Disruption, control and coping: responses of and to the person with dementia in hospital
This qualitative study aimed to gain insight into the experience of hospitalisation from the perspectives of the older person with dementia, their family care-giver and other patients sharing the ward (co-patients). Non-participant observation of care on 11 acute hospital wards was supplemented by 3...
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| Format: | Article |
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Cambridge University Press
2015
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| Online Access: | https://eprints.nottingham.ac.uk/2382/ |
| _version_ | 1848790770506530816 |
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| author | Porock, Davina Clissett, Philip Harwood, Rowan H. Gladman, John R.F. |
| author_facet | Porock, Davina Clissett, Philip Harwood, Rowan H. Gladman, John R.F. |
| author_sort | Porock, Davina |
| building | Nottingham Research Data Repository |
| collection | Online Access |
| description | This qualitative study aimed to gain insight into the experience of hospitalisation from the perspectives of the older person with dementia, their family care-giver and other patients sharing the ward (co-patients). Non-participant observation of care on 11 acute hospital wards was supplemented by 39 semi-structured interviews with 35 family care-givers and four co-patients following discharge. Constant comparative analysis produced the core problem facing all those involved: disruption from normal routine meaning that the experience of hospitalisation was disrupted by the presence and behaviour of the person with dementia. Disruption adversely affected the person with dementia, triggering constructive, disengaged, distressed and neutral behaviours. Using Kitwood's model of person-centred care, these behaviours were interpreted as attempts by the person with dementia at gaining a sense of control over the unfamiliar environment and experience. Family care-givers' lives and experiences both inside and outside the hospital were disrupted by the hospitalisation. They too attempted to gain a sense of control over the experience and to give a sense of control to the patient, co-patients and staff. Co-patients experienced disruption from sharing space with the person with dementia and were left feeling vulnerable and sometimes afraid. They too attempted to gain a sense of control over their situation and give some control by helping the person with dementia, the family care-giver and the staff. |
| first_indexed | 2025-11-14T18:17:54Z |
| format | Article |
| id | nottingham-2382 |
| institution | University of Nottingham Malaysia Campus |
| institution_category | Local University |
| last_indexed | 2025-11-14T18:17:54Z |
| publishDate | 2015 |
| publisher | Cambridge University Press |
| recordtype | eprints |
| repository_type | Digital Repository |
| spelling | nottingham-23822020-05-04T16:59:48Z https://eprints.nottingham.ac.uk/2382/ Disruption, control and coping: responses of and to the person with dementia in hospital Porock, Davina Clissett, Philip Harwood, Rowan H. Gladman, John R.F. This qualitative study aimed to gain insight into the experience of hospitalisation from the perspectives of the older person with dementia, their family care-giver and other patients sharing the ward (co-patients). Non-participant observation of care on 11 acute hospital wards was supplemented by 39 semi-structured interviews with 35 family care-givers and four co-patients following discharge. Constant comparative analysis produced the core problem facing all those involved: disruption from normal routine meaning that the experience of hospitalisation was disrupted by the presence and behaviour of the person with dementia. Disruption adversely affected the person with dementia, triggering constructive, disengaged, distressed and neutral behaviours. Using Kitwood's model of person-centred care, these behaviours were interpreted as attempts by the person with dementia at gaining a sense of control over the unfamiliar environment and experience. Family care-givers' lives and experiences both inside and outside the hospital were disrupted by the hospitalisation. They too attempted to gain a sense of control over the experience and to give a sense of control to the patient, co-patients and staff. Co-patients experienced disruption from sharing space with the person with dementia and were left feeling vulnerable and sometimes afraid. They too attempted to gain a sense of control over their situation and give some control by helping the person with dementia, the family care-giver and the staff. Cambridge University Press 2015-01-31 Article PeerReviewed Porock, Davina, Clissett, Philip, Harwood, Rowan H. and Gladman, John R.F. (2015) Disruption, control and coping: responses of and to the person with dementia in hospital. Ageing and Society, 35 (1). pp. 37-63. ISSN 0144-686X Dementia Hospital Disruption Control Person-centred care Co-patients Family care-givers https://www.cambridge.org/core/journals/ageing-and-society/article/div-classtitledisruption-control-and-coping-responses-of-and-to-the-person-with-dementia-in-hospitaldiv/9BD04B8723732FD7E56EBA0B4B6EE6B0 doi:10.1017/S0144686X13000561 doi:10.1017/S0144686X13000561 |
| spellingShingle | Dementia Hospital Disruption Control Person-centred care Co-patients Family care-givers Porock, Davina Clissett, Philip Harwood, Rowan H. Gladman, John R.F. Disruption, control and coping: responses of and to the person with dementia in hospital |
| title | Disruption, control and coping: responses of and to the person with dementia in hospital |
| title_full | Disruption, control and coping: responses of and to the person with dementia in hospital |
| title_fullStr | Disruption, control and coping: responses of and to the person with dementia in hospital |
| title_full_unstemmed | Disruption, control and coping: responses of and to the person with dementia in hospital |
| title_short | Disruption, control and coping: responses of and to the person with dementia in hospital |
| title_sort | disruption, control and coping: responses of and to the person with dementia in hospital |
| topic | Dementia Hospital Disruption Control Person-centred care Co-patients Family care-givers |
| url | https://eprints.nottingham.ac.uk/2382/ https://eprints.nottingham.ac.uk/2382/ https://eprints.nottingham.ac.uk/2382/ |