The Impact of Childhood Chronic Renal Disease on Family Life: A Review of the Literature

Abstract The aim of this project was to use a literature review to examine the impact of childhood chronic renal disease on family life. A total of 22 articles and 4 books were included in the review. A progressive focus was developed by identifying 3 key areas in the literature on the impact of ch...

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Main Author: Hield, Kate
Format: Dissertation (University of Nottingham only)
Language:English
English
English
Published: 2010
Online Access:https://eprints.nottingham.ac.uk/23616/
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author Hield, Kate
author_facet Hield, Kate
author_sort Hield, Kate
building Nottingham Research Data Repository
collection Online Access
description Abstract The aim of this project was to use a literature review to examine the impact of childhood chronic renal disease on family life. A total of 22 articles and 4 books were included in the review. A progressive focus was developed by identifying 3 key areas in the literature on the impact of childhood chronic disease on family life, and applying these to the specific case of childhood chronic renal disease. The 3 key areas examined were the impact of chronic renal disease on siblings, role alteration and parental isolation, and interpersonal conflict. This literature review has identified that the unpredictability of childhood chronic renal disease is a factor which has the most significant impact on family life. This may affect parental employment opportunities and hence create financial difficulties for families, may result in parents becoming socially excluded from society and cause anxiety in healthy siblings due to the fear of becoming separated from their families. In addition, siblings of children with chronic renal disease may encounter mixed emotions caused by jealousy together with concern for their sick brother or sister’s health. Furthermore, parents may also assume healthcare-provider roles in addition to their parenting duties. They will also take on the role of student when learning to care for their child, and will eventually become the experts in their child’s care. This process is similar to the path that nurses take in their careers. Recommendations for future research include ascertaining whether or not there are significant differences in how specific diseases affect family life, carrying out more studies on how fathers and grandparents are affected by caring for a child with a chronic health condition, the effect this has on the marital relationship and finding out what support families need, from their points of view. These recommendations were made to further contribute to the knowledge base surrounding ‘family centred care’ and to help bridge the gap between acute-setting and community nursing.
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English
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spelling nottingham-236162022-03-21T16:06:52Z https://eprints.nottingham.ac.uk/23616/ The Impact of Childhood Chronic Renal Disease on Family Life: A Review of the Literature Hield, Kate Abstract The aim of this project was to use a literature review to examine the impact of childhood chronic renal disease on family life. A total of 22 articles and 4 books were included in the review. A progressive focus was developed by identifying 3 key areas in the literature on the impact of childhood chronic disease on family life, and applying these to the specific case of childhood chronic renal disease. The 3 key areas examined were the impact of chronic renal disease on siblings, role alteration and parental isolation, and interpersonal conflict. This literature review has identified that the unpredictability of childhood chronic renal disease is a factor which has the most significant impact on family life. This may affect parental employment opportunities and hence create financial difficulties for families, may result in parents becoming socially excluded from society and cause anxiety in healthy siblings due to the fear of becoming separated from their families. In addition, siblings of children with chronic renal disease may encounter mixed emotions caused by jealousy together with concern for their sick brother or sister’s health. Furthermore, parents may also assume healthcare-provider roles in addition to their parenting duties. They will also take on the role of student when learning to care for their child, and will eventually become the experts in their child’s care. This process is similar to the path that nurses take in their careers. Recommendations for future research include ascertaining whether or not there are significant differences in how specific diseases affect family life, carrying out more studies on how fathers and grandparents are affected by caring for a child with a chronic health condition, the effect this has on the marital relationship and finding out what support families need, from their points of view. These recommendations were made to further contribute to the knowledge base surrounding ‘family centred care’ and to help bridge the gap between acute-setting and community nursing. 2010 Dissertation (University of Nottingham only) NonPeerReviewed application/pdf en https://eprints.nottingham.ac.uk/23616/1/Acknowledgements%2C_Contents_Page_and_Abstract.pdf application/pdf en https://eprints.nottingham.ac.uk/23616/2/Dissertation_title_page.pdf application/pdf en https://eprints.nottingham.ac.uk/23616/3/Dissertation.pdf Hield, Kate (2010) The Impact of Childhood Chronic Renal Disease on Family Life: A Review of the Literature. [Dissertation (University of Nottingham only)] (Unpublished)
spellingShingle Hield, Kate
The Impact of Childhood Chronic Renal Disease on Family Life: A Review of the Literature
title The Impact of Childhood Chronic Renal Disease on Family Life: A Review of the Literature
title_full The Impact of Childhood Chronic Renal Disease on Family Life: A Review of the Literature
title_fullStr The Impact of Childhood Chronic Renal Disease on Family Life: A Review of the Literature
title_full_unstemmed The Impact of Childhood Chronic Renal Disease on Family Life: A Review of the Literature
title_short The Impact of Childhood Chronic Renal Disease on Family Life: A Review of the Literature
title_sort impact of childhood chronic renal disease on family life: a review of the literature
url https://eprints.nottingham.ac.uk/23616/