)
by: Yeoh, Si Han *, et al.
Published: (2010)
Parental bonding and parent-child relationship among tertiary students
by: Tam, Cai Lian *, et al.
Published: (2008)
by: Tam, Cai Lian *, et al.
Published: (2008)
Child monitoring system (Parent)
by: Nabillah, Saleh
Published: (2008)
by: Nabillah, Saleh
Published: (2008)
Delayed publications of clinical trials in cystic fibrosis
by: Hurley, M.N., et al.
Published: (2011)
by: Hurley, M.N., et al.
Published: (2011)
Cystic fibrosis microbiology: advances in antimicrobial therapy
by: Waters, Valerie, et al.
Published: (2015)
by: Waters, Valerie, et al.
Published: (2015)
Prophylactic anti-staphylococcal antibiotics for cystic fibrosis
by: Smyth, Alan R., et al.
Published: (2014)
by: Smyth, Alan R., et al.
Published: (2014)
Caring for child after parental separation: is shared parenting the best solution
by: Che Soh @ Yusoff, Roslina
Published: (2015)
by: Che Soh @ Yusoff, Roslina
Published: (2015)
Tuned In Parenting (TIP): A Collaborative Approach to Improving Parent-child Relationships
by: Priddis, Lynn, et al.
Published: (2008)
by: Priddis, Lynn, et al.
Published: (2008)
Telehealth clinics increase access to care for adults with cystic fibrosis living in rural and remote Western Australia
by: Wood, J., et al.
Published: (2017)
by: Wood, J., et al.
Published: (2017)
The relationship between child-parent relationship and child temperament
by: Pang, Adeline Zou Yun
Published: (2024)
by: Pang, Adeline Zou Yun
Published: (2024)
Parental stress and quality of life among parents with hearing
impaired child and non hearing impaired child
by: Ling, Wong Yee
Published: (2015)
by: Ling, Wong Yee
Published: (2015)
Economic intervention and parenting: a randomized experiment of statewide child development accounts
by: Nam, Yunju, et al.
Published: (2016)
by: Nam, Yunju, et al.
Published: (2016)
Prevention of treatment related adverse effects in cystic fibrosis
by: Jain, Kamini
Published: (2018)
by: Jain, Kamini
Published: (2018)
Mitigating the harm caused by Pseudomonas aeruginosa in Cystic Fibrosis
by: Palser, Sally C.
Published: (2024)
by: Palser, Sally C.
Published: (2024)
METABOLOMIC RESPONSE OF HEALTHY AND CYSTIC FIBROSIS EPITHELIUM TO RHINOVIRUS
by: Agudelo-Romero, P., et al.
Published: (2019)
by: Agudelo-Romero, P., et al.
Published: (2019)
POLYMICROBIAL INFECTION AND NEUTROPHILIC DISEASE IN CYSTIC FIBROSIS AIRWAYS
by: Laucirica, D.R., et al.
Published: (2019)
by: Laucirica, D.R., et al.
Published: (2019)
Respiratory viral infections in Western Australians with cystic fibrosis
by: Brestovac, Brian, et al.
Published: (2020)
by: Brestovac, Brian, et al.
Published: (2020)
Identifying peroxidases and their oxidants in the early pathology of cystic fibrosis.
by: Thomson, E., et al.
Published: (2010)
by: Thomson, E., et al.
Published: (2010)
Cost-Effectiveness of Carrier Screening for Cystic Fibrosis in Australia
by: Norman, Richard, et al.
Published: (2012)
by: Norman, Richard, et al.
Published: (2012)
Intravenous antibiotics for pulmonary exacerbations in people with cystic fibrosis
by: Hurley, M., et al.
Published: (2015)
by: Hurley, M., et al.
Published: (2015)
Exploring patterns of child-to-parent violence and abuse from caregivers’ perspectives: parental experiences, correlates and support-seeking behaviour
by: Turner, Katie
Published: (2020)
by: Turner, Katie
Published: (2020)
Pancreatic cystosis: A rare pancreatic manifestation
in cystic fibrosis
by: Mohammad A. Wazzan,
Published: (2015)
by: Mohammad A. Wazzan,
Published: (2015)
Poverty and child behavioral problems: The mediating role of parenting and parental well-being
by: Kaiser, T., et al.
Published: (2017)
by: Kaiser, T., et al.
Published: (2017)
A systematic review of parenting interventions for traumatic brain injury: Child and parent outcomes
by: Brown, F., et al.
Published: (2013)
by: Brown, F., et al.
Published: (2013)
Parent-child sexual communication: a review of parental influences on adolescent sexual behaviour
by: Suhaimi, Nor Suhaida, et al.
Published: (2017)
by: Suhaimi, Nor Suhaida, et al.
Published: (2017)
Positive parenting for positive parents: HIV/AIDS, poverty, caregiver depression, child behavior, and parenting in South Africa
by: Lachman, J., et al.
Published: (2014)
by: Lachman, J., et al.
Published: (2014)
Our child is dying: exploring the experiences, challenges and coping mechanisms of Malaysian parents as caregivers of a child with cancer
by: Ibrahim, Hasniza, et al.
Published: (2019)
by: Ibrahim, Hasniza, et al.
Published: (2019)
Similar Items
-
Who benefits when parents administer intravenous antibiotics, at home, to children with cystic fibrosis? A critical review.
by: Walsh, Daniel
Published: (2009) -
US Cystic Fibrosis Foundation and European Cystic
Fibrosis Society consensus recommendations for the
management of non-tuberculous mycobacteria
in individuals with cystic fibrosis
by: Floto, R. Andres, et al.
Published: (2016) -
Airway infection and Pseudomonas aeruginosa in bronchiectasis (cystic fibrosis and non-cystic fibrosis bronchiectasis)
by: Webb, Karmel
Published: (2022) -
Parenting a child with a traumatic brain injury: Experiences of parents and health professionals
by: Brown, F., et al.
Published: (2013) -
Protecting the interest of the child in parental child abduction: Malaysian experience
by: Che Soh @ Yusoff, Roslina
Published: (2017)