Genetically exceptional?: women's experiences of being at risk of hereditary breast and ovarian cancer

This thesis questions whether the experiences of women at-risk of hereditary breast and ovarian cancer (HBOC) might be genetically exceptional. Using a combination of retrospective in-depth interviews with women at-risk and observations of consultations carried out at a regional specialist centre, t...

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Main Author: Rowley, Emma
Format: Thesis (University of Nottingham only)
Language:English
Published: 2005
Subjects:
Online Access:https://eprints.nottingham.ac.uk/13209/
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author Rowley, Emma
author_facet Rowley, Emma
author_sort Rowley, Emma
building Nottingham Research Data Repository
collection Online Access
description This thesis questions whether the experiences of women at-risk of hereditary breast and ovarian cancer (HBOC) might be genetically exceptional. Using a combination of retrospective in-depth interviews with women at-risk and observations of consultations carried out at a regional specialist centre, this research questions the genetic exceptionalism thesis and the argument that the experiences and decisions that women at-risk of HBOC make, are unique and thus different compared to those of women diagnosed with non-genetic, sporadically developing breast or ovarian cancer. In examining the arguments for and against genetic exceptionalism, this thesis revisits the medical sociological literature on the doctor-patient relationship and discusses the difficulty in establishing who should be recognised to be the patient within the genetic consultation, the decision to undergo genetic testing and the decision to have risk-reducing, prophylactic surgery. The resulting analysis recognises the data to be moral accounts, constructed by research participants so that their utterances would be perceived in a particular manner. For example, while justifying their reported actions, participants were attempting to portray themselves as moral, responsible citizens, mothers, patients and women. In addressing these four aspects of women’s HBOC experiences, this thesis concludes that there is little unfamiliar to medical sociologists about the experiences described and the rationales given by the participants. Such data lends itself to the position where the notion of genetic exceptionalism cannot be supported. Consequently, the thesis concludes that the experiences of women at-risk of HBOC seem to be little different from other, non-genetic health experiences.
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format Thesis (University of Nottingham only)
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spelling nottingham-132092025-02-28T11:23:47Z https://eprints.nottingham.ac.uk/13209/ Genetically exceptional?: women's experiences of being at risk of hereditary breast and ovarian cancer Rowley, Emma This thesis questions whether the experiences of women at-risk of hereditary breast and ovarian cancer (HBOC) might be genetically exceptional. Using a combination of retrospective in-depth interviews with women at-risk and observations of consultations carried out at a regional specialist centre, this research questions the genetic exceptionalism thesis and the argument that the experiences and decisions that women at-risk of HBOC make, are unique and thus different compared to those of women diagnosed with non-genetic, sporadically developing breast or ovarian cancer. In examining the arguments for and against genetic exceptionalism, this thesis revisits the medical sociological literature on the doctor-patient relationship and discusses the difficulty in establishing who should be recognised to be the patient within the genetic consultation, the decision to undergo genetic testing and the decision to have risk-reducing, prophylactic surgery. The resulting analysis recognises the data to be moral accounts, constructed by research participants so that their utterances would be perceived in a particular manner. For example, while justifying their reported actions, participants were attempting to portray themselves as moral, responsible citizens, mothers, patients and women. In addressing these four aspects of women’s HBOC experiences, this thesis concludes that there is little unfamiliar to medical sociologists about the experiences described and the rationales given by the participants. Such data lends itself to the position where the notion of genetic exceptionalism cannot be supported. Consequently, the thesis concludes that the experiences of women at-risk of HBOC seem to be little different from other, non-genetic health experiences. 2005 Thesis (University of Nottingham only) NonPeerReviewed application/pdf en arr https://eprints.nottingham.ac.uk/13209/1/Emma_Rowley_Genetically_Exceptional_PhD_thesis_2005_%282%29.pdf Rowley, Emma (2005) Genetically exceptional?: women's experiences of being at risk of hereditary breast and ovarian cancer. PhD thesis, University of Nottingham. Cancer genetic aspects psychological aspects women diseases treatment physician and patient
spellingShingle Cancer
genetic aspects
psychological aspects
women
diseases
treatment
physician and patient
Rowley, Emma
Genetically exceptional?: women's experiences of being at risk of hereditary breast and ovarian cancer
title Genetically exceptional?: women's experiences of being at risk of hereditary breast and ovarian cancer
title_full Genetically exceptional?: women's experiences of being at risk of hereditary breast and ovarian cancer
title_fullStr Genetically exceptional?: women's experiences of being at risk of hereditary breast and ovarian cancer
title_full_unstemmed Genetically exceptional?: women's experiences of being at risk of hereditary breast and ovarian cancer
title_short Genetically exceptional?: women's experiences of being at risk of hereditary breast and ovarian cancer
title_sort genetically exceptional?: women's experiences of being at risk of hereditary breast and ovarian cancer
topic Cancer
genetic aspects
psychological aspects
women
diseases
treatment
physician and patient
url https://eprints.nottingham.ac.uk/13209/