Can I give food or drink to my terminally Ill child

Food is considered as a social responsibility of caregivers to their children. It has cultural connotation for all races notwithstanding their background and religious belief; that social responsibility should not be separated even in terminally ill patients. We recorded a case scenario of a termina...

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Main Authors: Hasan, Taufiq Hidayat, Iqbal, Zahoor, Nasir, Ariffin, Nasir, Norsarwany, Taib, Fahisham
Format: Article
Language:English
Published: University Sains Malaysia 2015
Subjects:
Online Access:http://irep.iium.edu.my/45891/
http://irep.iium.edu.my/45891/1/Can_I_Give_Food_or_Drink_To_My_Terminally_Ill_Child.pdf
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author Hasan, Taufiq Hidayat
Iqbal, Zahoor
Nasir, Ariffin
Nasir, Norsarwany
Taib, Fahisham
author_facet Hasan, Taufiq Hidayat
Iqbal, Zahoor
Nasir, Ariffin
Nasir, Norsarwany
Taib, Fahisham
author_sort Hasan, Taufiq Hidayat
building IIUM Repository
collection Online Access
description Food is considered as a social responsibility of caregivers to their children. It has cultural connotation for all races notwithstanding their background and religious belief; that social responsibility should not be separated even in terminally ill patients. We recorded a case scenario of a terminally ill child who faced difficult end of life with inability to take oral fluids or food due to mechanical obstruction of duodenum by the pelvic rhabdomyosarcoma. From cultural context, the physical act of giving food and fluids to a sick person is considered “a display of one’s affection”. It is understandable that, once the dying phase has reached, and the body starts to shut down, administering fluids may not be useful despite it is deemed necessary from cultural point of view. This case illustrates an ethical dilemma in managing a child with end stage metastatic disease with multiple systemic complications, compounded with futility of medical care and complex social circumstances. It is quite challenging for physicians and relatives to provide good end of life care to patients in palliative care setting. Ensuring good quality of care, quality of life and quality of death are paramount to avoid suffering and distress among the patients and family members.
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spelling iium-458912017-11-28T10:07:18Z http://irep.iium.edu.my/45891/ Can I give food or drink to my terminally Ill child Hasan, Taufiq Hidayat Iqbal, Zahoor Nasir, Ariffin Nasir, Norsarwany Taib, Fahisham RJ Pediatrics Food is considered as a social responsibility of caregivers to their children. It has cultural connotation for all races notwithstanding their background and religious belief; that social responsibility should not be separated even in terminally ill patients. We recorded a case scenario of a terminally ill child who faced difficult end of life with inability to take oral fluids or food due to mechanical obstruction of duodenum by the pelvic rhabdomyosarcoma. From cultural context, the physical act of giving food and fluids to a sick person is considered “a display of one’s affection”. It is understandable that, once the dying phase has reached, and the body starts to shut down, administering fluids may not be useful despite it is deemed necessary from cultural point of view. This case illustrates an ethical dilemma in managing a child with end stage metastatic disease with multiple systemic complications, compounded with futility of medical care and complex social circumstances. It is quite challenging for physicians and relatives to provide good end of life care to patients in palliative care setting. Ensuring good quality of care, quality of life and quality of death are paramount to avoid suffering and distress among the patients and family members. University Sains Malaysia 2015-09 Article PeerReviewed application/pdf en http://irep.iium.edu.my/45891/1/Can_I_Give_Food_or_Drink_To_My_Terminally_Ill_Child.pdf Hasan, Taufiq Hidayat and Iqbal, Zahoor and Nasir, Ariffin and Nasir, Norsarwany and Taib, Fahisham (2015) Can I give food or drink to my terminally Ill child. Education in Medicine Journal, 7 (3). e73-e78. ISSN 2180-1932 http://www.eduimed.com/index.php/eimj/article/view/374
spellingShingle RJ Pediatrics
Hasan, Taufiq Hidayat
Iqbal, Zahoor
Nasir, Ariffin
Nasir, Norsarwany
Taib, Fahisham
Can I give food or drink to my terminally Ill child
title Can I give food or drink to my terminally Ill child
title_full Can I give food or drink to my terminally Ill child
title_fullStr Can I give food or drink to my terminally Ill child
title_full_unstemmed Can I give food or drink to my terminally Ill child
title_short Can I give food or drink to my terminally Ill child
title_sort can i give food or drink to my terminally ill child
topic RJ Pediatrics
url http://irep.iium.edu.my/45891/
http://irep.iium.edu.my/45891/
http://irep.iium.edu.my/45891/1/Can_I_Give_Food_or_Drink_To_My_Terminally_Ill_Child.pdf