Misconceptions about disease among parents of thalassaemic patients: A qualitative study
Introduction: Poor understanding and knowledge about thalassaemia has been associated with a poor attitude towards the disease as a whole. Thus, it is the aim of this study to explore the poor attitude and misconceptions about thalassaemia among the parents of thalassaemic patients. Methods: This st...
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| Format: | Article |
| Language: | English English |
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Kulliyyah of Medicine, International Islamic University Malaysia
2016
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| Online Access: | http://irep.iium.edu.my/58675/ http://irep.iium.edu.my/58675/1/09.%20MRS2016-ABSTRACT-BOOK-96.pdf http://irep.iium.edu.my/58675/7/17.%20IMJM-SUPPLEMENT-ISSUE.jpg |
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| author | Mat Zin, Nora Muhammad, Siti Aeshah @ Naznin Wan Su, Kamaruzaman Abdul Rahman, Suzanah |
| author_facet | Mat Zin, Nora Muhammad, Siti Aeshah @ Naznin Wan Su, Kamaruzaman Abdul Rahman, Suzanah |
| author_sort | Mat Zin, Nora |
| building | IIUM Repository |
| collection | Online Access |
| description | Introduction: Poor understanding and knowledge about thalassaemia has been associated with a poor attitude towards the disease as a whole. Thus, it is the aim of this study to explore the poor attitude and misconceptions about thalassaemia among the parents of thalassaemic patients. Methods: This study was conducted over a six-month period. Five focus group sessions (5-6 per group) involving different sets of parents of thalassaemia patients attending the Paediatric Clinic of Tengku Ampuan Afzan Hospital, Kuantan, Pahang, Malaysia was carried out. Results: The study reveals that misconceptions associated with thalassaemia are still prevalent as shown in our study. Misconceptions that we encountered were related to the underlying cause, sign and symptoms, blood transfusion therapy and iron chelation therapy. Such incorrect knowledge was observed among parents coming from different educational backgrounds and socioeconomic status. As a result of misconceptions parents opt for alternative medicine or to seek treatment from traditional healers for thalassaemia. Conclusions: Several misconceptions still continue despite the nationwide campaign on screening programme to increase awareness about the disease. More effort is needed to improve the knowledge of the parents of thalassaemic patients as they have direct influence on the supervision of the management of thalassaemia patients.
KEYWORDS: Misconception, Thalassaemia |
| first_indexed | 2025-11-14T16:48:42Z |
| format | Article |
| id | iium-58675 |
| institution | International Islamic University Malaysia |
| institution_category | Local University |
| language | English English |
| last_indexed | 2025-11-14T16:48:42Z |
| publishDate | 2016 |
| publisher | Kulliyyah of Medicine, International Islamic University Malaysia |
| recordtype | eprints |
| repository_type | Digital Repository |
| spelling | iium-586752022-03-28T08:10:40Z http://irep.iium.edu.my/58675/ Misconceptions about disease among parents of thalassaemic patients: A qualitative study Mat Zin, Nora Muhammad, Siti Aeshah @ Naznin Wan Su, Kamaruzaman Abdul Rahman, Suzanah BF173 Psychoanalysis BF712 Developmental psychology RB Pathology Introduction: Poor understanding and knowledge about thalassaemia has been associated with a poor attitude towards the disease as a whole. Thus, it is the aim of this study to explore the poor attitude and misconceptions about thalassaemia among the parents of thalassaemic patients. Methods: This study was conducted over a six-month period. Five focus group sessions (5-6 per group) involving different sets of parents of thalassaemia patients attending the Paediatric Clinic of Tengku Ampuan Afzan Hospital, Kuantan, Pahang, Malaysia was carried out. Results: The study reveals that misconceptions associated with thalassaemia are still prevalent as shown in our study. Misconceptions that we encountered were related to the underlying cause, sign and symptoms, blood transfusion therapy and iron chelation therapy. Such incorrect knowledge was observed among parents coming from different educational backgrounds and socioeconomic status. As a result of misconceptions parents opt for alternative medicine or to seek treatment from traditional healers for thalassaemia. Conclusions: Several misconceptions still continue despite the nationwide campaign on screening programme to increase awareness about the disease. More effort is needed to improve the knowledge of the parents of thalassaemic patients as they have direct influence on the supervision of the management of thalassaemia patients. KEYWORDS: Misconception, Thalassaemia Kulliyyah of Medicine, International Islamic University Malaysia 2016-12 Article PeerReviewed application/pdf en http://irep.iium.edu.my/58675/1/09.%20MRS2016-ABSTRACT-BOOK-96.pdf application/pdf en http://irep.iium.edu.my/58675/7/17.%20IMJM-SUPPLEMENT-ISSUE.jpg Mat Zin, Nora and Muhammad, Siti Aeshah @ Naznin and Wan Su, Kamaruzaman and Abdul Rahman, Suzanah (2016) Misconceptions about disease among parents of thalassaemic patients: A qualitative study. International Medical Journal Malaysia, 15 (Supplemenet Issue). p. 96. ISSN 1823-4631 (Unpublished) http://iiumedic.net/imjm/v1/download/Volume%2015%20Supplement/MRS2016-ABSTRACT-BOOK-96.pdf |
| spellingShingle | BF173 Psychoanalysis BF712 Developmental psychology RB Pathology Mat Zin, Nora Muhammad, Siti Aeshah @ Naznin Wan Su, Kamaruzaman Abdul Rahman, Suzanah Misconceptions about disease among parents of thalassaemic patients: A qualitative study |
| title | Misconceptions about disease among parents of thalassaemic patients: A qualitative study |
| title_full | Misconceptions about disease among parents of thalassaemic patients: A qualitative study |
| title_fullStr | Misconceptions about disease among parents of thalassaemic patients: A qualitative study |
| title_full_unstemmed | Misconceptions about disease among parents of thalassaemic patients: A qualitative study |
| title_short | Misconceptions about disease among parents of thalassaemic patients: A qualitative study |
| title_sort | misconceptions about disease among parents of thalassaemic patients: a qualitative study |
| topic | BF173 Psychoanalysis BF712 Developmental psychology RB Pathology |
| url | http://irep.iium.edu.my/58675/ http://irep.iium.edu.my/58675/ http://irep.iium.edu.my/58675/1/09.%20MRS2016-ABSTRACT-BOOK-96.pdf http://irep.iium.edu.my/58675/7/17.%20IMJM-SUPPLEMENT-ISSUE.jpg |