Representativeness, legitimacy and power in public involvement in health-care management

Public participation in health-service management is an increasingly prominent policy internationally. Frequently, though, academic studies have found it marginalized by health professionals who, keen to retain control over decision-making, undermine the legitimacy of involved members of the public...

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Main Author: Martin, Graham P.
Format: Article
Published: Elsevier 2008
Online Access:https://eprints.nottingham.ac.uk/1040/
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author Martin, Graham P.
author_facet Martin, Graham P.
author_sort Martin, Graham P.
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description Public participation in health-service management is an increasingly prominent policy internationally. Frequently, though, academic studies have found it marginalized by health professionals who, keen to retain control over decision-making, undermine the legitimacy of involved members of the public, in particular by questioning their representativeness. This paper examines this negotiation of representative legitimacy between staff and involved users by drawing on a qualitative study of service-user involvement in pilot cancer-genetics services recently introduced in England, using interviews, participant observation and documentary analysis. In contrast to the findings of much of the literature, health professionals identified some degree of representative legitimacy in the contributions made by users. However, the ways in which staff and users constructed representativeness diverged significantly. Where staff valued the identities of users as biomedical and lay subjects, users themselves described the legitimacy of their contribution in more expansive terms of knowledge and citizenship. My analysis seeks to show how disputes over representativeness relate not just to a struggle for power according to contrasting group interests, but also to a substantive divergence in understanding of the nature of representativeness in the context of state-orchestrated efforts to increase public participation. This divergence might suggest problems with the enactment of such aspirations in practice; alternatively, however, contestation of representative legitimacy might be understood as reflecting ambiguities in policy-level objectives for participation, which secure implementation by accommodating the divergent constructions of those charged with putting initiatives into practice.
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spelling nottingham-10402020-05-04T20:27:49Z https://eprints.nottingham.ac.uk/1040/ Representativeness, legitimacy and power in public involvement in health-care management Martin, Graham P. Public participation in health-service management is an increasingly prominent policy internationally. Frequently, though, academic studies have found it marginalized by health professionals who, keen to retain control over decision-making, undermine the legitimacy of involved members of the public, in particular by questioning their representativeness. This paper examines this negotiation of representative legitimacy between staff and involved users by drawing on a qualitative study of service-user involvement in pilot cancer-genetics services recently introduced in England, using interviews, participant observation and documentary analysis. In contrast to the findings of much of the literature, health professionals identified some degree of representative legitimacy in the contributions made by users. However, the ways in which staff and users constructed representativeness diverged significantly. Where staff valued the identities of users as biomedical and lay subjects, users themselves described the legitimacy of their contribution in more expansive terms of knowledge and citizenship. My analysis seeks to show how disputes over representativeness relate not just to a struggle for power according to contrasting group interests, but also to a substantive divergence in understanding of the nature of representativeness in the context of state-orchestrated efforts to increase public participation. This divergence might suggest problems with the enactment of such aspirations in practice; alternatively, however, contestation of representative legitimacy might be understood as reflecting ambiguities in policy-level objectives for participation, which secure implementation by accommodating the divergent constructions of those charged with putting initiatives into practice. Elsevier 2008 Article PeerReviewed Martin, Graham P. (2008) Representativeness, legitimacy and power in public involvement in health-care management. Social Science & Medicine, 67 (11). pp. 1757-1765. ISSN 0277-9536 http://dx.doi.org/doi:10.1016/j.socscimed.2008.09.024
spellingShingle Martin, Graham P.
Representativeness, legitimacy and power in public involvement in health-care management
title Representativeness, legitimacy and power in public involvement in health-care management
title_full Representativeness, legitimacy and power in public involvement in health-care management
title_fullStr Representativeness, legitimacy and power in public involvement in health-care management
title_full_unstemmed Representativeness, legitimacy and power in public involvement in health-care management
title_short Representativeness, legitimacy and power in public involvement in health-care management
title_sort representativeness, legitimacy and power in public involvement in health-care management
url https://eprints.nottingham.ac.uk/1040/
https://eprints.nottingham.ac.uk/1040/