Thalassaemia: A study on the perception of patients and family members
Marked improvement in the management of thalassaemia has not been matched by progress in psychosocial rehabilitation as thalassaemia continues to pose challenges to patients and their family members. Few studies have been carried out in Malaysia to look at such issues. This study is therefore to e...
| Main Authors: | Jantan, Abdul Wahab, Muhammad, Siti Aeshah @ Naznin, Mat Zin, Nora, Abdul Rahman, Suzanah, Mohamed, Zulaiha, Abdul Rahim, Aidil Faszrul, Wan Su, Kamaruzaman |
|---|---|
| Format: | Article |
| Language: | English English |
| Published: |
Malaysian Medical Association
2011
|
| Subjects: | |
| Online Access: | http://irep.iium.edu.my/55779/ http://irep.iium.edu.my/55779/1/Thalassaemia.pdf http://irep.iium.edu.my/55779/7/Scopus%20-%20Document%20details.pdf |
Similar Items
Thalassaemia : a study on the perception of patients and
family members
by: Jantan, Abdul Wahab, et al.
Published: (2011)
by: Jantan, Abdul Wahab, et al.
Published: (2011)
Thalassaemia: a study on the perception of patients and family members
by: Jantan, Abdul Wahab, et al.
Published: (2011)
by: Jantan, Abdul Wahab, et al.
Published: (2011)
Thalassaemia management: patients’ and family members’ perspectives
by: Muhammad, Siti Aeshah @ Naznin, et al.
Published: (2011)
by: Muhammad, Siti Aeshah @ Naznin, et al.
Published: (2011)
Misconceptions about disease among parents of thalassaemic patients: A qualitative study
by: Mat Zin, Nora, et al.
Published: (2016)
by: Mat Zin, Nora, et al.
Published: (2016)
Screening for thalassaemia among group of students of a
higher institution – our experience
by: A.Talib, Norlelawati, et al.
Published: (2011)
by: A.Talib, Norlelawati, et al.
Published: (2011)
Screening of Alpha-Thalassaemia 1 in Beta-Thalassaemia Carriers
by: Chong, Yi Min
Published: (2005)
by: Chong, Yi Min
Published: (2005)
Transfusion transmitted malaria in a thalassaemia major patient
by: Anuar, Nur Aliaa, et al.
Published: (2020)
by: Anuar, Nur Aliaa, et al.
Published: (2020)
Satisfaction, anxiety, depression and stress among family members of patients in Malaysian Intensive Care Unit
by: Abdul Hamid, Mohd Ariffudin, et al.
Published: (2020)
by: Abdul Hamid, Mohd Ariffudin, et al.
Published: (2020)
Clinical and cytogenetic profiles of children with autism in Kuantan Pahang
by: Mat Zin, Nora, et al.
Published: (2016)
by: Mat Zin, Nora, et al.
Published: (2016)
A survey on perception and knowledge of transfusion medicine among final year medical students
by: Muhammad, Siti Aeshah @ Naznin, et al.
Published: (2009)
by: Muhammad, Siti Aeshah @ Naznin, et al.
Published: (2009)
Molecular characterisation of beta thalassaemia in patients from Sabah, Malaysia
by: Teh, Lai Kuan
Published: (2014)
by: Teh, Lai Kuan
Published: (2014)
Craniofacial And Dental Arches
Characteristics In Transfusion
Dependent Thalassaemia Patients
by: Fattah Toman, Heba Ahmed Abdel
Published: (2009)
by: Fattah Toman, Heba Ahmed Abdel
Published: (2009)
Hb lepore/β0-thalassaemia with α+-thalassaemia interactions, a potential diagnostic pitfall
by: Hafiza, Alauddin, et al.
Published: (2015)
by: Hafiza, Alauddin, et al.
Published: (2015)
Reviewing the compounding risks for tuberculosis drug-induced liver injury in a patient with transfusion dependent thalassaemia
by: Rofii, Nursafinas, et al.
Published: (2023)
by: Rofii, Nursafinas, et al.
Published: (2023)
Haematological parameter evaluation in different types of deletional alpha thalassaemia and in coinheritance of deletional alpha thalassaemia and beta thalassaemia in Hospital Universiti Sains Malaysia
by: Arifin, Samilawati Mohd
Published: (2018)
by: Arifin, Samilawati Mohd
Published: (2018)
Educational needs of family caregiver
of stroke patients as perceived by the
family
by: Zin, Afiqah Mat
Published: (2012)
by: Zin, Afiqah Mat
Published: (2012)
Putative role of Bach1 gene in HbE/beta-thalassaemia patients
by: Lee, Tze Yan
Published: (2013)
by: Lee, Tze Yan
Published: (2013)
Blood Lead Level
Among Paediatric Thalassaemia Patients
In
Kota Bharu, Kelantan
by: Mohd Igbal@ Mohd Iqbal, M.Iyen
Published: (2011)
by: Mohd Igbal@ Mohd Iqbal, M.Iyen
Published: (2011)
Public perceptions and attitudes toward thalassaemia: influencing factors in a multi-racial population
by: Wong, Li Ping, et al.
Published: (2011)
by: Wong, Li Ping, et al.
Published: (2011)
Screening of thalassaemia carriers and its limitations
by: George, Elizabeth
Published: (2014)
by: George, Elizabeth
Published: (2014)
Quality of life among thalassaemia children, adolescent and their caregivers
by: Munirah Ismail,, et al.
Published: (2013)
by: Munirah Ismail,, et al.
Published: (2013)
Association of Alpha Haemoglobin Stabilizing Protein in HbE/ Beta-Thalassaemia Patients in Malaysia
by: Lim, Wai Feng
Published: (2011)
by: Lim, Wai Feng
Published: (2011)
Differential gene expression
Analyses in HBE/BETA thalassaemia
patients and their relationship to
disease severity
by: Alsaleh, Heba A. A.
Published: (2022)
by: Alsaleh, Heba A. A.
Published: (2022)
War for the peace in Pakistan
by: Ali, Syed Masroor, et al.
Published: (2013)
by: Ali, Syed Masroor, et al.
Published: (2013)
Coinheritance of haemoglobin e trait with alpha thalassaemia among Malay students in national thalassaemia screening programme in Hospital Sultanah Nur Zahirah Kuala Terengganu
by: Somasundram, Suguna, et al.
Published: (2021)
by: Somasundram, Suguna, et al.
Published: (2021)
Prevalence of beta thalassaemia/beta haemoglobin variant among thalassaemia screening in Hospital Tengku Ampuan Rahimah (HTAR), Klang
by: Mohyee, Norlyiyana
Published: (2020)
by: Mohyee, Norlyiyana
Published: (2020)
A rare case of alpha-thalassaemia intermedia in a Malay patient double heterozygous for α+ –thalassaemia and a mutation in α1 globin gene CD59 (GGC → GAC)
by: George, Elizabeth, et al.
Published: (2009)
by: George, Elizabeth, et al.
Published: (2009)
Erythrocyte zinc protoporphyrin in beta-thalassaemia carriers
by: George, Elizabeth, et al.
Published: (2008)
by: George, Elizabeth, et al.
Published: (2008)
HbE β-Thalassaemia in Malaysia: revisited
by: George, Elizabeth
Published: (2013)
by: George, Elizabeth
Published: (2013)
“It Changes Everything”: Family Members’ Experiences
of Childhood Cancer
by: Davies, Jenny
Published: (2024)
by: Davies, Jenny
Published: (2024)
Optimal mean corpuscular haemoglobin (MCH) cut-off value for differentiating alpha plus and alpha zero thalassaemia in thalassaemia screening
by: Idris, Faridah, et al.
Published: (2020)
by: Idris, Faridah, et al.
Published: (2020)
Perceptions of Population Cystic Fibrosis Prenatal and Preconception Carrier Screening Among Individuals with Cystic Fibrosis and Their Family Members
by: Maxwell, Susannah, et al.
Published: (2011)
by: Maxwell, Susannah, et al.
Published: (2011)
Psychometric profile of Malaysian version of the Depressive, Anxiety and Stress Scale 42-item (DASS-42)
by: Musa, Ramli, et al.
Published: (2012)
by: Musa, Ramli, et al.
Published: (2012)
Molecular characterisation of alpha-thalassaemia in patients investigated for hypochromic microcytic indices in Hospital Universiti Sains Malaysia
by: Vijian, Divashini
Published: (2023)
by: Vijian, Divashini
Published: (2023)
Usefulness of red blood cell size factor (RSf) in screening genetic variants of alpha thalassaemia thalassaemia trait regardless of iron status
by: Idris, Nur Juliana, et al.
Published: (2018)
by: Idris, Nur Juliana, et al.
Published: (2018)
Differences in attitude towards end-of-life care among haemodialysis patients and their family members in two Malaysian hospitals
by: Azahar, Aizad, et al.
Published: (2021)
by: Azahar, Aizad, et al.
Published: (2021)
Conflicting perceptions on participation between citizens and members of local government
by: Mohammadi, Seyed Hamid, et al.
Published: (2018)
by: Mohammadi, Seyed Hamid, et al.
Published: (2018)
Screening for thalassaemia in pregnant women: a laboratory perspective
by: George, Elizabeth, et al.
Published: (2005)
by: George, Elizabeth, et al.
Published: (2005)
Haemoglobin Adana in alpha thalassaemia intermedia in the Malaysian population
by: Lee, Tze Yan
Published: (2017)
by: Lee, Tze Yan
Published: (2017)
A study of thalassaemia among blood
donors in HUSM
by: Adam, Nor Atifah bt. Mohd
Published: (2004)
by: Adam, Nor Atifah bt. Mohd
Published: (2004)
Similar Items
-
Thalassaemia : a study on the perception of patients and
family members
by: Jantan, Abdul Wahab, et al.
Published: (2011) -
Thalassaemia: a study on the perception of patients and family members
by: Jantan, Abdul Wahab, et al.
Published: (2011) -
Thalassaemia management: patients’ and family members’ perspectives
by: Muhammad, Siti Aeshah @ Naznin, et al.
Published: (2011) -
Misconceptions about disease among parents of thalassaemic patients: A qualitative study
by: Mat Zin, Nora, et al.
Published: (2016) -
Screening for thalassaemia among group of students of a
higher institution – our experience
by: A.Talib, Norlelawati, et al.
Published: (2011)